The Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA) has just launched a new online survey to make sure that the views and experiences of people with rare autoimmune rheumatic diseases (such as lupus) are represented and recognised at the highest levels.
The short, anonymous, survey is for people living in the UK with one of these conditions. It covers a range of questions, from how clear government advice has been to how your normal appointments and care have been impacted.
To complete this survey please go to forms.gle/TUB1kiiqbzNwwYLS9
Filling in this survey will help us raise issues around the impact of COVID-19 on people with these conditions, but we also hope to explore ways care could be improved in the longer-term.
The survey should only take a few minutes to complete, with most questions being multiple choice.
You can find out more about RAIRDA on their website at rairda.org/