Anyone find themselves being confused 😐 I’m okay when I’m with people I know but when it’s someone I don’t know very well seems I can’t make a decent conversation like I’m talking but not making much sense detached from the situation.. like a delay in my thinking 💭 ive never really had this problem before I feel a little dazed 🥴 I don’t know
Not making much sense now tbh can’t really explain it xx
Yep. I have long-standing anxiety and depression too, but since being diagnosed with - and learning about - SLE I think fatigue plays an important role. The sheer cognitive effort of communicating sometimes just feels overwhelming and the more anxious I feel the less sense I make!
That makes sense I think it is more when I’m out of my comfort zone and talking to the school mums. On the spot I hate xx
I feel exactly the same! It gets worse the more tired or overloaded I am! It’s awful because I’ve developed a stutter or a blank stare when it’s really bad. I find just taking a step back or time out and going back to it helps. The more I over think it the more paranoid and anxious I become. xx
This is exactly how I feel too xx
Yep. And agree - very much with school mum's. I doubt most days that I have any ability to recall information which will allow me to make interesting and relevant conversation. It just doesn't flow. I am totally absent from the conversation and switched off. I never used to be like this and it has meant social life taking a nose dive
I find this waxes and wanes. There may be periods where you are not so bad.
This is true it’s not always I find it’s worse at school pick up time by 3:20 I’m tired xx
Horrible isn’t it ❤️🤦🏼♀️
Sorry you are experiencing this... it is such an ‘other worldly’ feeling almost like I am not there but the conversation is swirling around me. Fatigue is a big part of it but I also find hydration and side effects of the many meds that I must take play into it. Often times I will sort of prepare in my mind a few ideas of something to say which helps calm my life altering anxiety. Just remember the other moms are only thinking of themselves 😉.
Hang in there.
Thanks mate xxx
Ohhhhh Buckley I’m sooo sooo sorry you’re going through this. 😊🌿🌸🦋
I started this decades ago. I’ve now learned to either go along with the conversations as if those people are friends. I carry the conversation as if I’m okay and say e. g.
Hi how are you? How’s the family?
Once the preliminaries are done then you can go onto general topics like the weather...world or local news etc. if you feel comfortable you can get together for a lunch or brunch.
The other option is just start the conversation with an apology and let them know you suffer from your illnesses and how it effects your memory. Then simply ask them to assist you in recall. This is what I use the most. I’m treated with kindness and understanding and they follow suit with aiding my recall.
Don’t be hard on yourself. You’re ill not of your choosing and because it’s your brain of course there is no splint or brace or wrap to aid it. We have to have outside aid most of the time.
I’m sending you fluffy big hugs love and prayers.
Abundant blessings sweetie.
EJ xxx
Scared and lonely
Confused 🤷♀️ 
The guilt!
Methatrexate hangover 
