Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,937 members • 28,267 posts

All posts for March 2018

The latest in tracking down the culprit in this mystery

Well, another episode in "As the Stomach Turns"... (Just my attempt at my usual dark sense of humor). My eagerly (?) anticipated appointment with the...

Well, another episode in "As the Stomach Turns"... (Just my attempt at my usual ...

DRunnerchick

•6 years ago

6 Replies

Humidifier?

So, recently, my pains have worsened overtime. Now, I get pains without knowing its about to rain, and these pains are terrible. However, when the pain is...

So, recently, my pains have worsened overtime. Now, I get pains without knowing ...

Stephanie0210

•6 years ago

2 Replies

Brain Fog leading to an unnecessary operation on the cat!!

This is quite a long anecdote but I hope it will make you smile. (The cat is NOT happy!). I'm having a flare up - first "known" FU and it has led to a speedy...

This is quite a long anecdote but I hope it will make you smile. (The cat is NOT...

HeKe

•6 years ago

12 Replies

Want to take advantage of all our features? Just log in!

Hope everyone is feeling as pain free, and fog free as possible today.

have to bake a cake today, how I don't forget anything.

Aralyn

•6 years ago

4 Replies

Negative Bloods for Lupus

Hi all, I'm new to the Lupus sight but have hEDS but haven't had genetics test. Seeing a Rhuematoligist soon as well as Dr Hakim in London who've I've red...

Hi all, I'm new to the Lupus sight but have hEDS but haven't had genetics test. ...

Ladyuponthelake

•6 years ago

6 Replies

Flare advice

Hi gang I’m in the middle of a flare which I think began over a month ago but my rheumatologist prescribed me with steroids so all the pain went away for...

Hi gang I’m in the middle of a flare which I think began over a month ago but my...

_bunty_

•6 years ago

15 Replies

Hormones???

Hi, i’m Undiagnosed (waiting for Rheumy appointment after 2 positive ANA’s) but am wondering if there is a link with hormones and flair ups? I’ve not been...

Hi, i’m Undiagnosed (waiting for Rheumy appointment after 2 positive ANA’s) but ...

abt84

•6 years ago

12 Replies

Creatinine levels going up after 4 weeks on cellcept and prednisone and 3 iv infusions...anyone with similar experience?

Hi my husband has been diagnosed with Lupus nephritis class 3 after a kidney biopsy last month. His creatinine levels as he started his meds were down to 130...

Hi my husband has been diagnosed with Lupus nephritis class 3 after a kidney bio...

C17ley

•6 years ago

3 Replies

Medrol injection

I had a Medrol injection early December and it was brilliant. I started hydrochloroquine end of Dec but symptoms started creeping back in during February. 4...

I had a Medrol injection early December and it was brilliant. I started hydrochl...

Kazwaz1980

•6 years ago

7 Replies

Help

Started on mycophenolate yesterday and about 5 hours after 2nd dose I was violently sick. I did on and off through the night and now have strained muscles....

Started on mycophenolate yesterday and about 5 hours after 2nd dose I was violen...

janann

•6 years ago

8 Replies

Hi all, new here & advice needed please

So I’ve been really quite unwell for some time now and after being referred I finally saw a rheumatologist consultant last month. He said I needed to be...

So I’ve been really quite unwell for some time now and after being referred I fi...

lisa___s

•6 years ago

25 Replies

Lupas and Asthma

Hello, I just recently tested positive for Lupus and I have a question for you. Any idea of the percentage of people here in the Lupus UK community also have...

Hello, I just recently tested positive for Lupus and I have a question for you. ...

BillCull

•6 years ago

3 Replies

Reflexology

Just wondering if anyone has tried this and did they find it beneficial? Best wishes Kevin

Just wondering if anyone has tried this and did they find it beneficial? Best wi...

Kevin53

•6 years ago

5 Replies

ANA POSITIVE

I’ve recently been referred to a specialist clinic due to my high antibodies & prescribed Hydroxychloroquine, I’m not sure what these are for as I was just...

I’ve recently been referred to a specialist clinic due to my high antibodies & p...

Lisas_tired

•6 years ago

7 Replies

New rash

Hi all, I’ve recently stared getting a new rash - hurrah *rolls eyes* It’s across my chest - red and blotchy, but not raised or itchy. It tends to be worse in...

Hi all, I’ve recently stared getting a new rash - hurrah *rolls eyes* It’s acro...

Nurseladybird

•6 years ago

4 Replies

Strange smells again 😷🤢

Well it’s happening again ! About 10-12 months ago kept smelling smoke even though no one in the house smokes or is around anyone that smokes . I asked the...

Well it’s happening again ! About 10-12 months ago kept smelling smoke even thou...

weathervane

•6 years ago

31 Replies

Does Costochondritis is felt on the arms and fingers?

feel needle in my hands.

Uluivuda

•6 years ago

3 Replies

Happy Birthday

Wishing our friend Curly1430 a very Happy Birthday. Hope you have a fantastic day xx

Wishing our friend Curly1430 a very Happy Birthday. Hope you have a fantastic d...

CarolMcl

•6 years ago

10 Replies

Can lupus disappear?

Hi! I was diagnosed with SLE in December 2000. I had positive dsDNA, ANA, high ESR, low C3/C4 complement levels, elevated liver enzymes, elevated serum...

Hi! I was diagnosed with SLE in December 2000. I had positive dsDNA, ANA, high...

Jenn22M

•6 years ago

8 Replies

Symtoms

Hi am a married Lady with 3 kids..and lately have been feeling slight sharp pains on my chest muscles on my upper left breast. the pain comes and goes..am...

Hi am a married Lady with 3 kids..and lately have been feeling slight sharp pain...

Uluivuda

•6 years ago

2 Replies

My very ill dog

Hi everyone just had to talk to someone. My dog has just been diagnosed with autoimmune haemolytic anaemia. He has to have a blood transfusion and...

Hi everyone just had to talk to someone. My dog has just been diagnosed with aut...

Josieswolf

•6 years ago

17 Replies

Anyone else going?

https://www.facebook.com/events/1735270473151140??ti=ia Hi, just wandering if anyone on here is looking to go to the South London Lupus lecture on Saturday...

https://www.facebook.com/events/1735270473151140??ti=ia Hi, just wandering if a...

LLH76

•6 years ago

3 Replies

dsDNA

Hi I have been searching the internet for what constitutes a high dsDNA. Mine is dsDNA crithidia positive = 252, is this high? I have been diagnosed with SLE,...

Hi I have been searching the internet for what constitutes a high dsDNA. Mine is...

pollydolly45

•6 years ago

4 Replies

Loss of appetite what is wrong!?

I have not been hungry for the past two days but I have been eating minimal because I feel like I should have energy in my body. I am a girl and my period is...

I have not been hungry for the past two days but I have been eating minimal beca...

Poolprteez

•6 years ago

1 Reply

Fed up tbh

I’m not sure I can do ‘chipper’ at the moment. Woo Hoo is a past memory. I’m literally floored physically and mentally.

I’m not sure I can do ‘chipper’ at the moment. Woo Hoo is a past memory. I’m lit...

MsAndyIvy

•6 years ago

11 Replies

Hello

Hi everyone! I am new to this site, and I'm not in the UK, but I bounced in where I saw a question of someone having had a positive DSdna then a negative. I...

Hi everyone! I am new to this site, and I'm not in the UK, but I bounced in whe...

BEAMY7

•6 years ago

5 Replies

Rituximab

Hello everyone I have lupus and tried lots of different treatments my consultant has now decided on Rituximab as the next step anyone out there who has had...

Hello everyone I have lupus and tried lots of different treatments my consultant...

Motherof4withlupus

•6 years ago

3 Replies

Jaw appointment

So went to an appointment for my jaw this morning. It was a waste of time . They basically just said that I have a tighter left side jaw than my right side....

So went to an appointment for my jaw this morning. It was a waste of time . The...

LouLamb

•6 years ago

11 Replies

Lupus diagnosed

Hello I've had the results of my blood tests and Lupus has been confirmed. I've been referred to a rheumatologist. Can anyone advise me of what happens from...

Hello I've had the results of my blood tests and Lupus has been confirmed. I've...

HeKe

•6 years ago

4 Replies

Woo Hoo-less and harrumphing galore.

Morning all! Meet my bruise (well one of them). Feeling all woo hoo I confidently assumed I’d get dolled up for my Mother’s Day meal and have a lovely time....

Morning all! Meet my bruise (well one of them). Feeling all woo hoo I confident...

MsAndyIvy

•6 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2018

The latest in tracking down the culprit in this mystery

Humidifier?

Brain Fog leading to an unnecessary operation on the cat!!

Hope everyone is feeling as pain free, and fog free as possible today.

Negative Bloods for Lupus

Flare advice

Hormones???

Creatinine levels going up after 4 weeks on cellcept and prednisone and 3 iv infusions...anyone with similar experience?

Medrol injection

Help

Hi all, new here & advice needed please

Lupas and Asthma

Reflexology

ANA POSITIVE

New rash

Strange smells again 😷🤢

Does Costochondritis is felt on the arms and fingers?

Happy Birthday

Can lupus disappear?

Symtoms

My very ill dog

Anyone else going?

dsDNA

Loss of appetite what is wrong!?

Fed up tbh

Hello

Rituximab

Jaw appointment

Lupus diagnosed

Woo Hoo-less and harrumphing galore.

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive