Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,915 members • 28,239 posts

All posts for October 2018

Lupus queries

Hi Guys I lie here feeling really down and fed up. I wad diagnosed in july with Lupus after returning from holidays with a discoid rash... and after many...

Hi Guys I lie here feeling really down and fed up. I wad diagnosed in july wit...

Lupusfrustrated

•6 years ago

19 Replies

Just joined.

Although I've been a member of Lupus UK for 12 yrs, I've never heard of healthunlocked until attending a lupus awareness event yesterday. Over the years as a...

Although I've been a member of Lupus UK for 12 yrs, I've never heard of healthun...

awareness75

•6 years ago

7 Replies

Lupus patients throughout the UK.

I went to a local Lupus group awareness event this weekend, which was informative. I was interesting to hear how some people have good hospitals and...

I went to a local Lupus group awareness event this weekend, which was informativ...

awareness75

•6 years ago

9 Replies

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6 week rash ☹️

Hi there , i just want to get some opinions on a rash ive had on my arms for 6 weeks . It’s itchy, it can get hot , long sleeves aggravate it. I have been...

Hi there , i just want to get some opinions on a rash ive had on my arms for 6 w...

weathervane

•6 years ago

41 Replies

Long time

Hello all, It’s been a super long time since I’ve been on here. It’s crazy how fast time goes. Thought I’d give you all an update how things have been going....

Hello all, It’s been a super long time since I’ve been on here. It’s crazy how...

LouLamb

•6 years ago

24 Replies

THANK YOU

Im so glad i joined the forum yes i have tried alot of things i tried ibrouphn & tramadol they dont even touch the pain nor did morphine work only taking...

Im so glad i joined the forum yes i have tried alot of things i tried ibrouphn &...

Naz2005

•6 years ago

2 Replies

Wrong site!

Hi . I have fibro and have been on the fibromyalgia action uk site for some time. For some reason I am now on this site and can’t get back on the fibro one....

Hi . I have fibro and have been on the fibromyalgia action uk site for some time...

mcglada0

•6 years ago

6 Replies

Me in a nutshell :)

Hi everybody, I've just stumbled upon this forum quite by accident and I'm hoping it might help me to communicate with people that understand what I going...

Hi everybody, I've just stumbled upon this forum quite by accident and I'm hopin...

Chuckles0808

•6 years ago

32 Replies

New Meds Azathiprine

Hi all, I am starting treatment, now on a different meds called Azathiprine, anyone else take these & what are your experiences of taking this med? many...

Hi all, I am starting treatment, now on a different meds called Azathiprine, any...

Angellealea1

•6 years ago

12 Replies

HOW MUCH LONGER ???

How much longer will it take to get back to normality having a crap morning in pain unbearable feel like just ending it all 😥😥😥

How much longer will it take to get back to normality having a crap morning in p...

Naz2005

•6 years ago

3 Replies

Methotrexate

After seeing the rheumatologist in Bath on Thursday she said she was going to start me on a low dose of methotrexate. I was just wondering how any of you were...

After seeing the rheumatologist in Bath on Thursday she said she was going to st...

Wrexlu

•6 years ago

10 Replies

Travel insurance-Result!

Further to my post a few days ago, asking about travel insurance companies prepared to cover people with multiple conditions, I tried all the suggestions and...

Further to my post a few days ago, asking about travel insurance companies prepa...

skylark15

•6 years ago

20 Replies

Reduction in hydroxychloroquine

Hi everyone, I pray that you are all well. I had a rheumy appointment 2 weeks ago. He's asked me to reduce the dosage of hydroxy to 200mg from 400mg. I'm...

Hi everyone, I pray that you are all well. I had a rheumy appointment 2 weeks ag...

heda123

•6 years ago

7 Replies

Feeling like I want to scream and have a proper tantrum

I rarely post a message but feel part of the community here, I have learnt lots and understand so much more than I did 6 years ago, that is due to all you...

I rarely post a message but feel part of the community here, I have learnt lots ...

Anjic

•6 years ago

4 Replies

LUPUS FLARE UP

Well here goes .... back on steroids and hydroxychloroquin... starting them today .... feels weird going back on these meds after 20 years 😳😳😳 fingers...

Well here goes .... back on steroids and hydroxychloroquin... starting them toda...

Misti31

•6 years ago

4 Replies

ANY IDEA ???

Hi keep getting realy bad pain in my shoulder & kneck achin pain in elbows & knee joints is this LUPUS (SLE) and night sweats at the back of my kneck in...

Hi keep getting realy bad pain in my shoulder & kneck achin pain in elbows & kne...

Naz2005

•6 years ago

9 Replies

Ana now negative... Totally confused!

Received recent blood results from rheumatologist today... Ana has now come back negative and they also say the anti dsdna is negative but I wonder whether...

Received recent blood results from rheumatologist today... Ana has now come back...

Hidden

•6 years ago

7 Replies

Update on eczematous rash and/ or hives (?) after 10 weeks on Hydroxychloroquine...

I stopped taking Hydroxychloroquine seven weeks ago when I had a severe skin reaction, flushing of skin, itching and eczematous type patches on skin. I had...

I stopped taking Hydroxychloroquine seven weeks ago when I had a severe skin rea...

Izzy123gym

•6 years ago

9 Replies

Private healthcare diagnosis?

Hi all, I'm finding it increasingly frustrating that my (now second) Rheum seems to be dancing around giving me a diagnosis and allowing me to have treatment...

Hi all, I'm finding it increasingly frustrating that my (now second) Rheum seems...

NatalieC

•6 years ago

18 Replies

It's National Poetry Day

Samuel Taylor Coleridge had a number of chronic illnesses which he managed with all sorts of medications, including, at last, copious amounts of laudanum....

Samuel Taylor Coleridge had a number of chronic illnesses which he managed with ...

whisperit

•6 years ago

10 Replies

'Can my brain cure my body?' Horizon BBC2 Tonight 9pm

Past my bed-time... 🙁 xxx

eekt

•6 years ago

8 Replies

Leaky aortic valve

Hi. Just had an echo cardiograph showing some aortic value regurgitation - described as slightly leaky! Have yet to discuss results with Dr face to face. I...

Hi. Just had an echo cardiograph showing some aortic value regurgitation - descr...

Pickzie

•6 years ago

2 Replies

Help

I was diagnosed with lupus in the early 60s. At the age of 6. I seem to have grown out of it as the years went by. Lots of pain and swollen joints. In my late...

I was diagnosed with lupus in the early 60s. At the age of 6. I seem to have gr...

Oldpain

•6 years ago

3 Replies

Do I have Lupus?

I already have Graves Disease. My new consultant took bloods a couple of weeks ago and sent me a copy and has brought my appointment forward to 15th October. I...

I already have Graves Disease. My new consultant took bloods a couple of weeks a...

Gretna99

•6 years ago

1 Reply

Is your GP frustrated and angry ? That's a diagnosis of Somatic Symptom Disorder for you then ! 😂😂😪

Somatic is the new term for 'oh I can't be bothered with this feckless female* again' aka somatisation disorder, hypochondriasis, pain disorder, and...

Somatic is the new term for 'oh I can't be bothered with this feckless female* a...

eekt

•6 years ago

14 Replies

Sudden hair loss

I’m at the hairdressers who’ve said I’m losing large amounts of hair when she’s washing it. Now I know that I’m not in a great place health wise and the...

I’m at the hairdressers who’ve said I’m losing large amounts of hair when she’s ...

Lorska1

•6 years ago

14 Replies

Being treated but not properly diagnosed?

I’m being treated for SLE, Rheumatologists told me they’re 95% sure it’s lupus so started treating me with 10mg of prednisolone during my recent stay in...

I’m being treated for SLE, Rheumatologists told me they’re 95% sure it’s lupus s...

ButterflyEffect96

•6 years ago

6 Replies

plaquenil success story?

hi guys, I was prescribed Plaquenil last week by my Rheumatologist on my first visit (after many years of various pains and symptoms). Well last night and more...

hi guys, I was prescribed Plaquenil last week by my Rheumatologist on my first v...

patmackfin

•6 years ago

10 Replies

back in hospital

Hi back in hospital the pain in my shoulder & kneck just wont go away they have increased my steriods to 20mg & been started on another set of antibiotics my...

Hi back in hospital the pain in my shoulder & kneck just wont go away they have ...

Naz2005

•6 years ago

5 Replies

Seeking someone for a press interview in Wigan

Do you have lupus and live in Wigan? We have had a request from a local newspaper for an interview to feature during Lupus Awareness Month. If you would be...

Do you have lupus and live in Wigan? We have had a request from a local newspap...

Paul_Howard

Partner•6 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2018

Lupus queries

Just joined.

Lupus patients throughout the UK.

6 week rash ☹️

Long time

THANK YOU

Wrong site!

Me in a nutshell :)

New Meds Azathiprine

HOW MUCH LONGER ???

Methotrexate

Travel insurance-Result!

Reduction in hydroxychloroquine

Feeling like I want to scream and have a proper tantrum

LUPUS FLARE UP

ANY IDEA ???

Ana now negative... Totally confused!

Update on eczematous rash and/ or hives (?) after 10 weeks on Hydroxychloroquine...

Private healthcare diagnosis?

It's National Poetry Day

'Can my brain cure my body?' Horizon BBC2 Tonight 9pm

Leaky aortic valve

Help

Do I have Lupus?

Is your GP frustrated and angry ? That's a diagnosis of Somatic Symptom Disorder for you then ! 😂😂😪

Sudden hair loss

Being treated but not properly diagnosed?

plaquenil success story?

back in hospital

Seeking someone for a press interview in Wigan

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Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

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