Hydroxychloroquine Availability - 5th September 2... - LUPUS UK

LUPUS UK
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Hydroxychloroquine Availability - 5th September 2019 Update

Hi everyone,

As many of you are well aware, we're continuing to receive an increasing number of enquiries from people who are struggling to get hold of the brand of hydroxychloroquine that they need (most commonly Zentiva or Blackrock).

The conversation has come up in this community a few times and I want to keep you regularly updated. To help answer all of your questions on this topic and provide you with an information sheet to hand to your prescribing doctor and/or pharmacist we have updated and improved the Q&A on our website. This can be accessed at lupusuk.org.uk/hydroxychlor...

Blackrock Pharmaceuticals

At the end of last week we received an update from Blackrock Pharmaceuticals.

They confirmed that their product has not been discontinued and is not out of stock. The product should be available to pharmacies through major pharmaceutical wholesale suppliers.

Blackrock sent letters to UK wholesalers and Retailers last week confirming the full availability of their hydroxychloroquine tablets. You can access copies of these letters on their website and read the full update at lupusuk.org.uk/blackrock-hcq/

Zentiva

I spoke to a representative for Zentiva at the beginning of this week and they indicated that they will be taking the same action as Blackrock. I'm expecting a call back from them tomorrow (06/09/2019) when hopefully there will be more to advise.

Please let me know if you are continuing to have trouble getting hold of these medications. I'm collecting as much evidence as I can for now and making plans for further action.

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🀩 THANKS PAUL πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘β€οΈπŸ€

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Thank you so much for this Paul, we are all very grateful that you have taken action on our behalf and are keeping us informed. It’s such a frustrating situation especially when the pharmaceutical companies say there are no stock problems etc.

Wendy

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Whilst there were some supply issues with the pharmaceutical companies, they have taken our reports very seriously and addressed them fairly well. It is becoming clearer that the wholesale suppliers are the source of the problem - simply refusing to order sufficient quantities to meet demand. I finally managed to speak to the MHRA yesterday and they have advised me to raise this as an urgent problem with the Department of Health Sale and Supply Team, which I will be doing this morning.

I will also be looking at whether an open letter and petition addressed to the wholesale suppliers could have any weight.

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Once again Paul, thank you. It’s a battle that’s too big for us to fight individually. But together we are stronger.

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Thanks Paul, my Boots got Zentiva this week ok πŸ‘ πŸ‘πŸ‘πŸ˜€after 6 months since they last did! I had Tried all other local chemist s and ended up taking 90 miles away to get it ! Fingers crossed 🀞 stays sorted now, thanks

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Thank u Paul..hope u had a fabulous holiday!! Xx

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I did have a lovely time thank you :)

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Thank you so much for taking this action and for keeping us so well informed. I have just moved to a different pharmacy as the old ones were not able to get Zentiva for me each time. The new pharmacy have a couple of boxes in stock but told me yesterday that when they have looked on their ordering system to get more stock in they now cannot order Zentiva from their suppliers at this present time.I told him the pip code etc from the last update that you kindly provided us with but he said that if the suppliers do not have any they will be unable to source it for me.It just seems to be a constant problem for so many of us.

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Thanks for sharing paula-moo. I'm hoping to make more progress on this within the next week and fingers crossed we'll have more suggestions for getting hold of it.

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Thanks Paul for all your help, 🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟

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Thank you Paul.

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