LUPUS UK
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PIP Award Review

I wasn't expecting this, because my PIP award runs until next year. This form panicked me (I think we all expect to be refused). I rang Welfare Rights at my council because they helped so much last time. This form has a tick box, asking if anything has improved, got worse, or stayed the same. If there are changes, you are asked to say what they are.

I'd say my Raynaud's is much worse, but everything else is the same. I get the full care allowance which is currently letting me not worry about fuel bills. Welfare Rights have advised that I just tick all the "stayed the same" boxes and let DWP know what meds I'm on.

I'm told some are asked to attend an assessment following the review, but not many. Has anyone else had this form?

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I am in the same position got my review form 28 December a year before my pip comes to the end I filled it in sent medical proof and ticked the boxes ,I was advised that most people have to have a face to face have not got a response from DWP yet this really is making me very ill it's the not knowing and the worry of being rejected you read such horrendous story's I hope things go well for you

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Thank you Junebee. This is a year before my PIP is due to end, too. I'm trying to think of it as an automatic check. When I first filled in PIP ( I had DLA previously) they were so fast in giving me an assessment date it made my head spin. I'll try to take the "no news is good news" route and if I hear nothing after I return the form, all is fine.

I just wish that we didn't have to sweat for this.

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I think they announced recently that all those awarded PIP will now be reassessed due to those with mental health conditions having been refused the full award.

This is because, until now, a person has get some points in the “moving around” section in order to qualify for the higher rate. People with primary mental health conditions and no mobility issues therefore were ineligible for the full award.

After much lobbying from mental health charities, Parliament decided that the DWP was wrong and this has led to everyone who presently receives PIP being reassessed. This is how I’ve understood it anyway - as someone still awaiting appeal tribunal.

I really hope that the DWP don’t start taking money away from those with physical disabilities such as yourself, in order to be able to make up the financial difference? Hopefully it won’t actually affect you at all but I completely understand your anxiety.

My BP soars and I become tachycardic just thinking about PIP presently. X

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The announcement of the review for thise with mental illness who were unjustly penalised on the mobility component made me assume DWP and others would be much busier Twitchy. Perhaps, just maybe, who knows, this may well be a computer-driven administrative check up on randomly selected recipients?

I'd love to know if everyone who receives PIP gets this award review.

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I will ask my sister, who also gets full rate. I just think, similarly to the whole gender pay gap thing, they are going to have to recoup somehow. But I’m feeling daily more aware of the impact of living with our diseases and, six months since my assessment now, have a fierce determination I didn’t have back then. I somehow very much doubt they will retract yours so please try not to worry. Xx

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Thanks Twitchy x

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Hi and thanks for your post. I have not received any forms yet. Take care. xxx

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I have received my review forms in December fill them out and return them in January and then viola! I got a letter for assessment. My situation has gotten worse so I ticked that on the review forms. I sent in evidence of my current illness to Dwp. Yep lo and behold... I am scheduled for an assessment today. But hopefully they won’t call you in for one fingers cross x

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I hope it goes well x

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My son received his tick form over a year early we sent it back in the June and he had a home visit for assessment in September. They stopped his money at the end of October even though his original award still had 11 months to go. His claim was based on learning diaabilty though not a physical illness. If your Raynaulds is worse tell them do not leave any details off.

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I think I'd go to the carers trust for impartial advice of you have one in your town. They'll have up to date information and will help you fill it out. They are usually lovely people and very knowledgeable. Hope that helps

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I had to fill out a review form a year before it was due to run out, I had an interview and then they decided to stop my payments. So I have appealed - just waiting to hear - but please note that 65% of appeals are overturned - that’s very high - so I would recommend everyone that’s turned down to appeal - you have nothing to lose and you don’t have to go there in person - just send the appeal form off which is a relatively easy process - the appeals people do everything else for you xx good luck xx

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Thanks for the responses. If I'm turned down in any way I shall definitely appeal

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Hi Lupiknits, I also had my pip review a year early, it seems that's the norm. I ticked the no change box and sent in recent info from rheumatology and dermatology. Low and behold I received an appointment in Newcastle! I live in York! It was the middle of summer and I've bad sun and light issues. To cut a long story short, I involved my local MP to save me getting as stressed as previous times and requested a home visit. I finally got a home visit from a really nice lady assessor who had drove all the way from Newcastle! 🤷 Anyhow she said that most people are filling the review forms in incorrectly. They need to treat it like the 1st form and put as much info as poss and send in all new evidence. Apparently DWP have not explained this very well, no kidding! I did get my pip awarded again, but have learnt that any further forms I receive from dwp will be getting sent bk with as much info as possible regardless of what they actually ask for.

Good luck with your claim Lupiknits

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Hi lupiknits

Seems so ridiculous your having to do this pip review early!. I am still on DLA and are waiting for the dreaded nvite to claim pip!. It's been three years waiting to be asked, one of the last!. Best of luck with it , do hope you won't be called for an assessment. X

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Something has occured to me: at a time of cuts, and given that PIP, in the scheme of things is relatively small beer and has the lowest rate of fraudulent claims, why is all the money being spent of assessments, interim assessments, next assessments? A humble tax payer would like to know 😢

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I also wld be very interested in knowing the answer too Lupiknits. It doesn't take an idiot to work out the short cut wld be to ask our medical team if our conditions remain the same or worse. Cutting out the assessment, the assessor, the travel, the expense of a tribunal and even the money spent on providing the building/room for these assessments to take place in. Our gp's cld even have an half hour appointment with us giving us an up-to-date review to send bk to dwp.

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