Confused easily : Anyone find themselves being... - LUPUS UK

LUPUS UK

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Confused easily

Buckley123 profile image
13 Replies

Anyone find themselves being confused 😐 I’m okay when I’m with people I know but when it’s someone I don’t know very well seems I can’t make a decent conversation like I’m talking but not making much sense detached from the situation.. like a delay in my thinking 💭 ive never really had this problem before I feel a little dazed 🥴 I don’t know

Not making much sense now tbh can’t really explain it xx

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Buckley123 profile image
Buckley123
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13 Replies
SleepyWolf profile image
SleepyWolf

Yep. I have long-standing anxiety and depression too, but since being diagnosed with - and learning about - SLE I think fatigue plays an important role. The sheer cognitive effort of communicating sometimes just feels overwhelming and the more anxious I feel the less sense I make!

Buckley123 profile image
Buckley123 in reply to SleepyWolf

That makes sense I think it is more when I’m out of my comfort zone and talking to the school mums. On the spot I hate xx

Angie245 profile image
Angie245 in reply to SleepyWolf

I feel exactly the same! It gets worse the more tired or overloaded I am! It’s awful because I’ve developed a stutter or a blank stare when it’s really bad. I find just taking a step back or time out and going back to it helps. The more I over think it the more paranoid and anxious I become. xx

Buckley123 profile image
Buckley123 in reply to Angie245

This is exactly how I feel too xx

Apricot100 profile image
Apricot100

Yep. And agree - very much with school mum's. I doubt most days that I have any ability to recall information which will allow me to make interesting and relevant conversation. It just doesn't flow. I am totally absent from the conversation and switched off. I never used to be like this and it has meant social life taking a nose dive

cpops profile image
cpops in reply to Apricot100

I find this waxes and wanes. There may be periods where you are not so bad.

Buckley123 profile image
Buckley123 in reply to cpops

This is true it’s not always I find it’s worse at school pick up time by 3:20 I’m tired xx

Buckley123 profile image
Buckley123 in reply to Apricot100

Horrible isn’t it ❤️🤦🏼‍♀️

lupette profile image
lupette

Yes! I feel like that most of the time.

Buckley123 profile image
Buckley123 in reply to lupette

🤦🏼‍♀️🥴❤️

Ebaymama profile image
Ebaymama

Sorry you are experiencing this... it is such an ‘other worldly’ feeling almost like I am not there but the conversation is swirling around me. Fatigue is a big part of it but I also find hydration and side effects of the many meds that I must take play into it. Often times I will sort of prepare in my mind a few ideas of something to say which helps calm my life altering anxiety. Just remember the other moms are only thinking of themselves 😉.

Hang in there.

Buckley123 profile image
Buckley123 in reply to Ebaymama

Thanks mate xxx

honeybug profile image
honeybug

Ohhhhh Buckley I’m sooo sooo sorry you’re going through this. 😊🌿🌸🦋

I started this decades ago. I’ve now learned to either go along with the conversations as if those people are friends. I carry the conversation as if I’m okay and say e. g.

Hi how are you? How’s the family?

Once the preliminaries are done then you can go onto general topics like the weather...world or local news etc. if you feel comfortable you can get together for a lunch or brunch.

The other option is just start the conversation with an apology and let them know you suffer from your illnesses and how it effects your memory. Then simply ask them to assist you in recall. This is what I use the most. I’m treated with kindness and understanding and they follow suit with aiding my recall.

Don’t be hard on yourself. You’re ill not of your choosing and because it’s your brain of course there is no splint or brace or wrap to aid it. We have to have outside aid most of the time.

I’m sending you fluffy big hugs love and prayers.

Abundant blessings sweetie.

EJ xxx

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