RAIRDA Survey - Please spare a few minutes to com... - LUPUS UK

LUPUS UK

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RAIRDA Survey - Please spare a few minutes to complete it

Paul_Howard profile image
Paul_HowardPartner
20 Replies

Hi everyone,

The Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA) has just launched a new online survey to make sure that the views and experiences of people with rare autoimmune rheumatic diseases (such as lupus) are represented and recognised at the highest levels.

The short, anonymous, survey is for people living in the UK with one of these conditions. It covers a range of questions, from how clear government advice has been to how your normal appointments and care have been impacted.

To complete this survey please go to forms.gle/TUB1kiiqbzNwwYLS9

Filling in this survey will help us raise issues around the impact of COVID-19 on people with these conditions, but we also hope to explore ways care could be improved in the longer-term.

The survey should only take a few minutes to complete, with most questions being multiple choice.

You can find out more about RAIRDA on their website at rairda.org/

20 Replies
Barnclown profile image
Barnclown

THANKS Paul 👍 Have now completed it! ❤️🍀 Coco

Foggyme profile image
Foggyme

Thanks Paul. Done

holayaddios profile image
holayaddios

Form completed. X

Karm profile image
Karm

I have completed also. Hope everyone is staying safe and as well as can be in this unpresidented time we are in. Keep strong everyone.

svfarmer profile image
svfarmer

Thankyou Paul have just submitted it x

Tykle profile image
Tykle

Form completed, thanks.

Horsewhisper profile image
Horsewhisper

Done! 👍

Oshgosh profile image
Oshgosh

Thanks Paul

maggielee profile image
maggielee

Thanks Paul. Completed..ml

CSLO profile image
CSLO

Completed thanks Paul

ExtremeDuvetDaze profile image
ExtremeDuvetDaze

Done ✅

thestorm profile image
thestorm

Sorry, only UK lupus?? Wish I could be part, But nice to know,it is out there for so many good members here. Have a good day. thestormy sunshine

Paul_Howard profile image
Paul_HowardPartner in reply to thestorm

Hi thestorm ,

This particular survey is only for people living in the UK as we will be using the results to inform policymakers in this country.

thestorm profile image
thestorm in reply to Paul_Howard

🤗🤗🤗

Sin123 profile image
Sin123

Done

Spotty-ewe profile image
Spotty-ewe

Thanks Paul, it’s done. 👍🏻👍🏻

Ruby3333 profile image
Ruby3333

Done

CecilyParsley profile image
CecilyParsley

Done thank you Paul

Glad to complete form

panda2 profile image
panda2

✅🔅

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