Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,894 members • 28,222 posts

All posts for October 2018

Update on rash 😬

Finally had gp appointment today . I had 3 issues to discuss , the rash , pain and swelling in joints , occipital pain and headaches. The rash had actually...

Finally had gp appointment today . I had 3 issues to discuss , the rash , pain a...

weathervane

•6 years ago

27 Replies

Trigeminal neuralgia

Diagnosed yesterday by neurologist in Heraklion hospital. Perscribed gabepentin 300mg 3 x daily. He said i need to have an mri done when i return hime to...

Diagnosed yesterday by neurologist in Heraklion hospital. Perscribed gabepentin ...

Susan712

•6 years ago

6 Replies

Doctor appointment next week - worried.

Hello there my lovelies 💖 First of all I want to say, thank you all so much for your posts and replies - I am usually quite a silent reader but everything I...

Hello there my lovelies 💖 First of all I want to say, thank you all so much for...

Peppytea

•6 years ago

12 Replies

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Absolutely disgusting PIP professional awarded six points daily living and 10 mobility AVM,stroke, epilepsy APS That caused a PE and lupus

2000 I started having major seizures and an AVM was found 2003 following one procedure to treat it I had a stroke losing most of the use of my right leg...

2000 I started having major seizures and an AVM was found 2003 following on...

Hidden

•6 years ago

5 Replies

Move it or lose it! But take someone with you when you do 😜

Hey everyone! I hope you are all having a fine day and enjoying the sunshine ☀️. Yesterday I finally got to go for a hike. My PT finally cleared me last week,...

Hey everyone! I hope you are all having a fine day and enjoying the sunshine ☀️....

DRunnerchick

•6 years ago

13 Replies

Fed up of the unknown

Hi all the warriors 🙏🏼 I wanted to know if anyone has experienced or having nerves issues such as pulling twitching like rubber band breaking or stretching...

Hi all the warriors 🙏🏼 I wanted to know if anyone has experienced or having ne...

Mystik

•6 years ago

5 Replies

?s

Sorry but I have a lot questions I need answering here are some. Perpura suffered with 1 recurring spot (berween 4-6 weeks interval) of perpura for about 18...

Sorry but I have a lot questions I need answering here are some. Perpura suffer...

Bronn

•6 years ago

3 Replies

Lupie living in the Highlands!

Hi All, My name is Natalya and I live in the Highlands of Scotland. I've been diagnosed with Lupus, Hughes, Sjogrens and Chronic Pain Syndrome for 10 years now...

Hi All, My name is Natalya and I live in the Highlands of Scotland. I've been di...

talj

•6 years ago

8 Replies

Cheer up butter cup!

Just thought I would post this I don’t post a lot I don’t know if I have posted before I can’t remember lupus fog lol I read post after post and they are alll...

Just thought I would post this I don’t post a lot I don’t know if I have posted ...

Ingerfoot

•6 years ago

5 Replies

Having a flare

Im 40 years old. I was diagnosed with Lupus SLE almost a year ago. They started me on Hydroxychloriqine 200MG 2x' a day. That didn't work so I started...

Im 40 years old. I was diagnosed with Lupus SLE almost a year ago. They started ...

2sfamily

•6 years ago

2 Replies

Hi all

Hi I recently had an EMG test because of my blood work & symptoms & inflammatory, I have Sjogren's Syndrome too. I have a positive Anti-Ro antibody & my EMG...

Hi I recently had an EMG test because of my blood work & symptoms & inflammatory...

Angellealea1

•6 years ago

1 Reply

Recent Lupus Diagnosis

Hi. After suffering with seizures, and quite a few of them, my consultant neurologist has ordered some tests, ie, MRI, EEG and also various blood tests. I was...

Hi. After suffering with seizures, and quite a few of them, my consultant neurol...

Smy74

•6 years ago

4 Replies

Better access to consultants/specialists

With the rise and greater awareness of various diseases; many which have a very complex management, does anyone agree with me that if possible, ( I guess the...

With the rise and greater awareness of various diseases; many which have a very ...

awareness75

•6 years ago

33 Replies

PIP success!

After my disparaging comments about the PIP process, I've just opened today's post to find that I've been awarded the enhanced rate of PIP for both the daily...

After my disparaging comments about the PIP process, I've just opened today's po...

whisperit

•6 years ago

32 Replies

New symtoms after having for over 20 years

Hi everyone does any one else suffer with terrible pain in their face jaw and teeth ??. I have had bouts of sinusitus in the past however recently i started...

Hi everyone does any one else suffer with terrible pain in their face jaw and te...

Susan712

•6 years ago

8 Replies

"Lupus fog. " How does it manifest? What is the definition?

There are many posts about memory and Lupus fog particularly with people explaining how they forget things, people's names, words etc. I'm wondering if there...

There are many posts about memory and Lupus fog particularly with people explain...

Poppyfields65

•6 years ago

10 Replies

Short term memory loss

Just wondering has anyone experienced memory loss or more to the point forgetfulness.. since being diagnosed with Lupus Ive missed appointments,forgot to...

Just wondering has anyone experienced memory loss or more to the point forgetful...

Lupusfrustrated

•6 years ago

17 Replies

Best present ever

So today is my birthday I got this cup !! I think it amazingly sums up my life.🙂

So today is my birthday I got this cup !! I think it amazingly sums up my life....

LouLamb

•6 years ago

43 Replies

Results ESR/serum c

Hi, the post is not allowing me to post results again 🤦🏼‍♀️ after I typed it all out too!!!! Basically waiting for rheumatoid appointment, in the meanwhile,...

Hi, the post is not allowing me to post results again 🤦🏼‍♀️ after I typed it a...

Lisas_tired

•6 years ago

12 Replies

Lupus awareness

Is there any Lupus awareness meetings in the East Midlands this October?

Wrexlu

•6 years ago

1 Reply

0 point for PIP

I recently had my PIP assessment. I always knew it would be difficult for me to get enough points as I do not have any mobility issues, however I was naive...

I recently had my PIP assessment. I always knew it would be difficult for me to ...

Jessie_2014

•6 years ago

9 Replies

Live Q&A Session with the lupus team at UCLH - 16th Oct 2018

The lupus team at UCLH are hosting a live Q&A session about lupus for Lupus Awareness Month with Prof David Isenberg and Dr Chris Wincup. To send your...

The lupus team at UCLH are hosting a live Q&A session about lupus for Lupus Awar...

Paul_Howard

Partner•6 years ago

4 Replies

#LoveLife

My dog always woke up with her tail wagging and went to sleep grinning. That's a lesson for life? xxx 😚

My dog always woke up with her tail wagging and went to sleep grinning. That's a...

eekt

•6 years ago

12 Replies

UCTD HAIRFALL

Hi guys. I have hasimoto thyroid. And my doctor has identified me under the UCTD category (ANA 1:320 all other tests like antids dsna are negative ) . I've no...

Hi guys. I have hasimoto thyroid. And my doctor has identified me under the UCTD...

Appy0322

•6 years ago

6 Replies

Am I having a lupus flare?

I haven’t posted in a while i last had rituximab in 2016 and haven’t needed to have another infusion. But for the last few weeks things are getting harder. I...

I haven’t posted in a while i last had rituximab in 2016 and haven’t needed to h...

Sarahjj87

•6 years ago

2 Replies

PIP Appointment

I’ve got my pip appointment next week Tuesday, I’m so nervous about what’s going to happen, who’s had a pip appointment, how was your experience, and where you...

I’ve got my pip appointment next week Tuesday, I’m so nervous about what’s going...

Tash1987

•6 years ago

8 Replies

Nurse Appointment

Had my rheumy nurse appointment today. Well it went a lot better than i could have expected. My liver result was 120 and has gone down to 90, so it is slowly...

Had my rheumy nurse appointment today. Well it went a lot better than i could ha...

LouLamb

•6 years ago

18 Replies

Sticky Blood Explained re launch evening this Friday

Hello everyone, I don’t actually have Lupus although I do have Sjogrens. My main illness is Hughes syndrome and I had a heart attack at 37. This Friday is the...

Hello everyone, I don’t actually have Lupus although I do have Sjogrens. My main...

KayPryszlak

•6 years ago

3 Replies

Participants needed for study about taking medications

Volunteers are needed for research into experiences of taking medications in people living with long-term health conditions (LTC) . The researchers from Leeds...

Volunteers are needed for research into experiences of taking medications in peo...

Paul_Howard

Partner•6 years ago

3 Replies

Been a while

Hi All Hope everyone is good. Not been about for ages- back to work and ME/Fibromyalgia has put any sort of additional stuff to one side. Been told it’s deffo...

Hi All Hope everyone is good. Not been about for ages- back to work and ME/Fibro...

MsAndyIvy

•6 years ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2018

Update on rash 😬

Trigeminal neuralgia

Doctor appointment next week - worried.

Absolutely disgusting PIP professional awarded six points daily living and 10 mobility AVM,stroke, epilepsy APS That caused a PE and lupus

Move it or lose it! But take someone with you when you do 😜

Fed up of the unknown

?s

Lupie living in the Highlands!

Cheer up butter cup!

Having a flare

Hi all

Recent Lupus Diagnosis

Better access to consultants/specialists

PIP success!

New symtoms after having for over 20 years

"Lupus fog. " How does it manifest? What is the definition?

Short term memory loss

Best present ever

Results ESR/serum c

Lupus awareness

0 point for PIP

Live Q&A Session with the lupus team at UCLH - 16th Oct 2018

#LoveLife

UCTD HAIRFALL

Am I having a lupus flare?

PIP Appointment

Nurse Appointment

Sticky Blood Explained re launch evening this Friday

Participants needed for study about taking medications

Been a while

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Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

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