RAIRDA Survey - Please spare a few minutes to complete it

[Paul_Howard]

Hi everyone,

The Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA) has just launched a new online survey to make sure that the views and experiences of people with rare autoimmune rheumatic diseases (such as lupus) are represented and recognised at the highest levels.

The short, anonymous, survey is for people living in the UK with one of these conditions. It covers a range of questions, from how clear government advice has been to how your normal appointments and care have been impacted.

To complete this survey please go to forms.gle/TUB1kiiqbzNwwYLS9

Filling in this survey will help us raise issues around the impact of COVID-19 on people with these conditions, but we also hope to explore ways care could be improved in the longer-term.

The survey should only take a few minutes to complete, with most questions being multiple choice.

You can find out more about RAIRDA on their website at rairda.org/

[Barnclown]

THANKS Paul 👍 Have now completed it! ❤️🍀 Coco

[Foggyme]

Thanks Paul. Done

[holayaddios]

Form completed. X

[Karm]

I have completed also. Hope everyone is staying safe and as well as can be in this unpresidented time we are in. Keep strong everyone.

[svfarmer]

Thankyou Paul have just submitted it x

[Tykle]

Form completed, thanks.

[Horsewhisper]

Done! 👍

[Oshgosh]

Thanks Paul

[maggielee]

Thanks Paul. Completed..ml

[CSLO]

Completed thanks Paul

[ExtremeDuvetDaze]

Done ✅

[thestorm]

Sorry, only UK lupus?? Wish I could be part, But nice to know,it is out there for so many good members here. Have a good day. thestormy sunshine

[Paul_Howard Partner LUPUS UK in reply to thestorm]

Hi thestorm ,

This particular survey is only for people living in the UK as we will be using the results to inform policymakers in this country.

[thestorm in reply to Paul_Howard]

🤗🤗🤗

[Sin123]

Done

[Spotty-ewe]

Thanks Paul, it’s done. 👍🏻👍🏻

[Ruby3333]

Done

[CecilyParsley]

Done thank you Paul

[Hidden]

Glad to complete form

[panda2]

✅🔅