Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2019

Folic acid and pregnancy vitamins

Ok so I've just found out that I'm about 9 weeks gone I want yo start taking pregnancy vitamins but already take folic acid daily. Do I stop these if I'm...

Ok so I've just found out that I'm about 9 weeks gone I want yo start taking pre...

Sami1982

•5 years ago

2 Replies

Feel like a fraud

Hi guys only me As Lisa Lou Knows my bloods have nearly all came back negative from the London lupus center few outstanding but dr s made a point of calling...

Hi guys only me As Lisa Lou Knows my bloods have nearly all came back negative...

Buckley123

•5 years ago

23 Replies

Universal Credit

I recently attended my personal Independence payment interview which really stressful. It would take six weeks before I hear anything from DWP. I really want...

I recently attended my personal Independence payment interview which really stre...

SLE-Warrior

•5 years ago

1 Reply

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Do symptoms reverse themselves?

I first became ill in February 2011 with a tingling, stabbing pain & kind of numbness in my mouth & face causing thickness in my cheeks and tongue. I was...

I first became ill in February 2011 with a tingling, stabbing pain & kind of num...

MoominMomma

•5 years ago

2 Replies

Bones Hurt

My bones hurt, not just my joints, something as simple a putting a handbag on my shoulder courses me discomfort. It's been in the last few weeks and getting...

My bones hurt, not just my joints, something as simple a putting a handbag on my...

Bear15

•5 years ago

13 Replies

Does anyone communicate with Tiras? Our barefoot king 😊

His not been active for so long. Was hoping some one has communication with him outside of this forum . X

His not been active for so long. Was hoping some one has communication with him...

Lisalou19

•5 years ago

4 Replies

Pain Medication . Suffer of Lupus and APS as well as MCTD

Hi I was just wondering if anyone had a letter like the one below . I am feeling really anxious that I am going to be taken off my medication . I suffer from...

Hi I was just wondering if anyone had a letter like the one below . I am feeling...

Paulie303

•5 years ago

6 Replies

Update of UTIs and pools

I’ve been very busy after all the fantastic input from all you Lupies since my first post about UTIs and pools. I searched and enquired about a local salt...

I’ve been very busy after all the fantastic input from all you Lupies since my f...

Spotty-ewe

•5 years ago

4 Replies

A little Saturday morning humour. So unfit 😬

Had some bad days and the fog is lifting. I saw this photo and it sums me right up!!!!

Had some bad days and the fog is lifting. I saw this photo and it sums me right...

Lisalou19

•5 years ago

11 Replies

Lupus Rash scarring

Is there anyone else with subcutaneous lupus? The rash is very distressing. Will I be scarred forever? Any recommendations welcome. Thanks

Is there anyone else with subcutaneous lupus? The rash is very distressing. Will...

LupusRash

•5 years ago

16 Replies

Does anyone suffer from hip pain?

The pain in my right hip has become worse in the last couple of weeks and keeps me awake at night. Some days are better than others... Sometimes it's a sore...

The pain in my right hip has become worse in the last couple of weeks and keeps ...

Hidden

•5 years ago

4 Replies

Chest pain, palpitations & confusion. Help!

Hello everyone Since January of this year, I've been suffering from chest pains (feels like angry cat scratches) which starts from the centre to the right...

Hello everyone Since January of this year, I've been suffering from chest pains...

Amakura

•5 years ago

11 Replies

Eye bleeds ?

Anybody get eye bleeds ? Had such a bad one today had to be checked at hospital. They couldn’t believe I woke up with it . Look like I’d been in an accident. I...

Anybody get eye bleeds ? Had such a bad one today had to be checked at hospital....

tremarel

•5 years ago

18 Replies

Joint pain

Hi everyone! I have been lurking for awhile without posting. I have had many symptoms over the years, mainly headaches and fatigue that have always been...

Hi everyone! I have been lurking for awhile without posting. I have had many sy...

rue04

•5 years ago

3 Replies

on the hamster wheel, and help

As I have posted over the past months, I had been awaiting from April to get to see a new GP. This day finally came. I prepared with all my notes, all the...

As I have posted over the past months, I had been awaiting from April to get to ...

thestorm

•5 years ago

20 Replies

Skin problem resolved with prednisone

Ok here is a photo of the skin problem that has finally responded to treatment with prednisone. It was red and inflamed and the skin peeled off in thick pieces...

Ok here is a photo of the skin problem that has finally responded to treatment w...

lupette

•5 years ago

3 Replies

Cough cough coughing

Hi all. Does anyone experience a persistent dry cough during the night or if they have over done things? Any thoughts on what to do? Lupus has affected my...

Hi all. Does anyone experience a persistent dry cough during the night or if the...

Bee1london

•5 years ago

7 Replies

Confused easily

Anyone find themselves being confused 😐 I’m okay when I’m with people I know but when it’s someone I don’t know very well seems I can’t make a decent...

Anyone find themselves being confused 😐 I’m okay when I’m with people I know bu...

Buckley123

•5 years ago

13 Replies

Positive Ana and pregnancy

You guys have been a great help and wonder if you can help again? So 4weeks pregnant with positive Ro 52 and 60. No diagnosis yet from first private...

You guys have been a great help and wonder if you can help again? So 4weeks preg...

Ilovechips81

•5 years ago

11 Replies

Hydroxychloroquine Availability - 5th September 2019 Update

Hi everyone, As many of you are well aware, we're continuing to receive an increasing number of enquiries from people who are struggling to get hold of the...

Hi everyone, As many of you are well aware, we're continuing to receive an incre...

Paul_Howard

Partner•5 years ago

26 Replies

hypothalamus

Hi just wanting some advice has anyone with SLE suffered with hypothalamus. Lately I'm getting hot and cold flushes when I'm mobile and making me fatigued it's...

Hi just wanting some advice has anyone with SLE suffered with hypothalamus. Late...

Hidden

•5 years ago

9 Replies

Red spots

Hi do any of you guys get these red spots, they are under the skin ( not raised), I don't get them all the time, but very often. Could it be coursed by the...

Hi do any of you guys get these red spots, they are under the skin ( not raised)...

Bear15

•5 years ago

5 Replies

Hormones

Hi everyone, I am wondering if anyone knows of any possible treatments/solutions/responses to an increase in flare symptoms around the time of the month....

Hi everyone, I am wondering if anyone knows of any possible treatments/solutions...

123MrsG

•5 years ago

11 Replies

Hcl

Recently diagnosed with dle have a consultants appt in 3 weeks to hopefully start hcl. I'm assuming I'll just be given a prescription or do I get a choice of...

Recently diagnosed with dle have a consultants appt in 3 weeks to hopefully star...

Gemllo

•5 years ago

3 Replies

Walk to End Lupus Now

Hi all! I just wanted to share that I will be participating in the Walk to End Lupus in Cleveland this Saturday. The walk raises funds for the Lupus Foundation...

Hi all! I just wanted to share that I will be participating in the Walk to End L...

sflynn84

•5 years ago

8 Replies

Pregnancy 🤞

Hello I haven’t been on for quite a while but could definitely use some advice. Me and my husband are hoping to become pregnant 😁 after been told numerous...

Hello I haven’t been on for quite a while but could definitely use some advice. ...

Sarahjj87

•5 years ago

7 Replies

Could it be Lupus ?

Hi All, I'm new to this, hoping someone can just advise and reassure me more than anything. I'm really not into self-diagnosing, but I'm pretty sure I have...

Hi All, I'm new to this, hoping someone can just advise and reassure me more tha...

Loopy71

•5 years ago

12 Replies

Soooooo tired

Im sitting here waiting for the dna test, Tock my 3 kids to 3 different schools, ok I drove, I've only been awake for 3 hours, but my god.....I'm sooooo...

Im sitting here waiting for the dna test, Tock my 3 kids to 3 different schools...

Crazyfamily

•5 years ago

23 Replies

Hydroxychloroquine and hair loss

Sorry could not upload my picture earlier with other post, this from having thinning hair to that in about 2 month

Sorry could not upload my picture earlier with other post, this from having thin...

SunshineT

•5 years ago

16 Replies

Hydroxychloroquine and hair loss

Hello Everybody, I have been diagnos with sjogreen syndrome, duscoid lupus and athriritis. I have been on hydroxychloroquine for about 8month. Recently I've...

Hello Everybody, I have been diagnos with sjogreen syndrome, duscoid lupus and ...

SunshineT

•5 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2019

Folic acid and pregnancy vitamins

Feel like a fraud

Universal Credit

Do symptoms reverse themselves?

Bones Hurt

Does anyone communicate with Tiras? Our barefoot king 😊

Pain Medication . Suffer of Lupus and APS as well as MCTD

Update of UTIs and pools

A little Saturday morning humour. So unfit 😬

Lupus Rash scarring

Does anyone suffer from hip pain?

Chest pain, palpitations & confusion. Help!

Eye bleeds ?

Joint pain

on the hamster wheel, and help

Skin problem resolved with prednisone

Cough cough coughing

Confused easily

Positive Ana and pregnancy

Hydroxychloroquine Availability - 5th September 2019 Update

hypothalamus

Red spots

Hormones

Hcl

Walk to End Lupus Now

Pregnancy 🤞

Could it be Lupus ?

Soooooo tired

Hydroxychloroquine and hair loss

Hydroxychloroquine and hair loss

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