Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,072 members • 28,394 posts

All posts for March 2021

Aged 16-26? Living with juvenile-onset lupus? Take part in the WORD day awareness campaign on Thurs, 18th March!

Who's on TikTok?! Next week Thursday, 18th March, is World Young Rheumatic Diseases Day - WORD Day! If you are 16-26 years old, living with juvenile-onset...

Who's on TikTok?! Next week Thursday, 18th March, is World Young Rheumatic Dis...

Chanpreet_Walia

LUPUS UK•3 years ago

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Water retention

Hi, I gained weight very rapidly, my hands , legs harms , abdomen they’re feeling bloated, I’ve been taking prednisone low doses and I’m not taking it atm , my...

Hi, I gained weight very rapidly, my hands , legs harms , abdomen they’re feelin...

Melaxx

•3 years ago

5 Replies

Quinoric anyone ?

Hello everyone I take Hydroxychloroquine for Sjogrens / MCT disorder. This month my Chemist has sent me Quinoric instead of my usual brand. Has anyone been...

Hello everyone I take Hydroxychloroquine for Sjogrens / MCT disorder. This month...

bones-bones

•3 years ago

22 Replies

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Does anyone take Celebrex ?

Hi Everyone , Does anybody else take Celebrex? I am on hydroxychloroquine Azathiropine, to mention just a few for the Lupus and Sjogren's. I now have...

Hi Everyone , Does anybody else take Celebrex? I am on hydroxychloroquine Azathi...

Mrsdoozer

•3 years ago

2 Replies

Skin biopsy done 😷✔️.

Not a Punch biopsy this time, instead they took a slice that included a spot and surrounding area of flesh and now have 5 stitches and dressings it's feeling...

Not a Punch biopsy this time, instead they took a slice that included a spot and...

Boudica1

•3 years ago

4 Replies

Query about vaccine for people with lupus

Hi what vaccine are people with lupus getting

Liz2468

•3 years ago

13 Replies

Does anyone know what this might be?

Afternoon everyone, I’ve got a painful sore on my finger which I thought was a splinter on initial pain but then it doesn’t really look like it now. I suffer...

Afternoon everyone, I’ve got a painful sore on my finger which I thought was a ...

Leenie0811

•3 years ago

1 Reply

Oxford Zenica Vaccine Question

I know I’ve read it somewhere foggy brain sorry! but how do you know which vaccine you’re meant to have? I’ve just had a text this morning inviting me to book...

I know I’ve read it somewhere foggy brain sorry! but how do you know which vacc...

BeeHoneyB

•3 years ago

19 Replies

Participate in an online study about how pain-related beliefs affect expectations

The following information has been provided from The University of Liverpool, who will be carrying out the study: About the study: We are...

The following information has been provided from The University of Liverpool, wh...

Chanpreet_Walia

LUPUS UK•3 years ago

8 Replies

International Women's Day

Happy International Women's Day everyone. Not all of us here are women - there are a few unfortunate men who suffer from what is overwhelmingly a women's...

Happy International Women's Day everyone. Not all of us here are women - there ...

WinterSwimmer

•3 years ago

5 Replies

Female Lychen Sclerosis help 🤷‍♀️

Just wondering if any ladies suffer from Lychen Sclerosis and how they cope on a day to day basis . Also have you had it for many years, with any scarring....

Just wondering if any ladies suffer from Lychen Sclerosis and how they cope on ...

NannieB8

•3 years ago

2 Replies

Oxford vaccination

So I had the Oxford vaccination and during the day I got really achy and just couldn’t move properly and a headache as well as a bit tempy, but then my Bpm...

So I had the Oxford vaccination and during the day I got really achy and just co...

Rufioxox

•3 years ago

6 Replies

Post vaccine issues

Has anyone had lots of lupus symptoms si ce havi g the Oxford vaccine..? I seem to lurching from very sore legs, hips, wrists, aches ect and Digestive upset......

Has anyone had lots of lupus symptoms si ce havi g the Oxford vaccine..? I seem ...

Luppykate

•3 years ago

11 Replies

Checklist

I looking for an Microsoft Excel spreadsheet to compare different auto immune diseases. Has anyone got one I could have please

I looking for an Microsoft Excel spreadsheet to compare different auto immune di...

LesJames

•3 years ago

8 Replies

Scary Morning! (Pericarditis)

Hi all, Hope everyone is doing well. I had a bumpy start to the day after being woken by a ball of pain in my chest at 5.30am. I decided to get up and move to...

Hi all, Hope everyone is doing well. I had a bumpy start to the day after being...

Londonlupie

•3 years ago

15 Replies

From Monday 8 March, the Women's Health Strategy will spend 12 weeks speaking to female patients about a wide range of issues...BBC article

*Less is also said to be known about many female-specific conditions and how to treat them.* https://www.bbc.co.uk/news/health-56300404...

*Less is also said to be known about many female-specific conditions and how to ...

eekt

•3 years ago

54 Replies

Steroids Side effect - CUSHING !!

Does anyone else suffer from stretch marks/fatpad/biggertummy? So I had these striae around my thighs for several months and it was getting worrisome so I...

Does anyone else suffer from stretch marks/fatpad/biggertummy? So I had these s...

Iamnotmydiagnosis

•3 years ago

13 Replies

Refused scan

I had a ultrasound done about a couple of years ago , after begging rheumatologist about my painful weak wrists , finally this was done plus X-ray of hands ....

I had a ultrasound done about a couple of years ago , after begging rheumatologi...

Willow1414

•3 years ago

11 Replies

Brain Fogg

Oops I did it again!! Had bloods booked @ local hospital about 35 minutes drive away. I congratuled myself on arriving in plenty of time, but when it was my...

Oops I did it again!! Had bloods booked @ local hospital about 35 minutes drive ...

daisydayz

•3 years ago

24 Replies

LISTEN Study Participants - Please complete your latest questionnaire!

Hi everyone, If you signed up to the LISTEN study being run by MelanieSloan, please complete the latest study questionnaire. It should have arrived in your...

Hi everyone, If you signed up to the LISTEN study being run by MelanieSloan, ple...

Paul_Howard

Partner•3 years ago

12 Replies

Has anyone with SLE been told they're not in priority group 6 for the vaccine?

Hi everyone, I'm new here so hello! I have SLE (diagnosed 20+ years ago) and I take hydroxychloroquine daily. My GP told me this week that I'm not in...

Hi everyone, I'm new here so hello! I have SLE (diagnosed 20+ years ago) and I ...

Fuzzball04

•3 years ago

28 Replies

Swollen Knee and Bruising/Sensation

Hi everyone, I have APS and Lupus SLE (taking warfarin and hydroxychloroquine). I have posted about this before as I was worried it was a clot. It wasn’t a...

Hi everyone, I have APS and Lupus SLE (taking warfarin and hydroxychloroquine). ...

Bobbydoodle

•3 years ago

2 Replies

Radio interview on lupus, the diagnostic difficulties and challenges of the pandemic - listen to Coco and Dr Chris!

Hello, I hope everyone is as well as possible. The media has been very interested in our recent research on how care for lupus patients has been affected by...

Hello, I hope everyone is as well as possible. The media has been very interest...

MelanieSloan

•3 years ago

33 Replies

Group 6 and Vaccine

As promised I'm updating on the vaccine situation. I had my vaccine this morning - it's the Astrazeneca one. My GP made it known they were doing Group 6 a week...

As promised I'm updating on the vaccine situation. I had my vaccine this morning...

Insomniacette

•3 years ago

23 Replies

Pfizer vaccine and 16 year old daughter

Hi, I am new here. I have a 16 year old (going on 17) who was diagnosed with SLE just before the beginning of the 1st Lockdown. We are now at stage where we...

Hi, I am new here. I have a 16 year old (going on 17) who was diagnosed with SLE...

mary2468

•3 years ago

3 Replies

Tinnitus and Pulsatile Tinnitus

Hi everyone, I hope you're all keeping well in lockdown and the end of winter! I'm just posting this out there to see who can relate. I get pulsatile tinnitus...

Hi everyone, I hope you're all keeping well in lockdown and the end of winter! ...

Londonlupie

•3 years ago

30 Replies

Vaccine side effects. Sharing Coping Strategies?

There are quite a few people here now reporting vaccine side effects (and some that have gone on longer than 48/hours or a week). It occurs to me that it...

There are quite a few people here now reporting vaccine side effects (and some t...

WinterSwimmer

•3 years ago

1 Reply

Is there anything that can be done...

For hair that is falling out quite a bit? I am worried at the amount I am losing.

For hair that is falling out quite a bit? I am worried at the amount I am losing...

Willow7733

•3 years ago

10 Replies

Unbearable shoulder pain

Hi I’ve been diagnosed with lupus/RA for over 6 years now, I usually have a steroid injection in my shoulders every 6 months, I’m overdue at the minute and the...

Hi I’ve been diagnosed with lupus/RA for over 6 years now, I usually have a ster...

Ckonly

•3 years ago

15 Replies

Endoscopy and colonoscopy done...

When I was admitted to the hospital for multiple blood clots this December, my hemoglobin was very low. They later diagnosed me with lupus. But still, the...

When I was admitted to the hospital for multiple blood clots this December, my h...

Willow7733

•3 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2021

Aged 16-26? Living with juvenile-onset lupus? Take part in the WORD day awareness campaign on Thurs, 18th March!

Water retention

Quinoric anyone ?

Does anyone take Celebrex ?

Skin biopsy done 😷✔️.

Query about vaccine for people with lupus

Does anyone know what this might be?

Oxford Zenica Vaccine Question

Participate in an online study about how pain-related beliefs affect expectations

International Women's Day

Female Lychen Sclerosis help 🤷‍♀️

Oxford vaccination

Post vaccine issues

Checklist

Scary Morning! (Pericarditis)

From Monday 8 March, the Women's Health Strategy will spend 12 weeks speaking to female patients about a wide range of issues...BBC article

Steroids Side effect - CUSHING !!

Refused scan

Brain Fogg

LISTEN Study Participants - Please complete your latest questionnaire!

Has anyone with SLE been told they're not in priority group 6 for the vaccine?

Swollen Knee and Bruising/Sensation

Radio interview on lupus, the diagnostic difficulties and challenges of the pandemic - listen to Coco and Dr Chris!

Group 6 and Vaccine

Pfizer vaccine and 16 year old daughter

Tinnitus and Pulsatile Tinnitus

Vaccine side effects. Sharing Coping Strategies?

Is there anything that can be done...

Unbearable shoulder pain

Endoscopy and colonoscopy done...

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