Vibration tests

[MsAndyIvy]

Just got ‘baffled’ rheumatologist’s report apparently my right foot doesn’t respond to vibration test ( tuning fork thing). I could feel it every where else but there.

Anyone else have this?

Ta

[Hidden]

I do but my Rheumotologist never does this test, my Neurologist does. He says peripheral neuropothy, not sure why as am not a diabetic. It seems your Rheum. should have answered this question at the time of your visit. You should be informed of their findings as it is your health and your right to know and not to be left to worry or wonder. Good luck

[MsAndyIvy in reply to Hidden]

Thank you, very informative. Didn’t even think of questioning... said I couldn’t feel it and that was that. Currently thingkibg I’ve wasted money going private.

[Terrier_Lady in reply to MsAndyIvy]

And please don’t think you have wasted your money by going private. I’m in the US so our systems work differently but it’s very good that you are even having this tests performed. Yes I agree that he should be explaining it to you but it took me 3 rheumatologist before I got to my current one who has been the only one able to slow my disease progression down and through those 3 I never had nerve tests performed. It think you are getting better care than you think. I read cases on here all the time of people with lupus who are not getting the care they need by the drs that they are able to see within the system over there. Just the other day a women was explaining how the clinic dr ran a blood test and said she didn’t have lupus and took her off all her meds. Even though she had lupus for years, she was starting to feel the effects of it. That’s is how people die from this horrible disease. So many drs are uninformed about AI conditions. There is no one blood test to say you do or do not have lupus. And a general dr isn’t even qualified to diagnose these conditions. If they suspect you might have a AI condition they are supposed to refere you to a rheumatologist. You are also supposed to be seeing a specialist regularly and be monitored and treated by a rheumatologist. So it makes me very sad and worried when I read of these cases where the assigned dr wants to change everything when they aren’t even trained for these conditions. When you research lupus you will see that it takes the average person years and several drs to even get diagnosed let alone proper treatment. So please don’t be discouraged, I’m just so happy to hear you are getting these types of tests and that you have options on the dr you see. I’m so worried some that don’t have a choice will die or have terrible long term damage because they can’t go anywhere else. Even after I was diagnosed my disease kept progressing until we found a rheumatologist who knew what to do with me and my combination of conditions.

[Terrier_Lady in reply to Hidden]

Hi, perioheral neuropothy can be quite common with lupus. I have it very severely. You get it if your peripheral nervous system has been effected. If it has it’s because this is what controls your nerves, peripheral nervous system involvement also causes many other symptoms a lot having to do with dysautonomia. If you look it up you will all the way you can be affected.

[Chanpreet_Walia LUPUS UK]

Hi MsAndyIvy,

Problems to the nerve supply in the feet can mean that temperature changes, pain and other sensations and pressure can be reduced/not felt - this is called 'Peripheral Neuropathy'. We published a factsheet on LUPUS: and the Feet which you may like to read here: lupusuk.org.uk/wp-content/u...

[MsAndyIvy in reply to Chanpreet_Walia]

Thanks.