ANY IDEA ???

[Naz2005]

Hi keep getting realy bad pain in my shoulder & kneck achin pain in elbows & knee joints is this LUPUS (SLE) and night sweats at the back of my kneck in morning looks like somebody poured water over me fed up with all aches & pains cant live a normal life anymore everything has become restricted have become forget full aswell lossing a lot of hair proper gutted 😥😥😥feel useless & helpless

[lilly60]

Sorry to here you are suffering x

I myself have Lupus and have the aches and wet through all night

I am 66 now been through " The change" so isn't that also my quality of sleep is so poor

Noone seems to say anything just leave us to get on with it

Hope you find some answers and peace xx

[Misti31]

Sounds like it could be lupus or fibromyalgia (with the hair loss) hon .... hope you feel better soon xxx

[PMRpro]

Do you already have a diagnosis of lupus? If so, they are things that could be due to lupus but they could also be symptoms of a lot of different autoimmune disorders. You need to see your GP and get them to do some tests.

[SH55]

Oh dear. Really does sound like Lupus to me. I've been told we shouldn't have to feel lots of pain and that a change of drug might help. Worth a shot! And one that I am thinking of. I get a very wet head very easily and I hate it. The aches and pains come and go - sometimes months at a time in different parts of the body. Always find the elbows the strangest. They are ok at present but I never know when they will come back. Feeling sorry for you.

[Naz2005]

Thanks for advice just wish i could be pain free yes i have been diagnosed with LUPUS (SLE) by the time i get app to see doctor something else is wrong so i forget what reason the app was made for 😥😥😥

[LalSD]

Hello Naz2005, I have SLE and suffer from terrible neck and shoulder pain due to inflammation . Hair loss is another symptom and problem. Please do see your GB first to see if there is another underlying condition. I manage using black castor oil and keep hot water bottle on the inflamed area and take ibuprofen (800mg twice a day, your GP should be able to offer you this if you can take it) but I don't use ibuprofen more than three days and never regularly. The three days of this routine usually gives me a month or so relief from my pain. I addition, I drink beef broth (the old mother's recipe) to keep my strength and also use coconut oil on my hair with again mixed with castor oil. I have protein and lots of vegetable on my diet, lots of salad. I know most of us suffer from depression, who would not if they have to deal with SLE but I managed to get to a point where I can work full time and have some level of social life without further medication. I go to bed at 8.00pm during the week and on Saturdays go out for coffee and light shopping. I rest all day Sunday. If I do a bit more than this, I get a flare up with much pain. What I am trying to say is that, resting and eating well contributed to my partial recovery (whatever works for your body,drinking beef broth, and eating lots of vegetables, rubbing black castor oil on my inflamed areas helps me). If I do a little more activity, I get very very ill. I learned to say NO to friends. They learned to accept my answer. My daughter went through and go through the same. She was able to finish her degree in the same manner and almost died, but we fight with this SLE everyday. If you are vegetarian, replace beef broth with lentils or whatever your body finds acceptable. For instance, I can not eat eggs. Each one of us is different. I have a bath every morning to warm up my body. And we are here for each other. And don't give up. Please dont let Lupus define who you are. I learned to accept Lupus is part of my life but NOT my whole life. I battle with pain everyday but I learned to manage better. Just give yourself time to get better. I am not recovered yet but I can do things I could not do 5 years ago. You will too. Lots of love and hugs. Lx

[Naz2005]

Thank you sooo much xxx

[LalSD in reply to Naz2005]

Hope you are feeling better today. xL

[Naz2005]

Bless you im so glad you have managed your life style xxx