Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,854 members • 28,194 posts

All posts for March 2021

Does gluten have an effect on your Lupus flare up ?

Ive been gluten intolerant for about 8 years now and in this last week and on the weekend I was exposed to gluten. I had the most horrendous migraine last...

Ive been gluten intolerant for about 8 years now and in this last week and on th...

Penelope-Pipin

•3 years ago

11 Replies

Ok to be angry.

This may sound banal but often the simple words do. Get through this day, tomorrow is a different day, get through tomorrow and each day is one you won’t have...

This may sound banal but often the simple words do. Get through this day, tomorr...

Hidden

•3 years ago

3 Replies

I was looking for answers...

I am trying to see if the diagnosis of lupus was wrong for me ( would really like to switch from Warfarin to Xeralto), and thought my negative Anti -DNA blood...

I am trying to see if the diagnosis of lupus was wrong for me ( would really lik...

Willow7733

•3 years ago

2 Replies

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Back scabs/sores/lesions

Hi folks, Weird question here... does anyone with lupus or sjogrens get like crusty sores or scabs on their back? So I've had them for years - ever since...

Hi folks, Weird question here... does anyone with lupus or sjogrens get like cru...

Insomniacette

•3 years ago

9 Replies

What do these mean?

Keep getting yellow bruising on arms and legs and my doctors just keep telling me it’s from me hurting myself without noticing but it’s not, any ideas?

Keep getting yellow bruising on arms and legs and my doctors just keep telling m...

Cuppy25

•3 years ago

12 Replies

has anybody here with SLE managed to obtain private health insurance and if so could you advise which company.

looking to move from uk to Spain/portugal and require private health insurance to get a visa

looking to move from uk to Spain/portugal and require private health insurance t...

sandtg

•3 years ago

1 Reply

Cutie pics is back.

Hello everyone Sorry i had to take a break but now feeling better i thought id post again with these two cuties. They're twin pygmy goats born on a Devon Farm....

Hello everyone Sorry i had to take a break but now feeling better i thought id p...

misty14

•3 years ago

37 Replies

Death of a family member

I don’t really know where to go or where to share this but I am heartbroken right now and I can’t sleep. I know this group will understand. I have a strong...

I don’t really know where to go or where to share this but I am heartbroken righ...

Jmiller623

•3 years ago

23 Replies

For every kind of Mother

Happy Mother’s Day to everybody here whether a Mum to children, a Mum to fur, feather, or scaly babies, a Mum to wildlife you feed and nurture, a Mum to...

Happy Mother’s Day to everybody here whether a Mum to children, a Mum to fur, f...

Spotty-ewe

•3 years ago

31 Replies

Nice to meet you all. Any tips or tricks to deal with this lovely, lovely butterfly disease that I need to know?

Hi. Can't believe it took me this long to find this site. I was diagnosed back in 2016 at 25 with severe Lupus SLE, and I'm studying here in the UK, hoping to...

Hi. Can't believe it took me this long to find this site. I was diagnosed back i...

Raeia

•3 years ago

9 Replies

Baking with Biscoff and sudden onset of stiffness.

Hello everyone, it was my daughter’s 18th birthday yesterday and at her request, I baked a dark chocolate sponge with a filling of Biscoff spread and...

Hello everyone, it was my daughter’s 18th birthday yesterday and at her request,...

Horsewhisper

•3 years ago

34 Replies

You can now book your COVID-19 vaccine

If you live in England and have lupus (or are the main carer for someone with lupus) and you have not yet been invited for your COVID-19 vaccination, you...

If you live in England and have lupus (or are the main carer for someone with lu...

Paul_Howard

Partner•3 years ago

8 Replies

COVID-19 Vaccine

Hi all fellow lupus & coeliac companions, Just thought I would share my experience of coronavirus vaccination I received yesterday. I live in South Wales, and...

Hi all fellow lupus & coeliac companions, Just thought I would share my experien...

Waulahn5

•3 years ago

4 Replies

IgG level question

Quick question, While I’m waiting to hear back from the doc, would this seem at all concerning to you?

Quick question, While I’m waiting to hear back from the doc, would this seem at...

JennaShi

•3 years ago

20 Replies

Steroid injection

Just had steroid injection today , it’s to help calm down this year long flare , recommended /insisted by rheumatology . I have had steroid injections before ,...

Just had steroid injection today , it’s to help calm down this year long flare ,...

Willow1414

•3 years ago

9 Replies

For Stiff

Hi Stiff I’m looking after my sons dog for a few days and thought you would like to see a pic of Hugo as know you have a gorgeous frenchie too - Mira is less...

Hi Stiff I’m looking after my sons dog for a few days and thought you would like...

svfarmer

•3 years ago

17 Replies

Any advice would be so great full

So my daughter has had some bloods taken to get a diagnosis of HUV or lupus they had been looking to see if it may even be EDS syndrome. We have had some more...

So my daughter has had some bloods taken to get a diagnosis of HUV or lupus they...

Sarah-38

•3 years ago

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Tiny Red spots in rash accompanied by swollen eyes and a scratchy sensation

Has anyone experience this ? My rash has progressively gotten worse and a new development seems to be super tiny red dots to the rash now ? Even when I’m not...

Has anyone experience this ? My rash has progressively gotten worse and a new d...

Penelope-Pipin

•3 years ago

30 Replies

?flare up

Hi all. I’m diagnosed with DSL and remain under investigation for SLE (got symptoms of SLE and my bloods continue to come back positive to ANA Anti Ro...

Hi all. I’m diagnosed with DSL and remain under investigation for SLE (got symp...

Angelx01x

•3 years ago

4 Replies

New member

Hey Guys! I'm Fran, I'm 50 years old and currently still being assessed for lupus. (Lockdown has a big hand in this!) I am currently on hydroxychloroquine,...

Hey Guys! I'm Fran, I'm 50 years old and currently still being assessed for lup...

Fran_Mitchell

•3 years ago

12 Replies

A year in and still confused

Back in December 19 a small rash appeared on my lower back over Jan and Feb it spread all over my body except my face. Had several blood tests which showed up...

Back in December 19 a small rash appeared on my lower back over Jan and Feb it s...

Justshiv

•3 years ago

2 Replies

Hydroxychloroquine side effects

I'm now taking Azathioprine but for 9 years I took a fairly high dose of Hydroxychloroquine. No side effects at all except it's caused permanent damage to my...

I'm now taking Azathioprine but for 9 years I took a fairly high dose of Hydroxy...

Hetty56

•3 years ago

13 Replies

Help with results??

Does the attached photo of a letter from my consultant mean Lupus is still possible or now definitely ruled out pls??

Does the attached photo of a letter from my consultant mean Lupus is still possi...

Minimouse1

•3 years ago

13 Replies

PIP Assessments

I hope that this is allowed. We all know the stress and dismay caused by incompetent and frequently dishonest assessments but I read this on the Benefits and...

I hope that this is allowed. We all know the stress and dismay caused by incompe...

CecilyParsley

•3 years ago

9 Replies

Coming apart at the seams just in time ⏱⏳👨🏽‍💻

Hello my partners in crime! It would seem my body has once again performed in it’s perfect 👌🏼 form with impeccable timing ⏱. I think every diagnosis...

Hello my partners in crime! It would seem my body has once again performed in ...

DRunnerchick

•3 years ago

16 Replies

Frustrating

Thought I’d share this with you... My friends daughter who is at college was due to return Monday. She is exempt from wearing a face mask for medical reasons,...

Thought I’d share this with you... My friends daughter who is at college was due...

Mollymaid

•3 years ago

12 Replies

Can’t sleep...

Every night I wake up at 1am and can’t get back to sleep! I am exhausted all the time. So frustrating. Is this a lupus thing or a me thing?? lol

Every night I wake up at 1am and can’t get back to sleep! I am exhausted all the...

Willow7733

•3 years ago

6 Replies

Lupus, Sjogren and Motherhood

So I apologise in advance as this is a hefty topic. When I was first diagnosed at 32 years old I pretty much made the life changing decision that I wasn't...

So I apologise in advance as this is a hefty topic. When I was first diagnosed a...

Insomniacette

•3 years ago

26 Replies

Thank you

Thank you to everyone who posted about vaccine groups. I usual I was blithely believing all was in hand. This certainty was bolstered by the fact that...

Thank you to everyone who posted about vaccine groups. I usual I was blithely b...

Hamptons

•3 years ago

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Vaccine

Hi Paul just to let you know that I got my letter from the nhs to go for my vaccine on the 22 off March so I just wanted to update you on this thank you for...

Hi Paul just to let you know that I got my letter from the nhs to go for my vacc...

Liz2468

•3 years ago

Be the first to reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2021

Does gluten have an effect on your Lupus flare up ?

Ok to be angry.

I was looking for answers...

Back scabs/sores/lesions

What do these mean?

has anybody here with SLE managed to obtain private health insurance and if so could you advise which company.

Cutie pics is back.

Death of a family member

For every kind of Mother

Nice to meet you all. Any tips or tricks to deal with this lovely, lovely butterfly disease that I need to know?

Baking with Biscoff and sudden onset of stiffness.

You can now book your COVID-19 vaccine

COVID-19 Vaccine

IgG level question

Steroid injection

For Stiff

Any advice would be so great full

Tiny Red spots in rash accompanied by swollen eyes and a scratchy sensation

?flare up

New member

A year in and still confused

Hydroxychloroquine side effects

Help with results??

PIP Assessments

Coming apart at the seams just in time ⏱⏳👨🏽‍💻

Frustrating

Can’t sleep...

Lupus, Sjogren and Motherhood

Thank you

Vaccine

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