Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2019

Can methotrexate injections cause low lymphocyte, eosinophil and mean cell haemoglobin count?

been feeling rubbish, just had blood test results which doctor wants to speak to me about but can’t get an appointment until October. Got results printed out....

been feeling rubbish, just had blood test results which doctor wants to speak to...

Niccigrace

•5 years ago

4 Replies

CBT for Erythromelalgia-Has it Helped you?

Hello, community. I have lupus, Raynaud's, peripheral neuropathy and erythromelalgia, as well as a type of muscular dystrophy. I take Hydroxychloroquine,...

Hello, community. I have lupus, Raynaud's, peripheral neuropathy and erythromela...

skylark15

•5 years ago

19 Replies

UCTD and Azathioprine

Hi everyone :-) So my Rheumatologist decided to confirm a diagnosis of Undifferentiated Connective Tissue Disorder last week...I don’t know a lot about it...

Hi everyone :-) So my Rheumatologist decided to confirm a diagnosis of Undiffer...

SRiley

•5 years ago

15 Replies

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Feeling awful after PIP Tribunal

Had my pip Tribunal this morning and am feeling absolutely awful and so depressed after it. The questions were confusing and my clarity of thought made me feel...

Had my pip Tribunal this morning and am feeling absolutely awful and so depresse...

LilyMistri2

•5 years ago

13 Replies

Feeling lost

Does anyone else suffer with irrational mood swings? Mine have been getting considerably worse. I’m due to see my rheumatology nurse in November and I saw my...

Does anyone else suffer with irrational mood swings? Mine have been getting cons...

Pug-Mum-89

•5 years ago

5 Replies

Lupus Medication Availability in a “No-Deal” Brexit

Hi everyone, We've received a few enquiries about how lupus medication supply in the UK may be affected by a potential "No-Deal" Brexit. Whilst there is a...

Hi everyone, We've received a few enquiries about how lupus medication supply in...

Paul_Howard

Partner•5 years ago

15 Replies

Gastric problems Hydroxychloroquin

Hi, I have been taking Hydroxychloroquin for 18 months and in the very beginning I had a slight upset tummy, the runs. I was on steroids at the time so not...

Hi, I have been taking Hydroxychloroquin for 18 months and in the very beginning...

Redmatpinkcat

•5 years ago

3 Replies

Drugs combinations

Had to recently stop hydroxychloroquine due to possible ete problems and I'm on mycophenolate but need something else in combination as this doesn't seem to be...

Had to recently stop hydroxychloroquine due to possible ete problems and I'm on ...

Sara_A

•5 years ago

3 Replies

Hydroxychloroquine

Hi everyone Please can anyone explain to me why Blackrock makes me feel so lightheaded in the morning like I have taken a sleeping table And Bristol...

Hi everyone Please can anyone explain to me why Blackrock makes me feel so light...

Matt80

•5 years ago

3 Replies

Update... soon?

Hi . So many of you were kind and supportive to my post a few weeks ago ("confused and angry") about my appointment at chapel Allerton hosp with a rather...

Hi . So many of you were kind and supportive to my post a few weeks ago ("confus...

Apricot100

•5 years ago

4 Replies

Sneaky and Unpredictable

Every day, for half of the day, I feel okay enough to do what I need to do. Then out of nowhere it hits me like a ton of bricks. Pain all over, headache,...

Every day, for half of the day, I feel okay enough to do what I need to do. Then...

Blessings101

•5 years ago

10 Replies

Vision issues and getting quite worried

Hi, I have been told to stop the hydroxychloroquine for 7 days because i am having vision issues with my left eye. i have wiggly lines in my vision and any...

Hi, I have been told to stop the hydroxychloroquine for 7 days because i am havi...

pattypatchwork

•5 years ago

18 Replies

How did you hear of Lupus UK and this forum?

Although I was diagnosed with SLE 6 years ago nobody ever told me about Lupus UK and there was no literature about it at my GP surgery or the rheumatology dept...

Although I was diagnosed with SLE 6 years ago nobody ever told me about Lupus UK...

Spotty-ewe

•5 years ago

20 Replies

just a kind request

Hi all, I am posting to ask for all of your help here in this very special hub, A dear friend of mine from afar is going to have surgery in a few days. She may...

Hi all, I am posting to ask for all of your help here in this very special hub, ...

thestorm

•5 years ago

31 Replies

When to worry about memory

Something that has been bothering me for the last week or so I cannot seem to get my head straight 🤦🏼‍♀️🤷‍♀️🥴 I’ve put my deodorant on twice I stood at...

Something that has been bothering me for the last week or so I cannot seem to ge...

Buckley123

•5 years ago

13 Replies

Life Insurance

Hi, I have now had lupus for 8 years now , it took a long time to get my lupus under control and something that I could manage.. I have recently had a baby and...

Hi, I have now had lupus for 8 years now , it took a long time to get my lupus u...

Hidden

•5 years ago

4 Replies

Tribunal advice?

My PIP Tribunal is on Monday. Does anyone have any idea of what to expect? Some encouragement and tips would be thoroughly appreciated! Many thanks! X

My PIP Tribunal is on Monday. Does anyone have any idea of what to expect? Some ...

LilyMistri2

•5 years ago

2 Replies

Dilemma. What would you do?

I have pulmonary fibrosis caused by RA. I have a malignant nodule. The respiratory consultant says 'do nothing', as an ablation, which I had 3years ago, would...

I have pulmonary fibrosis caused by RA. I have a malignant nodule. The respirato...

Phyll

•5 years ago

6 Replies

Looking for an autoimmune specialist.

Has anyone seen a private autoimmune specialist in London? How did you go about selecting which one to visit?

Has anyone seen a private autoimmune specialist in London? How did you go about...

Foodman500

•5 years ago

10 Replies

Hydroxichloroquin Side effects

Hi You may remember back in July, I mentioned that I was to have test for possible Toxic Retinitis. I saw a Consultant from the Macular department on Friday,...

Hi You may remember back in July, I mentioned that I was to have test for possib...

Cal66

•5 years ago

32 Replies

Long term PPI use

Does anyone use PPI medication and have you been on it for a long time? I've been on various doses of Omeprazole for years on and off but after a bad flare...

Does anyone use PPI medication and have you been on it for a long time? I've bee...

Happy43

•5 years ago

18 Replies

Nearly there but oesophageal muscle damage due to delays

Hi After 8 years of me fighting with 10 consultants trying to convince them that my daughter has an auto immune inflammatory disease, last Friday they agreed....

Hi After 8 years of me fighting with 10 consultants trying to convince them that...

Mom2Danni

•5 years ago

29 Replies

Being super cold all the time and neutropenia and chronic pharyngitis

Hey guys It's been a while since I posted. Nothing major has happened but I still feel i am never ok. Skin remains well even if I got the tiniest bit of a tan...

Hey guys It's been a while since I posted. Nothing major has happened but I stil...

Thereisalight

•5 years ago

7 Replies

Prickly skin

Can anyone tell me if they suffer from a prickling sensation in the skin when suffering flare. This feels like little shocks or as if bugs are on my skin?

Can anyone tell me if they suffer from a prickling sensation in the skin when su...

DeborahMonmouth

•5 years ago

38 Replies

We are all amazing 😊. Have a blessed day xx

Because you deserve to know you are amazing and strong. X

Lisalou19

•5 years ago

7 Replies

Rituximab

Is there anyone on rituximab with osteoartritis as well as R.A.

LUPIELASSY13

•5 years ago

1 Reply

Lupus diagnosis 6 months ago

Hi all I'm new to the site and received a diagnosis of lupus 6 months ago. It's been a 4-year battle to get to this point even with a diagnosis of discoid...

Hi all I'm new to the site and received a diagnosis of lupus 6 months ago. It's ...

Joni2011

•5 years ago

20 Replies

Tribunal may query my pip form saying no to access my records.

Hi, My pip Tribunal is next week. In my MR letter to me they flagged up that I had refused them to see my past DLA medical letters. I remember being made to...

Hi, My pip Tribunal is next week. In my MR letter to me they flagged up that I h...

LilyMistri2

•5 years ago

1 Reply

Email sent may have hung myself but I don’t care

Sent this today thanks all for your help I received dr a letter today and put the two together it’s awful. No where near the same one I paid for one on the nhs...

Sent this today thanks all for your help I received dr a letter today and put th...

Buckley123

•5 years ago

54 Replies

Nausea with azathioprine

Has anybody got any coping strategies for Azathioprine nausea? I started it on Friday and understand that nausea and sickness were very common side-effects....

Has anybody got any coping strategies for Azathioprine nausea? I started it on F...

Bunny2018

•5 years ago

16 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2019

Can methotrexate injections cause low lymphocyte, eosinophil and mean cell haemoglobin count?

CBT for Erythromelalgia-Has it Helped you?

UCTD and Azathioprine

Feeling awful after PIP Tribunal

Feeling lost

Lupus Medication Availability in a “No-Deal” Brexit

Gastric problems Hydroxychloroquin

Drugs combinations

Hydroxychloroquine

Update... soon?

Sneaky and Unpredictable

Vision issues and getting quite worried

How did you hear of Lupus UK and this forum?

just a kind request

When to worry about memory

Life Insurance

Tribunal advice?

Dilemma. What would you do?

Looking for an autoimmune specialist.

Hydroxichloroquin Side effects

Long term PPI use

Nearly there but oesophageal muscle damage due to delays

Being super cold all the time and neutropenia and chronic pharyngitis

Prickly skin

We are all amazing 😊. Have a blessed day xx

Rituximab

Lupus diagnosis 6 months ago

Tribunal may query my pip form saying no to access my records.

Email sent may have hung myself but I don’t care

Nausea with azathioprine

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