New research! Apparent link between bacteria and ... - LUPUS UK

LUPUS UK

31,937 members28,267 posts

New research! Apparent link between bacteria and autoimmune conditions (I feel hopeful)

1sam profile image
1sam
9 Replies

Enterococcus gallinarum is the named villain... could it be possible that this nightmare of having lupus is just a vaccine and antbiotic away??

Any thoughts?

A link to the original article is within this

news.yale.edu/2018/03/08/en...

science.sciencemag.org/cont...

Written by
1sam profile image
1sam
To view profiles and participate in discussions please or .
Read more about...
9 Replies
Barnclown profile image
Barnclown

Thanks for these links! VERY INTERESTING!

Immunology has had me on daily antibiotics for several years now due to bone marrow dysfunction (hypogammaglobulinaemia/CVID...which arose way before treatment with immunosuppressants). For sure, both these antibiotics AND my daily lupus meds are helping me A LOT. But i definitely need all these meds. Have my 6 monthly immunology appt soon...will ask about Enterococcus gallinarum & this research

🍀🍀🍀🍀 coco

1sam profile image
1sam in reply to Barnclown

Good! Please let us know if your immunologist opinion.

You are a strong lady, having to deal with your conditions!.... I'm happy you are already on antibiotics :)

Very interesting 1sam - oddly I find that antibiotics have, in the past, helped with my neuropathy in a way that nothing else ever has.

I’m presently on one, Co-trimoxazol, for a kidney infection, and since starting it 4 days ago my night waking tremors have eased up, as has my dizziness and vertigo. My gastroenterologist said that the gut is always involved in autoimmune diseases.

1sam profile image
1sam in reply to

Well, now that you mentioned it I remember that my first "official" lupus fiare was confused with some infection. Antibiotics made me feel better but when the 10 days treatment stooped, fever and pain returned.

I'm happy that you are feeling better now :) I hope your symptoms stay eased.

Samantha

Treetop33 profile image
Treetop33

Fascinating. I'm on a diet to 'heal my gut' though its slow going. I feel I should take more probiotics etc. But if they could just target the culprit that would be an amazing breakthrough.

1sam profile image
1sam in reply to Treetop33

Amazing! agree.

Please let us know how your diet is going... I'm constantly looking for new tips.

Samantha

Treetop33 profile image
Treetop33 in reply to 1sam

There are lots of different versions: going purely plant based, Paleo, AIP. Often it's about what makes us feel better. What people agree on is no processed foods, low carb if you are on steroids, no gluten and then see if there's anything else you may be sensitive to (Lupus makes us sensitive, which complicates things!).

My diet, which is broadly Paleo, is going ok. After an initial lowering of antibodies, nothing much has happened since. I think my problem is different though.

1sam profile image
1sam

Oh, there is an specific test for enteroccoccus ? Interesting... which Dr orders them? GP, rheumy...?

Thanks dear

johare profile image
johare

I think there has to be a correlation between a health immune system and a health gut as the digestive system spends a lot of time excreting antibodies from the gut lining. Its just how the two interact in autoimmune conditions and why this particular bacteria is so important. Surely it cant be to blame for all the auto immune conditions. But it could be a start to understanding a trigger at least.

You may also like...

Thought I'd be brave and share this! I hope it evokes some commonly shared feelings...I’ve posted it once before but took it down!

lifetime of scars from unspoken wars, they mingle within her unique design and become one. See how...

Immune compromised patients boosters

far behind. https://www.google.com/amp/s/www.wsj.com/amp/articles/fda-covid-19-vaccine-booster-plan

Does anyone have trouble with arthritis in their hand? What has been done about it?

Within the past 6 months my fingers have been hurting, especially my poi ter finger on my right...

mouth ulcer remedy suggestions, pls

from a flare and I've got a mouth ulcer positioned within an awkward place on the roof of my mouth....

Plaquenil and Calcium/Vit D

packet does say not to take antacids for 2 hours within taking Plaquenil but I didn't realise that...