Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,739 members • 28,100 posts

All posts for April 2020

I wish I could take my entire body to the shop and request a refund!

Hi there I've been suffering from some very unusual symptoms - well, maybe not unusual to some - and it's becoming very irritating. Basically, I have...

Hi there I've been suffering from some very unusual symptoms - well, maybe not u...

Amakura

•4 years ago

15 Replies

Stupid question: since the government made a call for people to trial HCQ for Covid..is anyone tracking SLE patients on it who have Covid?🤪

😖🥴😵...I know, I'm brain-fogged, of course they are.. ...and here is one survey, the European Patient Registry! Global! https://www.jarproject.org/covid...

😖🥴😵...I know, I'm brain-fogged, of course they are.. ...and here is one surve...

eekt

•4 years ago

51 Replies

ACR guidelines for HCQ during COVID 19

From the American college of Rheumotology today addressing HCQ suggested guidelines for existing patients....

From the American college of Rheumotology today addressing HCQ suggested guidel...

Roarah

•4 years ago

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Mycophenolate - sore throat

How sore should your throat be before you stop taking mycophenolate? Taken pain killers and throat lozengers it eases but is sore to swallow. Didn’t want to...

How sore should your throat be before you stop taking mycophenolate? Taken pain ...

Kelbol1

•4 years ago

15 Replies

Hi all, hope yr all keeping safe. Just a quick question?

I had an email/text from the rheumatoid department asking not to attend any to any hospital app and to keep myself in isolation. Because I have Lupus etc, does...

I had an email/text from the rheumatoid department asking not to attend any to a...

Teanna

•4 years ago

7 Replies

Methotrexate bloods

I've just had my monthly bloods taken, (my first time out of the house in 3 weeks!) but as my usual nurse isn't in given this crisis, they somehow messed up...

I've just had my monthly bloods taken, (my first time out of the house in 3 week...

eescvc

•4 years ago

4 Replies

Looking for advice x

Hello, I have SLE and take hydroxychloroquine and amitriptyline. Recently my symptoms have been pretty well controlled with my medication, plant based diet...

Hello, I have SLE and take hydroxychloroquine and amitriptyline. Recently my s...

Jmcb123

•4 years ago

4 Replies

Feeling scared

Dear all I’m sorry I usually try and post something positive but I’m feeling really scared and alone tonight and I’ve no one else I can talk to. I hope you...

Dear all I’m sorry I usually try and post something positive but I’m feeling re...

Froggie70

•4 years ago

33 Replies

Crawling sensation all over

Anyone else have crawling sensation / buzzing all over worse at night laying still legs and face mainly effected Constant headaches neck pain weakness as per...

Anyone else have crawling sensation / buzzing all over worse at night laying sti...

Buckley123

•4 years ago

29 Replies

Covid 19 and work

Has anyone received the letter from GP asking them to isolate for 12 weeks I was wondering is this compulsory?

Has anyone received the letter from GP asking them to isolate for 12 weeks I was...

biddy75

•4 years ago

9 Replies

Hydroxychloroquine media request

Hi everyone, I've been contacted by a journalist for Associated Press who would like to interview someone with lupus who has been unable to fulfil their...

Hi everyone, I've been contacted by a journalist for Associated Press who would ...

Paul_Howard

Partner•4 years ago

5 Replies

Restless legs

Dear all, I seldom write on here, but I do read all your posts with interest and sympathy. But today I'd like to offer people some help with restless legs...

Dear all, I seldom write on here, but I do read all your posts with interest and...

Greengirls

•4 years ago

9 Replies

COVID-19 and UK Hydroxychloroquine Supply (UPDATED 02/04/2020)

Hi everyone, We’ve just published updates to our article about the UK Hydroxychlroquine Supply - https://www.lupusuk.org.uk/covid19-hydroxychloroquine/......

Hi everyone, We’ve just published updates to our article about the UK Hydroxychl...

Paul_Howard

Partner•4 years ago

45 Replies

low white count, no one will provide a letter for work. Does my son need one? Any help please

Hi, Can anyone help my son please. I have Lupus etc but have retired son isolate at this time. My son who is 31 lives near Glasgow. He is a postman. He has...

Hi, Can anyone help my son please. I have Lupus etc but have retired son isolate...

johare

•4 years ago

9 Replies

A story for your children or share virtually with grandchildren

An appropriate story from our local village school: https://twitter.com/ysgol_nannerch/status/1244961932341399557?s=21 Best wishes Kevin

An appropriate story from our local village school: https://twitter.com/ysgol_n...

Kevin53

•4 years ago

2 Replies

Determined to get his nuts!

Caught this cheeky chappy trying his best to get to the nuts. Taken from inside my lounge. He's seems to be in the habit of calling at the bird feeder every...

Caught this cheeky chappy trying his best to get to the nuts. Taken from inside ...

smudge1980

•4 years ago

11 Replies

Had DLE 20 yrs stress induced attacks now 1 or 2 pa so unmedicated Q1 Does DLE add to Covid risk Q2 If contracted is impact heightened?

Underlying DLE unmedicated - COVID19 risks?

SAFC10

•4 years ago

2 Replies

Very interesting.....

https://www.nytimes.com/2020/04/01/health/coronavirus-cytokine-storm-immune-system.html?action=click&module=Top%20Stories&pgtype=Homepage

https://www.nytimes.com/2020/04/01/health/coronavirus-cytokine-storm-immune-syst...

tree_shadow

•4 years ago

5 Replies

Newly diagnosed

Had call from gp on Monday, all tests came back saying lupus, but cant refer due to lockdown, also have heomocromatosis pain is unbearable at times, any...

Had call from gp on Monday, all tests came back saying lupus, but cant refer du...

Othello123

•4 years ago

5 Replies

Self isolation

It’s like being an astronaut apart from the gravity!

Kevin53

•4 years ago

8 Replies

It's only me

Just thought I would catch up with you all. Please Be careful out there! I was sitting in our living room this morning looking out of the window, and because I...

Just thought I would catch up with you all. Please Be careful out there! I was s...

just-typing

•4 years ago

23 Replies

Abandoned

I have Lupus and scleroderma and on 25mg methotrexate yet my doctor has said I am only moderately at risk yet I must isolate for at least two months. Because I...

I have Lupus and scleroderma and on 25mg methotrexate yet my doctor has said I a...

PickledGinger

•4 years ago

20 Replies

Lupus sufferer

I am 66 this year, I have systemic lupus, high blood pressure and rheumatoid arthritis! My doctor says I’m not on the list and just to keep a distance from...

I am 66 this year, I have systemic lupus, high blood pressure and rheumatoid art...

maryjanet

•4 years ago

12 Replies

US nurse with lupus

Interesting article about ppe and hcq shortages for those who need it most....

Roarah

•4 years ago

1 Reply

Just saw this om Twitter

Can we have more clarification of these "malaria drugs" that @michaelgove mentioned that NO MSM news has mentioned? #Hydroxychloroquine #COVID19

Can we have more clarification of these "malaria drugs" that @michaelgove mentio...

Rosie_red

•4 years ago

Be the first to reply

We want to hear from our LUPUS UK members!

LUPUS UK would like to know why YOU joined as a member of LUPUS UK and how the charity has helped you! Did someone you know recommend joining LUPUS...

LUPUS UK would like to know why YOU joined as a member of LUPUS UK and how the c...

Chanpreet_Walia

LUPUS UK•4 years ago

37 Replies

Lupus & Financial Support

Hi, I have received a letter from the NHS requesting me to shield due to Lupus. I work as a care worker in the private sector. I have been told by work that I...

Hi, I have received a letter from the NHS requesting me to shield due to Lupus. ...

ad_uk

•4 years ago

6 Replies

Confused.com

I’m just looking for the easy answer! 🙈 I have lupus. Take hydroxychloroquine. Should I be self isolating for 12 weeks? To get to work requires 2 journeys on...

I’m just looking for the easy answer! 🙈 I have lupus. Take hydroxychloroquine. ...

Ronie23

•4 years ago

40 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2020

I wish I could take my entire body to the shop and request a refund!

Stupid question: since the government made a call for people to trial HCQ for Covid..is anyone tracking SLE patients on it who have Covid?🤪

ACR guidelines for HCQ during COVID 19

Mycophenolate - sore throat

Hi all, hope yr all keeping safe. Just a quick question?

Methotrexate bloods

Looking for advice x

Feeling scared

Crawling sensation all over

Covid 19 and work

Hydroxychloroquine media request

Restless legs

COVID-19 and UK Hydroxychloroquine Supply (UPDATED 02/04/2020)

low white count, no one will provide a letter for work. Does my son need one? Any help please

A story for your children or share virtually with grandchildren

Determined to get his nuts!

Had DLE 20 yrs stress induced attacks now 1 or 2 pa so unmedicated Q1 Does DLE add to Covid risk Q2 If contracted is impact heightened?

Very interesting.....

Newly diagnosed

Self isolation

It's only me

Abandoned

Lupus sufferer

US nurse with lupus

Just saw this om Twitter

We want to hear from our LUPUS UK members!

Lupus & Financial Support

Confused.com

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