Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,072 members • 28,394 posts

All posts for February 2018

Stiff painful knees

Just wondering if any of you have pain in knees like this I get up in the morning no prob work all day the odd twinge get home have bath sit down then when I...

Just wondering if any of you have pain in knees like this I get up in the mornin...

Ianrussell69

•7 years ago

5 Replies

Teeth

I feel like I’m constantly asking questions lately, so I apologise if anyone is bored of me. Does anyone have problems with their teeth? In the last few...

I feel like I’m constantly asking questions lately, so I apologise if anyone is ...

Tinkerjack1912

•7 years ago

11 Replies

Still no relief

Hi from the United States still another month and no diagnosis. At the recommendation of my rheumatologist I am seeing another neurologist soon this one...

Hi from the United States still another month and no diagnosis. At the recommen...

I814u24u

•7 years ago

1 Reply

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Need free gym

I normally use my local community leisure centre (swimming and gym). I would prefer swimming but the present state of my fingers makes it very difficult to...

I normally use my local community leisure centre (swimming and gym). I would pr...

ijeasike

•7 years ago

2 Replies

Sjogren’s syndrome secondary to SLE

Saw my eye consultant yesterday, I am still after a year, unable to tolerate any of the hydrating drops that I've tried and yesterday the doctor said that my...

Saw my eye consultant yesterday, I am still after a year, unable to tolerate any...

creaky

•7 years ago

87 Replies

Delete my posts

How do I clean up some of my questions can't seem to delete any.

molly19

•7 years ago

2 Replies

Pain

Having a lot of pain. Sometimes so bad cannot function. What do you do?

nancarolyn

•7 years ago

2 Replies

CBD drops

Hello my name is Kim, Im nearly 50 and was told last year by my doctor that I had Lupus. My symptoms are extremely painful joints, muscle pain, headaches,...

Hello my name is Kim, Im nearly 50 and was told last year by my doctor that I ha...

KimW4

•7 years ago

12 Replies

Are these Lupus Symptoms?

Are these symptoms for Lupus? I’m 17 years old and recently I have been having several health problems in the last 3 years. The first things that started was...

Are these symptoms for Lupus? I’m 17 years old and recently I have been having ...

Tamia18

•7 years ago

2 Replies

Has anyone had withdrawal symptoms from stopping Methotrexate?

Hi, I am new here! I was diagnosed with SLE 3 years ago (lots of joint swelling) and have gradually reduced my methotrexate dose from 25mg, stopping it 3 weeks...

Hi, I am new here! I was diagnosed with SLE 3 years ago (lots of joint swelling)...

Joanna098

•7 years ago

7 Replies

Am I being thick? ANA

Brain fog aside, am I being thick? Managed to get my full set of blood test results off GP today to send to rheumy. Is ANA generally reported as ‘ANA’ or does...

Brain fog aside, am I being thick? Managed to get my full set of blood test resu...

MsAndyIvy

•7 years ago

11 Replies

Poetry

This week I attended a poetry reading by Polly Atkin . A few thoughts from the evening.... In 2014 she was diagnosed with one of the Ehlers Danlos Syndromes...

This week I attended a poetry reading by Polly Atkin . A few thoughts from the e...

Kevin53

•7 years ago

3 Replies

Anxiety

Does anyone else suffer random but rather crippling anxiety? I’ve just read that some of our lupus meds can cause it? X Any advice would be most appreciated x

Does anyone else suffer random but rather crippling anxiety? I’ve just read that...

JennaeClifford

•7 years ago

2 Replies

Thyme!!! Pain reliever?

Good morning. I just wanted to share a new discovery. Read thyme in hot water (I add it to my tea), can help against bronchitis, and ironically “lupus” was...

Good morning. I just wanted to share a new discovery. Read thyme in hot water (I...

Natura

•7 years ago

2 Replies

Cyclophoshamide pulsed dose for lupus

Helo everyone, Has any one had the above chemo treatment for Lupus? Did it help? My doctor wants me to havr it. I am a bit concerned because of the side...

Helo everyone, Has any one had the above chemo treatment for Lupus? Did it help?...

annben

•7 years ago

6 Replies

Misdiagnosed

Can lupus be misdiagnosed by a doctor? Because doctor diagnosed me as lupus last year under ITP. My platlet count was low. It shown as 7. Thought it was dengue...

Can lupus be misdiagnosed by a doctor? Because doctor diagnosed me as lupus last...

notnilla

•7 years ago

6 Replies

Excruciating pain

Hi everyone miss yall☺☺☺ been along time now...as u all know my sister has sle..she on predisilone 20mg 7 tabs aday following alot of potassium.. i spoke to...

Hi everyone miss yall☺☺☺ been along time now...as u all know my sister has sle.....

Hidden

•7 years ago

2 Replies

Scalded Hand & Fingers

Hey 😢 Saturday evening I accidentally scalded my hand palm & fingers whilst trying to make a hot water bottle. I’ve had episodes of numbness & loss of...

Hey 😢 Saturday evening I accidentally scalded my hand palm & fingers whilst tr...

LauraMk30

•7 years ago

5 Replies

Agonising pain after steroid taper

Hi all. I have seroneg sjogrens, A.S and recently developed acute colitis. Been suffering with trigeminal neuropathies but nothing I couldn't handle. Did a 5...

Hi all. I have seroneg sjogrens, A.S and recently developed acute colitis. Been ...

Joanna36

•7 years ago

3 Replies

Rantish thing

Hey everyone :) i feel a bit bad about complaining but I think I need to vent. So after recently seeing my specialist I had some higher liver function test...

Hey everyone :) i feel a bit bad about complaining but I think I need to vent. S...

Penguintaz

•7 years ago

8 Replies

Can myoclonic Jerking be Lupus related?

With a history of Lupus I struggle with infrequent, yet sometimes severe, myoclonic jerks. We have yet to Identify a trigger but a full body jerk can bring me...

With a history of Lupus I struggle with infrequent, yet sometimes severe, myoclo...

CBShirley

•7 years ago

7 Replies

Weight loss

So i am wanting to lose weight. I can be quite lazy after work i will go straight to bed and do nothing on weekends. I wondered if anybody else struggles with...

So i am wanting to lose weight. I can be quite lazy after work i will go straigh...

LouLamb

•7 years ago

27 Replies

Ladies and lupus

I can't remember - have I posted this before? https://www.medpagetoday.com/rheumatology/lupus/70819 Study Suggests Why Women Outnumber Men in Lupus

I can't remember - have I posted this before? https://www.medpagetoday.com/rheum...

PMRpro

•7 years ago

2 Replies

Mycophenolate and loss of appetite...?

Hi does anyone else suffer with this as a side effect of mycophenolate? I was on it and had no appetite at all for several weeks was only eating biscuits had...

Hi does anyone else suffer with this as a side effect of mycophenolate? I was on...

Sara_A

•7 years ago

4 Replies

Male TRT

Any males had any luck with TRT?

Shaunnn

•7 years ago

2 Replies

Does a very high speckle pattern result mean lupus?

Have been seeing a new Dr. for my scoriatic arthritis. I have been on 1000 mg of hydroxyvhloroquin for around 10 yrs now. My speckled pattern is 289 and should...

Have been seeing a new Dr. for my scoriatic arthritis. I have been on 1000 mg of...

Hidden

•7 years ago

7 Replies

Vibration tests

Just got ‘baffled’ rheumatologist’s report apparently my right foot doesn’t respond to vibration test ( tuning fork thing). I could feel it every where else...

Just got ‘baffled’ rheumatologist’s report apparently my right foot doesn’t resp...

MsAndyIvy

•7 years ago

6 Replies

Multiple autoimmune conditions. Lupus too?

Where to start!I've been quite poorly with scleroderma, and I also have PBC, Sjogrens, and hypothyroidism. I have osteoarthritis and hyper flexibility joint...

Where to start!I've been quite poorly with scleroderma, and I also have PBC, Sjo...

MissusTee

•7 years ago

4 Replies

Trial stop of hydroxychloroquine

Hi, I’m not formally diagnosed but have been on hydroxy for about 6 months, I think it has helped but obviously that’s been a slow and subtle response. Has...

Hi, I’m not formally diagnosed but have been on hydroxy for about 6 months, I th...

LLH76

•7 years ago

24 Replies

Sjogrens/lupus

Hi everyone, following from previous post around 6 months ago, the doctor I thought was going to be helpful actually wasn’t :(( I explained about how I’m...

Hi everyone, following from previous post around 6 months ago, the doctor I thou...

Lisas_tired

•7 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2018

Stiff painful knees

Teeth

Still no relief

Need free gym

Sjogren’s syndrome secondary to SLE

Delete my posts

Pain

CBD drops

Are these Lupus Symptoms?

Has anyone had withdrawal symptoms from stopping Methotrexate?

Am I being thick? ANA

Poetry

Anxiety

Thyme!!! Pain reliever?

Cyclophoshamide pulsed dose for lupus

Misdiagnosed

Excruciating pain

Scalded Hand & Fingers

Agonising pain after steroid taper

Rantish thing

Can myoclonic Jerking be Lupus related?

Weight loss

Ladies and lupus

Mycophenolate and loss of appetite...?

Male TRT

Does a very high speckle pattern result mean lupus?

Vibration tests

Multiple autoimmune conditions. Lupus too?

Trial stop of hydroxychloroquine

Sjogrens/lupus

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