Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,137 members • 28,470 posts

All posts for July 2021

A Liquid Lunch?

We were in Pitlochry last week and whilst looking for somewhere to have lunch this sign caught my eye. Because of our medications sadly neither of us could...

We were in Pitlochry last week and whilst looking for somewhere to have lunch th...

Spotty-ewe

•3 years ago

95 Replies

Waking headaches

Good morning super forum people 🌸. Random one for a Friday but I know you won’t mind me asking 😉. Can normal weight people get sleep apnea? I’ve had a...

Good morning super forum people 🌸. Random one for a Friday but I know you won’...

Tiggywoos

•3 years ago

23 Replies

Has anyone with Lupus been prescribed Isotretinoin/Accutane for acne?

Hi all, Need some advice - After many appointments with my dermatologist to deal with my moderate acne, and trying other options, i’ve been given isotretinoin...

Hi all, Need some advice - After many appointments with my dermatologist to deal...

lupeylady

•3 years ago

6 Replies

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Spinal stenosis micro decompression surgery

Hi, I had the above operation due to spinal stenosis and a bulging disc last Monday 28 th June, I’m improving every day, light touch wood at the end of a long...

Hi, I had the above operation due to spinal stenosis and a bulging disc last Mo...

Jhpc

•3 years ago

6 Replies

Pfizer Side Effects

Hi everyone! I’m in the early stages of being diagnosed with Lupus (I am almost 23 years of age with symptoms for years). I got my Pfizer second dose on...

Hi everyone! I’m in the early stages of being diagnosed with Lupus (I am almost...

ClodaghK

•3 years ago

17 Replies

Sjogrens Syndrome

Hi Everyone I wondered if anyone can recommend someone who specialises in Sjogrens Syndrome in the South of England please.

Hi Everyone I wondered if anyone can recommend someone who specialises in Sjogre...

Tregarron

•3 years ago

4 Replies

Me and Methotrexate

Hi all, So my liver went up again a month ago because of the methotrexate. My result was 117! I was told a result of 26 in considered high so mine was off the...

Hi all, So my liver went up again a month ago because of the methotrexate. My re...

LouLamb

•3 years ago

7 Replies

If you want to do a poll about the lifting of restrictions - have a look at this

https://healthunlocked.com/vasculitis-uk/polls/146446957/how-are-you-feeling-about-the-proposed-lifting-of-covid19-restrictions-on-19th-july-let-us-know-if-your

https://healthunlocked.com/vasculitis-uk/polls/146446957/how-are-you-feeling-abo...

PMRpro

•3 years ago

1 Reply

Crohn's or lupus?

Hello -- I'm wondering if anyone has a similar experience to me? I've had symptoms of real joint pain, severe intestinal pain & fatigue for about ten years or...

Hello -- I'm wondering if anyone has a similar experience to me? I've had sympto...

MattLuus1973

•3 years ago

11 Replies

Survey collecting anonymous stories of patients with rheumatic diseases like lupus who have also had one or more pregnancies

The Reproduction, Pregnancy and Rheumatic diseases Working Group is collecting the experiences of clinicians and patients that are living with rare and complex...

The Reproduction, Pregnancy and Rheumatic diseases Working Group is collecting t...

Chanpreet_Walia

LUPUS UK•3 years ago

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Rib pain or lung pain?

Hi everyone! Going through some sort of flare up..my facial rash has come back..its so itchy as well and skin is going dry and flaky..this has made me...

Hi everyone! Going through some sort of flare up..my facial rash has come back.....

lufibabe

•3 years ago

17 Replies

First ever PIP interview next week

First ever PIP interview next week! I had a letter in the post yesterday saying I have telephone interview next Thursday. I’m scared stiff! I know I will get...

First ever PIP interview next week! I had a letter in the post yesterday saying ...

Bowenlady

•3 years ago

30 Replies

Positive vibes with less pain

Taking a different road today and going down the positive vibe road. Waited a week to make sure I wasn’t premature in my happiness. Went last Wednesday for...

Taking a different road today and going down the positive vibe road. Waited a ...

Jmiller623

•3 years ago

43 Replies

Feeling helpless without a firm diagnosis

Hi All, I'm posting in the hope that someone can tell me that a) I'm not going mad/losing the plot and b) hopefully I can relate to others who have similar...

Hi All, I'm posting in the hope that someone can tell me that a) I'm not going m...

Cornwall91

•3 years ago

14 Replies

impact of hydroxychloroquine on response to covid vaccine

I was slightly concerned to read this , but not sure how concerned I should be... "Chloroquine inhibits antibody responses to vaccines"...

I was slightly concerned to read this , but not sure how concerned I should be.....

flo_IarFachYrHaf

•3 years ago

25 Replies

Raised CRP and symptoms

Hi guys, hoping for a bit of advice and support. Ive been having loads of symptoms since December 2020 and originally it was GI issues fullness, lump in throat...

Hi guys, hoping for a bit of advice and support. Ive been having loads of sympto...

Natalie1982

•3 years ago

1 Reply

Sunlight and flare

Hi Thank you to everyone who contributes to the forum, as l have recently been diagnosed l am finding it really helpful. l am trying to get to grips with the...

Hi Thank you to everyone who contributes to the forum, as l have recently been d...

Cowsaresweet

•3 years ago

9 Replies

Cardiovascular disease diagnosis.

Hi all it's been a while! Just had my test results from mri and it's not good :( I've now been diagnosed with cardiovascular disease and also damage to my...

Hi all it's been a while! Just had my test results from mri and it's not good :(...

Debsssss

•3 years ago

6 Replies

Anyone got experience of rosacea versus lupus?

Hi, since 2018, after taking a brief course of steroids, I have suffered with a facial rash. Initially I had it round my eyes (under brow, and under eye) down...

Hi, since 2018, after taking a brief course of steroids, I have suffered with a ...

Chancery

•3 years ago

24 Replies

Singing for Good Health in Greenwich: 16 weeks of FREE Singing For Pain Management sessions

Trinity Laban Conservatoire of Music and Dance and Lewisham and Greenwich NHS Trust are offering people with chronic pain in Greenwich the opportunity to...

Trinity Laban Conservatoire of Music and Dance and Lewisham and Greenwich NHS Tr...

Chanpreet_Walia

LUPUS UK•3 years ago

1 Reply

Why doesn’t anyone listen

Hi I’ve been taking prednisone and hydroxachlorine for 3 years I’m in pain all the time with swollen hands feet that are up and down , the pain is in my neck...

Hi I’ve been taking prednisone and hydroxachlorine for 3 years I’m in pain all ...

Unpacked

•3 years ago

6 Replies

Pregnancy & hydroxychloroquine

I have had a successful pregnancy previously and was advised to stay on 400mg of hydroxychloroquine throughout. Although safe for baby I have read since that...

I have had a successful pregnancy previously and was advised to stay on 400mg of...

87654321H

•3 years ago

3 Replies

retinopathy risk from hydroxychloroquine

I’ve been on 400mg of hydroxychloroquine for 12 years continuously. I’ve only been told recently that I’m actually over the recommended dose based on weight....

I’ve been on 400mg of hydroxychloroquine for 12 years continuously. I’ve only be...

87654321H

•3 years ago

11 Replies

Is this a Malar Rash

Hi, I was wondering if this picture displays a malar rash. I had a biopsy on a facial rash 25 years ago, was diagnosed with SCLE but on my records, malar rash...

Hi, I was wondering if this picture displays a malar rash. I had a biopsy on a ...

barrypalmerbkp

•3 years ago

4 Replies

Lignocaine infusions for erythromelalgia

Hello, Community. I have Lupus, severe Raynaud's and a long history of secondary erythromelalgia of my feet. It has got steadily worse over the last few years...

Hello, Community. I have Lupus, severe Raynaud's and a long history of secondary...

skylark15

•3 years ago

6 Replies

Serious head pain for a week

Last Monday suddenly had shocking red hot pain above right eye- thought I was having a stroke but obviously not after a few minutes where the pain carried on...

Last Monday suddenly had shocking red hot pain above right eye- thought I was ha...

Cas70

•3 years ago

16 Replies

Cutie Cubs

Hello everyone Just thought id post a pic of these cutie leopard cubs. Don't often see them, these are 6 weeks old and are at a Zoo in Germany. I hope you...

Hello everyone Just thought id post a pic of these cutie leopard cubs. Don't oft...

misty14

•3 years ago

23 Replies

Malar Rash on Medical Records

Hi, I have been diagnosed with subacute cutaneous lupus. I was wondering if a facial rash/malar rash would be coded on my medical records after having a biopsy...

Hi, I have been diagnosed with subacute cutaneous lupus. I was wondering if a fa...

barrypalmerbkp

•3 years ago

1 Reply

Red cheeks

I suffer from very high colour in my cheeks. The skin is fairly smooth, but the colour makes me look hot and bothered all of the time. Can anyone recommend a...

I suffer from very high colour in my cheeks. The skin is fairly smooth, but the ...

heatherose

•3 years ago

15 Replies

Fibrosis / ILD caused by Lupus

My wife and I visited the respiratory consultant on Wednesday. We were told that the CT scan of her lungs taken in 2018 showed a significant problem. The...

My wife and I visited the respiratory consultant on Wednesday. We were told tha...

jimbo1605

•3 years ago

10 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2021

A Liquid Lunch?

Waking headaches

Has anyone with Lupus been prescribed Isotretinoin/Accutane for acne?

Spinal stenosis micro decompression surgery

Pfizer Side Effects

Sjogrens Syndrome

Me and Methotrexate

If you want to do a poll about the lifting of restrictions - have a look at this

Crohn's or lupus?

Survey collecting anonymous stories of patients with rheumatic diseases like lupus who have also had one or more pregnancies

Rib pain or lung pain?

First ever PIP interview next week

Positive vibes with less pain

Feeling helpless without a firm diagnosis

impact of hydroxychloroquine on response to covid vaccine

Raised CRP and symptoms

Sunlight and flare

Cardiovascular disease diagnosis.

Anyone got experience of rosacea versus lupus?

Singing for Good Health in Greenwich: 16 weeks of FREE Singing For Pain Management sessions

Why doesn’t anyone listen

Pregnancy & hydroxychloroquine

retinopathy risk from hydroxychloroquine

Is this a Malar Rash

Lignocaine infusions for erythromelalgia

Serious head pain for a week

Cutie Cubs

Malar Rash on Medical Records

Red cheeks

Fibrosis / ILD caused by Lupus

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