So as mentioned befkre my lovely, understanding and supportive dermy who diagnosed me retired over xmas. Be told me i'd be seen every 3 months for first two years to see how disease developed. Then i'd be seen every 6 months. The new one is nice enough but told me i only need to be seen anually and even people with established lupus get seen anually unless unwell. Is that true? What tests do you have done regularly and how often?
To be honest, i have not been to unwell. My main issues being the LPR or silent reflux symptoms on my throat which i cant shift and possibly a very small benign (adenoma) deep in my parotid gland wbich if confirmed needs removing with major risk to facial nerve damage. Still this disease scare me and i feel my body is not the same since diagnosis and feel i should be seen regularly like my first doc said.