Had bloods booked @ local hospital about 35 minutes drive away.
I congratuled myself on arriving in plenty of time, but when it was my turn it dawned on me, I had left my blood form at home!!!
I felt so stupid & useless trying to explain this & felt so bad I had wasted her time. She was so lovely & said if I could return in 30 minutes she could still do it- but unfortunately I couldnt🥺
I am getting increasingly worried about these forgetful episodes, should I be?? do others experience this frequenly?
Thank you
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daisydayz
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Yep! Don't worry. Turned up for bloods, right day, right time, wrong place!!! My short term memory is dreadful. It does tend to come and go. On a good day, I achieve a lot of small things because I remember them (and have the energy) but on a fog bound day, I appear to walk around in a daze - the number of times I've set out for a walk with the dog and forgotten her ball is ridiculous!!
Am fighting those deep red mouth sores again!! What a whoo ha! By the way, I have just got my leggings and a couple of T shirts from Solbari. Although, I suspect they will be warmer than Linen or cotten I can imagine that they will be good at their job - so here's to safe summer pup walking in the early morning of course. xx
Hi Daisydayz at least you had the right day and right place. I cannot tell you the number of times I have turned up at the wrong hospital at the wrong day. Even though I check the letter I still cannot seem to compute it in my brain sometimes. Now I get my husband to check my letters the day before and the day of the appointment. Be kind to yourself lovely xxx
It is so hard isn’t it? I remember one of my last trips to the theatre turned into a nightmare. I had bought tickets to The King and I and was so excited. Hubby did not want to go so my carer/ friend took me. I had travelled there so many times but I directed her wrongly and we got caught in traffic. They will not let you in once the performance starts so the panic was overwhelming. Eventually I partly remembered the direction but then took her to a car park a few blocks away rather than the one directly opposite the theatre that I always park in. In the end she ran on ahead as I hobbled as fast as I could. Because we had a box they took pity on us and let us in five minutes after the start of the performance. It took me until half time to calm down. My husband was shocked at what I had done when we returned. It worries me too sometimes when things like that happen. A lot of the time I am ok but then I transpose numbers, get things wrong and forget directions. I hope your next hospital visits goes well lovely xxx
I can imagine how you felt Cecily🧡 ,, I think its a vicious circle of the stress adding to the forgetfulness & the forgetfulness adding to the stress🥴..
& thank you so much for your kind wishes for blood tests take 2!! hopefully there won't be a take 3!
Hi CP. my family have laughed at me for years for having no sense of direction and forgetting how to get to places. I have a friend who says if I can’t go via the bypass I’m lost! Now I’ll just tell them it’s lupus and they should take pity on me!
Oh bless you Barbara. I used to drive all over the place as a Social Worker but no w I struggle to get to places I know well. I just do not understand it. It causes me real stress. Tell your friends you are certainly not alone .
I’m almost afraid to say it but I’m better than I’ve been for years! I have a face to face appointment with the dermatologist on Monday too! And I’m down to 7.5 pred! Onward and upward.
Sorry to read you’re not it a good place now. Really hope things improve for you soon. Cuddles from Scotland. 🥰🤗
Oh that is wonderful news Barbara. I am so pleased for you. I beat you I am down to 5 mg pred. I am just fed up with myself. Another dose of cellulitis and a stye on my eye gggrr. Hopefully both will soon be gone. Big Cwtches from Wales xxx
Is this ‘brain fog’ a Lupus thing? I’m quite young & been diagnosed for around 3 years & I have noticed that I am getting increasingly worse at remembering things. Its gotten so bad its impacting uni & relationships, I thought there was an issue with me so I kept it to myself & its caused a great load of anxiety & depression for which I am now getting therapy for.
Is this something I should speak with my consultant about?
Firstly, I am so sorry that you have been diagnosed with Lupus @ such a young age - my heart goes out to you.🧡 but I am also pleased you have an actual diagnosis which hopefully will explain so many of your symptoms...many of us are in no mans land with diagnosis & I am no exception to this.
This is just my own opinion & I am in no way an expert, in fact I am floundering around trying to understand this brain fog thing myself, but it is real & can't be ignored.
My understanding is that yes it can be an autoimmune thing & I yes I would urge you to speak to your consultant & any loved ones you feel able to share your worries & concerns with.
Please dont suffer in silence & keep this locked inside.. you do not have to be alone in this. It is having a massive impact on your life & needs addressing as soon as possible.
Please take care Kea & I hope my little voice has gone some way to encourage you in the direction you feel you should go🧡
I’m soo grateful for this website as it makes talking about it so much easier.
I noticed a lot of people don’t have diagnosis & its very serious. I was diagnosed at 23 after years of my skin peeling in the sun. It was left so long undiagnosed that I ended up with bloodclots on my lungs, so any new symptoms I find I always have to get medical advice. But the ‘brain fog’ is new to me, will definitely look into this. Thank you x
I’ve done that before now, but fortunately I live 5 minutes away from my local hospital so driving back and returning with the form was ok.
What I’ve started doing now is when I make an blood test appointment over the phone is writing the appointment in my diary and on the calendar and pinning the blood test on the calendar so I can’t miss it. Since using a diary it’s helped a lot with my memory, but you have to be contentious filling it in.
What happens when I forget to make a blood test appointment!!
Thank you Chris_O for the advice, I will take this on board (if I dont forget!🥺) no seriously.. any advice is helpful & I am grateful.👍 My memory seems so much worst when my symptoms flare & I was having a rough few days.🥴
Sorry to hear about your wasted car journey. I do get brain fog so I'll tell u my tip!! Post it notes, calender and a diary!!
I don't have a diary as such..it's my symptom notebook n everything goes in there..my dmard booklet is in the back of that book..so when I have to go for bloods every month I just make sure that I have my pink book n then I know I've got the paperwork to go with it.
I usually prepare my bag the night before especially if it's an early appt..I don't really do mornings!! 😹🌈😽😽Xx
just one place to keep everything sounds good advice to me- may copy this 👍
.. believe it or not I did prepare my bag the night before😲, as yes, it was a fairly early appointment, I but never even gave the blood form a thought, not even one! ( a little scary).. I do worry about this forgetfulness, but it helps to know how others cope with the same.
I also use a copious amount of post it notes, diary & calendar but still forget stuff.🤔
Take care Kat & I hope you are having a reasonably good day🧡
How fortunate that they are able to access your particular blood test forms this way, but unfortunately for me I needed my physical form which had the specific blood tests requested & named consultant requesting them.
No way around it really😏 & hopefully an error on my part I won't repeat.
you are not alone 😩😂 its a real pain and frustrating, mine comes and goes, its ridiculous to head upstairs for a wee, forget what you're there , come back downstairs then have to struggle back up when you remember why you're busting to go 😩😩😂
Only yesterday cleaning out the cooks I kept telling myself ive got to take the camera in (in the coop) and charge it, after telling myself this about 3 times I thought ill take it out and put it by the shed with my phone so I don't forget. later in the evening I went to say goodnight to cooks and there on the shed was the camera😂😂😂 id taken my phone in but still forgot the camera 😂😂
just have to laugh it off and try and try again 🤷♀️
Oh wow how lovely, I can’t believe I missed this reply, or did I , I seem to be having site or internet problems and it’s not long been through so sorry, I always try to answer replies 🙏Glad you managed to get bloods done 👍
I love the names you gave your chooks, adorable ☺️. That’s fantastic you rescued them from such a horrible existence, that’s heartwarming to see them roaming 🙏 mine love spaghetti too 🤣 I totally understand how they hold a special place in your heart ❤️ Thankyou for putting the pic up, it’s lovely to see them and I am actually sitting here needle felting a chicken at the moment 🤣
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