Hi,
I’m new on here but wanted some advise for my dad who was diagnosed 3 years ago now with Lupus. His quality of life is awful; he has one good day then a few bad ones which seems to be the sequence of things. His hands swell up and he is in such pain with his joints that when this occurs, he gets no sleep.
He had a stroke 4 years ago which he has recovered well from but there is always the fear that he’ll have another one.
He is now worried that his one of his eyes the vision is a bit flaky and at the moment his white blood cells are low which he is seeing his gp about on Monday.
He can’t exercise as he is to weak and can’t sit in the sun as any exposure brings on a flare.
Is there anyone that can give advise for his hands swelling and joint pains other than painkillers? Have tried wheat bag heat.
Thank you for listening.
I am Rosh I am a male sufferer of Lupus. I have had Lupus since childhood. If you need more advice do not hesitate to share you concerns on this page if you google Lupus org Uk and click on St Tomas home page and patient story and my name is Roshan you would find my life with Lupus and it is not all doom and gloom.
Thank you Roshirami, that’s really reassuring to hear. I’ll take a look at your story.