Methotrexate : After seeing the rheumatologist in... - LUPUS UK

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Methotrexate

Wrexlu profile image

After seeing the rheumatologist in Bath on Thursday she said she was going to start me on a low dose of methotrexate.

I was just wondering how any of you were or are taking it. I would be interested to hear from you..

10 Replies

Hey :) I've been taking a low dose of methotrexate for about a year now and it has helped a little. You may have to plug on through the side effects for a start which can be quite difficult. I struggled with nausea on the medication but there is a light at the end of the tunnel. It does eventually settle down. They are due to increase my dose soon as I'm having a bit of a tough time at the moment but it did help xx

Hi Wrexlu,

I was taking the pills but I could never keep them down so I switched to injections which is far better for me. You also must take folic acid daily. I also recommend pick a day that you have the next day off as might need a little more rest or to adjust to side affects.. like Chuckles I’m due for an increase. I been having more flares than usual especially with cold and rainy weather. Hopefully with an increase I can do more things. Needles are great if you’re not afraid of them. My husband give me mine. Hope it works well for you.

Wrexlu profile image
Wrexlu in reply to InezJ

Thank you. I hope you will be feeling a little better soon. Xx

InezJ profile image
InezJ in reply to Wrexlu

You’re welcome , I wish the best for all who are dealing with these unpredictable Autoimmunes with a 1000 different faces. You just don’t know what the next day will be like. Keep food communication with your Rhuemy and track your flares.

My son started on a low dose nearly 6 weeks ago , the first couple of weeks he felt slightly flu like for 2 days after taking it, that has now passed and he has been feeling fine . He has been having good results already, though the dermatologist is talking about increasing the dose . He also takes plaquenil, the dermy said it would enhance the effect of the methotrexate. I hope you are able to tolerate it without side effects, best wishes 🌸🌸

Wrexlu profile image
Wrexlu in reply to weathervane

Thank you so do I. I am intolerant to quite a few drugs so will have to see how I get on. Xx

All the best

Hi Wrexlu,

I have been on methotrexate since March, i am on 25mg once a week, folic acid once a week, and ad cal d3 two tabs two times a day 7 days a week, I am still having flairs but my joint and muscle pain is a bit more under control, I am also on high dose steroids (30mg once a day). My rheumy is reducing my steroids slowly down from 40mg daily, because i have been on them over a year it takes longer to get off of them, you will have to be careful to stay away from people that are ill, as your immune system will be compromised, and if you do get any kind of flu like symptoms you will have to stop the methotrexate until you are better. My rheumy tells me that this is the difficult bit getting my meds right, but she says i will feel better.

So defo go for it, it wasn’t as frightening as I thought it was going to be. And it has made a difference, so good luck to you.

Wendy xxx

Took mtx for 10 years and it helped but I couldn't,'t take it all as single dose so had it over 2 days without the side effects - stonking headache and washed out. Pleaded to be off it now but still taking steroids which I will prob need for ever!! Gove it time but tell your doc about the side effects. Best wishes

Wrexlu profile image
Wrexlu in reply to Florence91

Thank you. Am hoping to have it by injection. Xx

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