Female Lychen Sclerosis help 🤷‍♀️

[NannieB8]

Just wondering if any ladies suffer from Lychen Sclerosis and how they cope on a day to day basis .

Also have you had it for many years, with any scarring.

Please can you reply privately, due to the horrible symptoms and embarrassment that goes with this horrid autoimmune disorder.

Thank you 🐝

[Blondiejayjay]

Yes

[EOLHPC]

Yes, nannie: I’m very sad your case is severe..my mother’s lichen sclerosus was too, but her experience helped me & my youngest sister catch ours early. I very much hope your doctors are helping you and that your LS damps down to less severity before long.

Of course this too is an incurable autoimmune condition. Several years ago, Scleroderma & Raynauds U.K. support group asked me to write a piece about my LS (inc what treatments work for me) for their newsletter, which I eventually discovered is summarised on their website along with the SRUK’s own LS info...so here is the link in case you or others here can find something useful in it:

sruk.co.uk/conditions/liche...

I joined an online LS forum when I was first diagnosed, which helped me a lot. There is a good NHS approved U.K. community that supports patients with LS, here is the link ( but maybe you know this group already):

patient.info/forums/discuss...

I’ll also send you a private message, but hope it’s ok to have offered up the above info incase someone in need reads your post..

🍀❤️🍀❤️ Coco