Lupus Rash scarring

[LupusRash]

Is there anyone else with subcutaneous lupus? The rash is very distressing. Will I be scarred forever? Any recommendations welcome. Thanks

[Lisalou19]

Are you able to post a photo of your rash? X

[LupusRash in reply to Lisalou19]

I think I managed to 🤔

[Lisalou19 in reply to LupusRash]

I can’t see it. If you click on your post and edit it , it will ask you to add photo to your post x

[LupusRash in reply to Lisalou19]

I did try this, can you see now?

[Spotty-ewe]

I had a horrible rash from head to toe due to a reaction to Terbinafine 6 years ago. The spots all joined on my back creating a solid area of lumpy red and extremely itchy skin which went yellow and scabby as it progressed. The Dermavate helped and I was also advised to use aqueous cream as the rash began to subside, even in the shower as a shower cream. When the rash was at its worst and unbearably itchy I had my husband spread honey onto the skin where I couldn’t reach myself, and I sat with a towel wrapped around me like that for 20 -30 mins before a cool shower. It really helped too. Finally I drank camomile tea (with honey in it as I hate the taste of it) and I think that helped to calm down the system and what was going on inside. When the rash faded I did not have any scars. I have a bad flare right now, although nowhere near as bad as that time, so I’m hoping the rash will go without leaving scars once again.

I hope some of this is of help to you, and I hope the rash begins to die down and fade very soon. 🙏🏻

[LupusRash in reply to Spotty-ewe]

Thank you so much 🤗

[maggielee]

I know some types scar, if it is SCLE it shouldn't, it didn't for me. I would say my body was trying to heal itself by bringing out a layer of new skin once it really got going, if that makes sense. So my new skin, where the rash is slightly a different colouration from the areas that where I was not affected (I was also put on meds to stop the spreading & calm the rash down). Though I do not go in the sun without covering up, my skin is slightly pinker than it was...

Hope you are able to get it under control soon & you start to heal...ml

[LupusRash in reply to maggielee]

Thank you Maggie, You give me hope😉

[maggielee in reply to LupusRash]

Are you taking any meds such as hydroxychlorquine? Mine cleared up very quickly & has helped with achy muscles etc. ML

[LupusRash in reply to maggielee]

Yes, I’ve been on hydroxychloroquine for some years to help with my Rheumatoid Arthritis, it is also indicated for Lupus

[maggielee in reply to LupusRash]

I hope it is helping your rash...as this is a flare & needs to calm down...I am also on Mycophenolate to help with sjogrens as well...ml

[Barbara17]

I can only agree with everyone else. The rash is horrible and takes a long time to fade but it does eventually go. So many of us seem to have been badly affected this year and I am blaming the long, sunny summer. Keep out of the sun and use lots of moisturiser and we should all be spot free by Christmas!

[LupusRash in reply to Barbara17]

Yes please 🥰 happy health to us all 💐

[5waterdogs]

I was just diagnosed with cutaneous lupus after I was sent to a university. My rash is horrible and to be honest it's really upsetting.

[5waterdogs in reply to 5waterdogs]

I can't seem to send a picture

[LupusRash in reply to 5waterdogs]

I know how upsetting it is 😢 how have you been advised to treat it? My heart goes out to you 😘