Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,137 members • 28,470 posts

All posts for July 2021

Could someone explain please? - Genuine question

Hi all I know that there are lovely people on this site that have a medical background and wondering if they could explain something for me. Just watching...

Hi all I know that there are lovely people on this site that have a medical back...

Froggie70

•3 years ago

49 Replies

Electric bike -lupus friendly exercise

4 months ago my husband purchased an electric bike through the Govt Cycle To Work scheme, which I have been using for my own exercise and it has been just...

4 months ago my husband purchased an electric bike through the Govt Cycle To Wor...

PrincessPearl

•3 years ago

8 Replies

Strange Spiral (poss discoid) rash?

Hi All, I’m currently in the process of getting a diagnosis for whatever is wrong with me. I suffer with a large, broad range of symptoms, which I believe may...

Hi All, I’m currently in the process of getting a diagnosis for whatever is wron...

M0lly

•3 years ago

7 Replies

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Irritable leg syndrome

I’ll dive straight in .,, Last night was the pits for me with the above .. I’ve been advised by neurologist to take extra pregabalin ? With my balance issues...

I’ll dive straight in .,, Last night was the pits for me with the above .. I’v...

Willow1414

•3 years ago

39 Replies

Going for a massage on Tuesday

Before all the lupus/APS/nephritis fiasco in December, I used to go for a massage every two weeks for my back. In December, I was admitted into the hospital...

Before all the lupus/APS/nephritis fiasco in December, I used to go for a massag...

Willow7733

•3 years ago

1 Reply

PROBLEMS GETTING TO SEE MEDICAL EXPERTS; COPING WITH SIDE EFFECTS; AND HYDROXYCHLORAQUINE

Hi Frazzle You poor old thing!!! You've really been through the wringer, haven't you? Well you're in good company, I'm afraid - most of us here have similar...

Hi Frazzle You poor old thing!!! You've really been through the wringer, haven't...

SLEEPINGDOG

•3 years ago

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Alpacas 🦙🦙🦙

Hi Folks I took my sister for her 50th Birthday treat yesterday, along with my mum to walk with the Alpacas - what a fabulous day out we had, we walked the boy...

Hi Folks I took my sister for her 50th Birthday treat yesterday, along with my m...

svfarmer

•3 years ago

18 Replies

Interesting read

https://www.rheumatologynetwork.com/view/autoimmune-rheumatic-disease-does-not-influence-immune-response-against-covid-19 This has popped up on my Twitter...

https://www.rheumatologynetwork.com/view/autoimmune-rheumatic-disease-does-not-i...

Susieliz39

•3 years ago

2 Replies

Super cutie pic

Hello everyone I just had to share this super cutie bunny pictured in Richmond Park. I think he is adorable and hope you do too. Do hope your all coping in...

Hello everyone I just had to share this super cutie bunny pictured in Richmond P...

misty14

•3 years ago

40 Replies

Research re: mTrauma/PTSD that agrees with my mindset right now

Well, fine folks, this may have been posted before, idk. It could stand repeating. https://maija-haavisto.medium.com/medical-trauma-6fa90c6ecab0 And...

Well, fine folks, this may have been posted before, idk. It could stand repeatin...

DRunnerchick

•3 years ago

16 Replies

What are pharmacists responsibilities?

If I had the energy I would be furious, but as it is I feel exhausted. I react badly to Quinoric Hydroxy, I have told the doctor and the pharmacist, there is a...

If I had the energy I would be furious, but as it is I feel exhausted. I react b...

kt11

•3 years ago

8 Replies

Hair loss and breakage

Would love to hear from ppl if they got success over hair breakage and hair loss that goes with lupus .And any tips on what helps ?Mines has been going on...

Would love to hear from ppl if they got success over hair breakage and hair loss...

suitcase1

•3 years ago

18 Replies

Quack quack

Seven ducklings mum sunning in the garden yesterday, they stayed for three hours then waddled off. So funny to watch.

Seven ducklings mum sunning in the garden yesterday, they stayed for three hours...

Hidden

•3 years ago

10 Replies

Help! Extremely painful,burning, itchy blisters

Hi everyone hope you are all keeping well. Does anyone have an idea what this could be on my foot it's very painful burning tingly and itchy. Doctors not sure...

Hi everyone hope you are all keeping well. Does anyone have an idea what this co...

26dre

•3 years ago

25 Replies

Update Re: Unprovoked DVT - Possible APS

As some of you had advised, I got in touch with my doctor about the awful headache I had since starting on Apixaban and that it went away when stood up … and...

As some of you had advised, I got in touch with my doctor about the awful headac...

Zara-LouiseD

•3 years ago

6 Replies

Advice covid vac steroid injection

Hi all not had my covid vac yet as in flare now have to go have steroid injection any advice anyone had covid vac after steroid injection and how long did you...

Hi all not had my covid vac yet as in flare now have to go have steroid injectio...

Ruby3333

•3 years ago

7 Replies

Off topic - Social distancing what is that?

Hi all, hope everyone is doing ok. Hope you don’t mind but can I have a rant? Today is big shop day and so far it’s been going swimmingly, have put a note...

Hi all, hope everyone is doing ok. Hope you don’t mind but can I have a rant? ...

Froggie70

•3 years ago

13 Replies

Brain Fog is a serious enemy of mind please bear with me!

I just thought I’d have this on my page as ive been just awful with replying in general - but particularly on this forum! For that I apologise to anyone who...

I just thought I’d have this on my page as ive been just awful with replying in ...

Sandy1212

•3 years ago

33 Replies

Stay safe in these high heat temps in the US.

To all US members. I hope you all take extra care in the continued heat. I am in New England and have not had the relentless temps the west coast has endured...

To all US members. I hope you all take extra care in the continued heat. I am in...

Roarah

•3 years ago

10 Replies

Bone Densitometry DXA Scan

HI All, I have my first DXA scan next week, I've been diagnosed with Lupus for about 10 years but only had my first flare in Oct 2019 thats when I started on...

HI All, I have my first DXA scan next week, I've been diagnosed with Lupus for a...

Teanau22

•3 years ago

4 Replies

Kidney biopsy

I was wondering if anyone has gone through a kidney biopsy? Just wondering what to expect. Do you have to take time off work? I only have a few sick days left...

I was wondering if anyone has gone through a kidney biopsy? Just wondering what ...

Willow7733

•3 years ago

9 Replies

An interesting sign

This was in Rhos on Sea today. The last 16 months has caused so many mental health issues. Lots of folk need a “Hi”, even a socially distanced one. Sincerely...

This was in Rhos on Sea today. The last 16 months has caused so many mental heal...

Kevin53

•3 years ago

9 Replies

Dermatology

Hey guys, can anyone tell me what to expect at my first dermatology appointment. I’m super worried there going to make me have a skin patch test with them...

Hey guys, can anyone tell me what to expect at my first dermatology appointment....

BabyOleg

•3 years ago

37 Replies

I’m one happy Lupie 🌸

This picture was taken today with little Mira in the hammock , I’m looking very happy because the consultants secretary told me my biopsy results are normal...

This picture was taken today with little Mira in the hammock , I’m looking very ...

svfarmer

•3 years ago

60 Replies

New HealthUnlocked Community research paper - NOW PUBLISHED

Hi everyone, LUPUS UK is pleased to announce that a new important research paper produced collaboratively with this online community has now been published!...

Hi everyone, LUPUS UK is pleased to announce that a new important research paper...

Chanpreet_Walia

LUPUS UK•3 years ago

3 Replies

Just been told what I have is lupus and maybe more autoimmune things

HI Can I just start by saying They thought I had Giant cell arteritis. Was treated with high dose steriods for that felt better .But then coming of them .I...

HI Can I just start by saying They thought I had Giant cell arteritis. Was treat...

suitcase1

•3 years ago

26 Replies

Unprovoked DVT - possible APS

Hi Everyone I was diagnosed on Tuesday with a thrombus in a vein somewhere below my collar bone which is causing my external jugular vein to distend....

Hi Everyone I was diagnosed on Tuesday with a thrombus in a vein somewhere belo...

Zara-LouiseD

•3 years ago

21 Replies

Unprovoked DVT - possible APS

Hi Everyone I was diagnosed on Tuesday with a thrombus in a vein somewhere below my collar bone which is causing my external jugular vein to distend....

Hi Everyone I was diagnosed on Tuesday with a thrombus in a vein somewhere belo...

Zara-LouiseD

•3 years ago

1 Reply

Unprovoked DVT - possible APS

Hi Everyone I was diagnosed yesterday with a thrombus in a vein somewhere below my collar bone which is causing my external jugular vein to distend....

Hi Everyone I was diagnosed yesterday with a thrombus in a vein somewhere below...

Zara-LouiseD

•3 years ago

Be the first to reply

Another update

Thankyou so much everyone for all your kind wishes, well was waiting all day yesterday for consultant to ring with biopsy results and guess what he didn’t ring...

Thankyou so much everyone for all your kind wishes, well was waiting all day yes...

svfarmer

•3 years ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2021

Could someone explain please? - Genuine question

Electric bike -lupus friendly exercise

Strange Spiral (poss discoid) rash?

Irritable leg syndrome

Going for a massage on Tuesday

PROBLEMS GETTING TO SEE MEDICAL EXPERTS; COPING WITH SIDE EFFECTS; AND HYDROXYCHLORAQUINE

Alpacas 🦙🦙🦙

Interesting read

Super cutie pic

Research re: mTrauma/PTSD that agrees with my mindset right now

What are pharmacists responsibilities?

Hair loss and breakage

Quack quack

Help! Extremely painful,burning, itchy blisters

Update Re: Unprovoked DVT - Possible APS

Advice covid vac steroid injection

Off topic - Social distancing what is that?

Brain Fog is a serious enemy of mind please bear with me!

Stay safe in these high heat temps in the US.

Bone Densitometry DXA Scan

Kidney biopsy

An interesting sign

Dermatology

I’m one happy Lupie 🌸

New HealthUnlocked Community research paper - NOW PUBLISHED

Just been told what I have is lupus and maybe more autoimmune things

Unprovoked DVT - possible APS

Unprovoked DVT - possible APS

Unprovoked DVT - possible APS

Another update

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