Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,937 members • 28,265 posts

All posts for March 2018

Getting used to a new normal?!

Hi all, Back on prednisone again. I've been back on for a month now, I've had 2 courses before but hated the side effects so came to a compromise to go in at a...

Hi all, Back on prednisone again. I've been back on for a month now, I've had 2 ...

Purple83

•6 years ago

2 Replies

Chronic illness caused by childhood trauma/chronic stress...Epigenetics and ACE studies. (Adverse childhood experiences)

OK, so I'm just learning about epigenetics and how childhood trauma can affect health across a lifetime. I'm finding it really interesting and something I will...

OK, so I'm just learning about epigenetics and how childhood trauma can affect h...

Annalouk

•6 years ago

10 Replies

Anyone have pain in collarbone where it connects to the sternum?

Anyone have pain in collarbone where it connects to the sternum? I've had it for months now it seems to be working its way up the front muscles of my neck!

Anyone have pain in collarbone where it connects to the sternum? I've had it for...

Mbminges

•6 years ago

4 Replies

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Lupus and Cannabis?

Hi Guys, I'm helping a friend who's suffering from lupus Does anyone ever tried using cannabis as an alternative meds? I have read many articles suggesting...

Hi Guys, I'm helping a friend who's suffering from lupus Does anyone ever tried ...

Colbye

•6 years ago

7 Replies

I think I've been diagnosed?!

Early December 2017 - Went to GP with what I thought was RA symptoms. A number of bloods taken. Late December - GP refers me to Rheumatology after blood...

Early December 2017 - Went to GP with what I thought was RA symptoms. A number o...

eescvc

•6 years ago

5 Replies

Can person with lupus go to waterpark?

I’m in malaysia and it’s very hot here. Like 33/34celcius. I have lupus, and recently my friends invited me to go to a waterpark and have some fun. Can i go?...

I’m in malaysia and it’s very hot here. Like 33/34celcius. I have lupus, and rec...

notnilla

•6 years ago

3 Replies

Need advice

Hi I need some advice please. My marriage is falling apart. My husband is very short tempered and aggressive with everyone especially with me. I am afraid...

Hi I need some advice please. My marriage is falling apart. My husband is very ...

Tulipano

•6 years ago

26 Replies

Fed up !!

I’m really fed up of feeling so Ill . Last few days have been a nightmare . Muscle fatigue , night sweats, burning pain in legs , and every bone in my body...

I’m really fed up of feeling so Ill . Last few days have been a nightmare . Musc...

Angelamarston1963

•6 years ago

9 Replies

Medical exemption

Hi, Just wondering why Lupus sufferers don't receive prescription exemption? Appreciate reasons about this. Sk1s

Hi, Just wondering why Lupus sufferers don't receive prescription exemption? Ap...

Sk1s

•6 years ago

19 Replies

New research! Apparent link between bacteria and autoimmune conditions (I feel hopeful)

Enterococcus gallinarum is the named villain... could it be possible that this nightmare of having lupus is just a vaccine and antbiotic away?? Any thoughts? A...

Enterococcus gallinarum is the named villain... could it be possible that this n...

1sam

•6 years ago

9 Replies

Has anyone had a rash like this??

Oh, I found how to post photos..Thanks you lisalou... kind of blurry, but this rash was lead me to my lupus DX...I had it biopsied..along with Blood work. That...

Oh, I found how to post photos..Thanks you lisalou... kind of blurry, but this r...

leslieliesel

•6 years ago

25 Replies

Sainsbury's Thumbs UP

Hello everyone Just thought I'd share this with you all. Have been shopping at my local Sainsbury's this morning and needed the loo. I went to the disabled...

Hello everyone Just thought I'd share this with you all. Have been shopping at m...

misty14

•6 years ago

41 Replies

Pain In Big Toe???

Hey all 🌹 I’m not sure what’s happening, but over the last week I’ve had shooting & stabbing pains in my right big toe. I thought at first it could be...

Hey all 🌹 I’m not sure what’s happening, but over the last week I’ve had sho...

LauraMk30

•6 years ago

19 Replies

Pain in multiple areas

I have been experiencing pain in multiple areas of my body, right now I feel like there is a blockage at the top of my chest and have mainly been experiencing...

I have been experiencing pain in multiple areas of my body, right now I feel lik...

Danarose

•6 years ago

1 Reply

Advise for my 73 year old dad

Hi, I’m new on here but wanted some advise for my dad who was diagnosed 3 years ago now with Lupus. His quality of life is awful; he has one good day then a...

Hi, I’m new on here but wanted some advise for my dad who was diagnosed 3 years ...

LouBLou13

•6 years ago

10 Replies

What do you take ?

So I am meant to take 2 hydroxy a day. I haven’t taken them for nearly a month and a half . I feel no different to when I did take them . So I plan to tell the...

So I am meant to take 2 hydroxy a day. I haven’t taken them for nearly a month a...

LouLamb

•6 years ago

42 Replies

Painful hands/arms

I’m in flair and on 40mg steroids plus x2 hydroxy per day. Doing really well but this evening my hands/arms are SO painful. I’ve been quite physically active...

I’m in flair and on 40mg steroids plus x2 hydroxy per day. Doing really well but...

Sin123

•6 years ago

3 Replies

CTD -How often are you seen by specialist and how often do you have tests

So as mentioned befkre my lovely, understanding and supportive dermy who diagnosed me retired over xmas. Be told me i'd be seen every 3 months for first two...

So as mentioned befkre my lovely, understanding and supportive dermy who diagnos...

Thereisalight

•6 years ago

3 Replies

Need To Pick Brains Again!

Hey, so as from previous posts I am undiagnosed but on hydroxychloroquine. I have a lot of GI problems but don’t know if they are related or not. I had blood...

Hey, so as from previous posts I am undiagnosed but on hydroxychloroquine. I ha...

LLH76

•6 years ago

6 Replies

When the invisible disease becomes visible - the irony only you all will understand!

As we all spend a lot of time talking about the many times when friends/ family (and doctors!) just can’t comprehend our diseases because of our invisible...

As we all spend a lot of time talking about the many times when friends/ family ...

Melba1

•6 years ago

14 Replies

Causes of autoimmune conditions. No studies done?

There appear to be so many possible causes for conditions that ALL fall under autoimmune diseases. We treat symptoms and not any root cause. Because its not...

There appear to be so many possible causes for conditions that ALL fall under au...

rubina786

•6 years ago

81 Replies

What happens when symptoms return after starting hydroxychloroquine ?

Hi, I was recently diagnosed with Utcd and started on hydroxychloroquine 400mgs daily, all was going well until this month when my symptoms returned though not...

Hi, I was recently diagnosed with Utcd and started on hydroxychloroquine 400mgs ...

suky6

•6 years ago

7 Replies

Beneficial dietary changes

I am really curious if any of you have found that any type of dietary changes have decreased your symptoms or made them go away? Or if there is any supplements...

I am really curious if any of you have found that any type of dietary changes ha...

nanleighh

•6 years ago

18 Replies

Why do my hands hurt so much!!! Stiff and rash appears . Hands are very red compared to normal. Dark red blotches on palm

I’ve no diagnosis Up until recently my symptoms mainly affected my face!!! Now I’m getting extreme pain in my hands with a rash and very dry. Can anyone...

I’ve no diagnosis Up until recently my symptoms mainly affected my face!!! Now...

Lisalou19

•6 years ago

16 Replies

Unexplained chest pains

Hi I'm New, I have been wrestling with Lupus for the past 28 years. For quite a few months now, I find that after exertion like mopping the kitchen floor Or...

Hi I'm New, I have been wrestling with Lupus for the past 28 years. For quite a...

JanJan63

•6 years ago

7 Replies

Kidney infection and wonder GP no.2

Yesterday I had my monthly bloods done despite no longer being on MMF. Due to my own private renal worries re the tremors and twitches and sporadic pain in...

Yesterday I had my monthly bloods done despite no longer being on MMF. Due to my...

Hidden

•6 years ago

8 Replies

PIP Award Review

I wasn't expecting this, because my PIP award runs until next year. This form panicked me (I think we all expect to be refused). I rang Welfare Rights at my...

I wasn't expecting this, because my PIP award runs until next year. This form pa...

Lupiknits

•6 years ago

17 Replies

Harrumph!

Consultation for results of my scan and nerve conduction tests yesterday evening. Nerves normal. Really? They’re in tatters cos they lost my blinkin’ MR scan!...

Consultation for results of my scan and nerve conduction tests yesterday evening...

MsAndyIvy

•6 years ago

9 Replies

How do u know if you're having a flare?

What symptoms do you all have when flaring? Recently my rhemy therapist suggested I could be flaring most the time and felt surprised by this?

What symptoms do you all have when flaring? Recently my rhemy therapist suggeste...

flowflow

•6 years ago

9 Replies

Gastroscope with stomach full

Hi all, I'm due a gastroscope next week but previous tests show my stomach doesn't empty properly (possibly due to schloderma). I'm very nervous about the test...

Hi all, I'm due a gastroscope next week but previous tests show my stomach doesn...

flowflow

•6 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2018

Getting used to a new normal?!

Chronic illness caused by childhood trauma/chronic stress...Epigenetics and ACE studies. (Adverse childhood experiences)

Anyone have pain in collarbone where it connects to the sternum?

Lupus and Cannabis?

I think I've been diagnosed?!

Can person with lupus go to waterpark?

Need advice

Fed up !!

Medical exemption

New research! Apparent link between bacteria and autoimmune conditions (I feel hopeful)

Has anyone had a rash like this??

Sainsbury's Thumbs UP

Pain In Big Toe???

Pain in multiple areas

Advise for my 73 year old dad

What do you take ?

Painful hands/arms

CTD -How often are you seen by specialist and how often do you have tests

Need To Pick Brains Again!

When the invisible disease becomes visible - the irony only you all will understand!

Causes of autoimmune conditions. No studies done?

What happens when symptoms return after starting hydroxychloroquine ?

Beneficial dietary changes

Why do my hands hurt so much!!! Stiff and rash appears . Hands are very red compared to normal. Dark red blotches on palm

Unexplained chest pains

Kidney infection and wonder GP no.2

PIP Award Review

Harrumph!

How do u know if you're having a flare?

Gastroscope with stomach full

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