Hello all,

It’s been a super long time since I’ve been on here. It’s crazy how fast time goes. Thought I’d give you all an update how things have been going.

I did the metho injections for about 8 weeks. I have now stopped as of maybe 3 weeks ago. I was getting a sick feeling but my head was making it worse. So I decided to stop because I need the head sorted out first before I can carry. It’s more of a head problem than an injection problem really.

I had an appointment with consultant 2 weeks ago. Took me a long time to calm down after that appointment. My last 2 blood test have shown a liver result. No one thought to ring and tell me that. So I went to my appointment month after the last blood test and she wanted me to get one done straight away to see if it had gone down. I told her if someone had bothered to ring me before the appointment I would have had one done.

She completely didn’t listen to me about the head stuff and feeling sick. She told me I need to get back on injections if bloods came back fine.

She also told me that by taking the injections everything will go back to how it use to be. Biggest load of rubbish I’ve heard. I’m not going to be able to make a fist again or do certain stuff by just taking the injections.

I saw my gp in the week. She has given me a self referral to some counselling. So I’m going to ring up for that soon.

I’ve also asked her for a referral to the lupus clinic in London. I want to go somewhere that actually might care. I’ve had enough of my hospital and the rheumatology team now.

In July i brought myself a Sociology level 3 course which I get a year to do. I’m currently behind schedule but hoping to find some motivation to do it from where.

I have a nurse appointment at the hospital tomorrow so hopefully she’ll tell me my bloods are fine now. Not optimistic for the appointment.

I have an occupational health appointment on the 15th. As at work I changed classes this year and now work with more able students so not a lot of hoisting. I can’t do certain things and my works moving and handling lady did me a personal risk assessment. The head wasn’t to happy about it so wants me to go for an appointment there. She’s told me not worry as she just wants to know what they can do to help me. I’ll update on how that all does when it happens.

On a more positive note my driving is going amazing. it was a whole year since I passed on the 22nd sep. My car passed it’s mot. My birthday is on Tuesday !

I hope everyone is keeping well. I’m going to re some posts now to see how everyone has been getting on xx