Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,137 members • 28,470 posts

All posts for July 2021

Which vitamins and probiotics are best?

Hi, my 10 year old daughter has just been diagnosed with Lupus. I have extensively researched online about which vitamins and probiotics to get her but there...

Hi, my 10 year old daughter has just been diagnosed with Lupus. I have extensive...

sofiawahid50

•3 years ago

19 Replies

Another sign to make you smile.

Keeping on the theme of food and drink my friend spotted this one in a park in Keswick which made us smile, not least of all because we were gasping at the end...

Keeping on the theme of food and drink my friend spotted this one in a park in K...

Spotty-ewe

•3 years ago

50 Replies

Pre-op update

Hi folks just an update - went for pre op today saw a lovely nurse who said wow for someone with Lupus & RA you look amazing 🤣 this cheered me up no end - I’m...

Hi folks just an update - went for pre op today saw a lovely nurse who said wow ...

svfarmer

•3 years ago

42 Replies

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Just a question

I’ve been meaning to ask, does anyone have this happen to them/ is this a lupus thing: Where you’re fine maybe all day and then later in the day you may get...

I’ve been meaning to ask, does anyone have this happen to them/ is this a lupus ...

JennaShi

•3 years ago

14 Replies

JUst wantwd to say!

No Question..........just....... "I hate Lupus". There,........I have said it now, as I know you are the only people who will truly understand me! I dont need...

No Question..........just....... "I hate Lupus". There,........I have said it no...

lupylupus

•3 years ago

13 Replies

The 19th July

Our latest joint letter about Monday: https://nationalvoices.us7.list-manage.com/track/click?u=eb80d505a316b024f7efd798c&id=bde0f313d3&e=1476e2042a Best...

Our latest joint letter about Monday: https://nationalvoices.us7.list-manage.co...

Kevin53

•3 years ago

5 Replies

Blood Test Results

Hi again everyone! So I had a large set of blood tests done last week to get prepped before I get sent to a Rheumatologist for the first time. I saw my GP...

Hi again everyone! So I had a large set of blood tests done last week to get pr...

ClodaghK

•3 years ago

1 Reply

😂😂😂🥰

My friend just sent me this - thought I would share as really gave me a laugh this morning x

My friend just sent me this - thought I would share as really gave me a laugh th...

svfarmer

•3 years ago

11 Replies

Petition for mandatory face masks

Hi all, I'm sure I am not the only one here who is concerned about the ending of mandatory face masks. There is a petition that is gaining momentum for the...

Hi all, I'm sure I am not the only one here who is concerned about the ending of...

vampbite34

•3 years ago

2 Replies

Are these bloodwork results indicative of MCTD?

Lab Results as follows: RA Factor - positive with elevated titer CRP - elevated ANA - negative RNP - positive DsDNA, SS-A/Ro, SS-B/La, Sm - All negative C3...

Lab Results as follows: RA Factor - positive with elevated titer CRP - elevated ...

HeddaB

•3 years ago

1 Reply

My ana is negative, but dsdna is positive, what does this mean?

Dsdna lupus

dancer44wolves

•3 years ago

5 Replies

Help and Opinions on Prolia for Osteoporosis

After breaking 3 ribs for no reason and my bone density much worse, the rheumatologist, endocrinologist and GP felt Prolia may be the next step. There is no...

After breaking 3 ribs for no reason and my bone density much worse, the rheumato...

Pumpkin2009

•3 years ago

8 Replies

Study on fibromyalgia

https://www.medicalnewstoday.com/articles/fibromyalgia-more-evidence-of-links-to-immune-system

https://www.medicalnewstoday.com/articles/fibromyalgia-more-evidence-of-links-to...

Roarah

•3 years ago

1 Reply

Dew drop lupins

For CP, to cheer you up.

Hidden

•3 years ago

2 Replies

Gutted 😞

Well my long awaited Rheumatology appointment lasted just ten minutes. I told him that my eyes, nose, mouth, skin, hair and vagina were all dry, painfully so....

Well my long awaited Rheumatology appointment lasted just ten minutes. I told hi...

CecilyParsley

•3 years ago

124 Replies

rogue antibodies

saw a post from the guardian this morning [sorry I don't know how to link it] that scientist have found a rogue antibody causing long covid and are now working...

saw a post from the guardian this morning [sorry I don't know how to link it] th...

suzannah16

•3 years ago

28 Replies

Rash back of upper arm

Good morning Does anyone get this kind of rash on the backs of the tops of their arms. No itching but this area is always freezing cold to touch. I've had...

Good morning Does anyone get this kind of rash on the backs of the tops of thei...

Yellow-Petal

•3 years ago

6 Replies

Covid kid update, partially long rant

We are near our covid kid’s isolation period. She tested positive on Thursday July first and and has been in quarantine since that morning. Since bringing...

We are near our covid kid’s isolation period. She tested positive on Thursday J...

JennaShi

•3 years ago

6 Replies

Fresh in the cyber freezer for you all to enjoy!

Nigella Cropley has whipped up for you some homemade Bailey’s ice cream with chunks of Cadbury’s Fudge and Biscoff Cream biscuits! You might need to be quick...

Nigella Cropley has whipped up for you some homemade Bailey’s ice cream with chu...

Horsewhisper

•3 years ago

19 Replies

What to expect

I had my first rheumatology appointment last week and I'm happy that I've been seen and will hopefully be finding out more! I was referred because of a...

I had my first rheumatology appointment last week and I'm happy that I've been s...

josee94

•3 years ago

11 Replies

Cutie in a different place.

Hello everyone Its ppp pick up a penguin time because this week's pic is of two circus penguins who got very bored of lockdown in Russia. So They decided a...

Hello everyone Its ppp pick up a penguin time because this week's pic is of two ...

misty14

•3 years ago

35 Replies

English rose

As you all enjoyed my flower pots I’m sharing this rose bud picture too. It reminds me of making rose water scent with the petals as a child …. 🥀

As you all enjoyed my flower pots I’m sharing this rose bud picture too. It rem...

Hidden

•3 years ago

17 Replies

Care and support

Hi there, My mum has had a big Lupus/health relapse, she is currently in hospital with pneumonia, sepsis as well as abscesses on the inside of her back and...

Hi there, My mum has had a big Lupus/health relapse, she is currently in hospit...

IC1995

•3 years ago

11 Replies

mesenchymal stem cells anyone?

Anyone tried mesenchymal stem cells therapy for lupus?

Tanitani

•3 years ago

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Mycophenolate increase

Hi everyone, My rheumatologist has asked me to increase my Mycophenolate from 2 tablets a day to 3 tablets daily (500mg each). I’m not sure if I should add the...

Hi everyone, My rheumatologist has asked me to increase my Mycophenolate from 2 ...

LilyMistri2

•3 years ago

6 Replies

Mycophenalate Mofetil 500mg

Can anyone tell me how they got on with this drug. Thank you.

molly19

•3 years ago

23 Replies

Struggling

Hi everyone, I have been going to write for a few weeks but keep putting it off. I’m really struggling mentally at the moment. Managed to push it away again...

Hi everyone, I have been going to write for a few weeks but keep putting it off....

Greentomatoes

•3 years ago

50 Replies

Rheumy update for all that wanted one

Hey guys! Just an update on my second face to face today. This is a long one.. so apologies for the long read... but I have finally left an appointment...

Hey guys! Just an update on my second face to face today. This is a long one.. ...

BabyOleg

•3 years ago

9 Replies

Friday flowers for friends

Full of bees making honey

Hidden

•3 years ago

15 Replies

Easing restrictions puts vulnerable at risk - BBC news

Hi all. Interesting article on BBC news website this lunchtime. Appreciate it refers to Scotland but thought I’d post if anyone wants to have a wee look....

Hi all. Interesting article on BBC news website this lunchtime. Appreciate it ...

Froggie70

•3 years ago

11 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2021

Which vitamins and probiotics are best?

Another sign to make you smile.

Pre-op update

Just a question

JUst wantwd to say!

The 19th July

Blood Test Results

😂😂😂🥰

Petition for mandatory face masks

Are these bloodwork results indicative of MCTD?

My ana is negative, but dsdna is positive, what does this mean?

Help and Opinions on Prolia for Osteoporosis

Study on fibromyalgia

Dew drop lupins

Gutted 😞

rogue antibodies

Rash back of upper arm

Covid kid update, partially long rant

Fresh in the cyber freezer for you all to enjoy!

What to expect

Cutie in a different place.

English rose

Care and support

mesenchymal stem cells anyone?

Mycophenolate increase

Mycophenalate Mofetil 500mg

Struggling

Rheumy update for all that wanted one

Friday flowers for friends

Easing restrictions puts vulnerable at risk - BBC news

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