Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,072 members • 28,393 posts

All posts for February 2018

Undiagnosed...as of today

My Mother had Lupus and was diagnosed with it in her 50's. I am pretty sure I have it as well, and I am in my 50's now. I've been struggling for years and MD's...

My Mother had Lupus and was diagnosed with it in her 50's. I am pretty sure I ha...

Winniesue

•7 years ago

3 Replies

Can birth control pills cause lupus??

I started taking the pill a year ago and about 5 months later I noticed changes in my body and health. I was completely healthy and suffered no diseases prior...

I started taking the pill a year ago and about 5 months later I noticed changes ...

Mimi_m98

•7 years ago

12 Replies

Discoid Lupus

I have peripheral neuropathy in feet ankles and lower legs. Waiting for appt. to see neurologist. G.P. says nothing really can be done to help (I cant take...

I have peripheral neuropathy in feet ankles and lower legs. Waiting for appt. ...

foxglove

•7 years ago

2 Replies

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Mepacrine and sleep

I am on mepacrine 100mg, one tablet five days a week for my sle, plus azathioprine and have been taking them for about 6 months now. They have improved...

I am on mepacrine 100mg, one tablet five days a week for my sle, plus azathiopri...

Gail63

•7 years ago

4 Replies

Finally starting treatment mycophenolate mofetil

Hello all 18 months of MRI's, lumbar puncture, sensory tests and copious amounts of meds they have found nothing on any tests except my blood work, which has...

Hello all 18 months of MRI's, lumbar puncture, sensory tests and copious amounts...

ange726

•7 years ago

9 Replies

I'm anxious before I see my doctor.

Thank you for all the information you have supplied. This is very helpful. I struggle these days to fine words to express what I'd like to say. Just to keep...

Thank you for all the information you have supplied. This is very helpful. I str...

Yellow-Petal

•7 years ago

8 Replies

Myelodysplastic syndrome

Can malaria cause permanent bone marrow damage?

Talons007

•7 years ago

2 Replies

Osteoarthritis

I have osteoarthris had it for many years i have it in my neck knees and hip and lower back i claim esa and have now been put wrag i have never worked for one...

I have osteoarthris had it for many years i have it in my neck knees and hip and...

caro1952

•7 years ago

1 Reply

Petition to end prescription charges for people with long-term conditions

June 2018 will see the 50 year anniversary of the medical exemption list, which grants people with some health conditions free prescriptions whilst...

June 2018 will see the 50 year anniversary of the medical exemption list, which ...

Paul_Howard

Partner•7 years ago

18 Replies

I’ll health retirement

I work for a high st Bank as a mortgage advisor, I became pregnant in 2014 and was in and out of hospital for months after baby arrived. I had a biopsy and was...

I work for a high st Bank as a mortgage advisor, I became pregnant in 2014 and w...

Anniemack1

•7 years ago

9 Replies

How to baffle a rheumatologist:

Private consultation (I’m lucky enough to be able to claim back this cost from work) at Alexandra Cheadle with recommended rheumy. Seemed more fixated on my...

Private consultation (I’m lucky enough to be able to claim back this cost from w...

MsAndyIvy

•7 years ago

13 Replies

Some..... of my bloods are back

Good Morning! So I know this sounds ridiculous but I’m so pleased my bloods have come back abnormal!!! I’m still waiting on ANA, CCP and RF. But it would...

Good Morning! So I know this sounds ridiculous but I’m so pleased my bloods have...

Cellul

•7 years ago

11 Replies

First rituximab infusion

Hi everyone not posted in a while , but have not been good at all 😢 feels like I’m ill every day 😢 actually fed up listening to myself moaning 😜 god knows...

Hi everyone not posted in a while , but have not been good at all 😢 feels like ...

Harrisgran1

•7 years ago

6 Replies

Lupus, hashi, or something else?

Hi everyone, My dr recently got me to do bunch of different blood tests since I have been suffering from fatigue, lethargy, joint pains, foggy brain, etc. I...

Hi everyone, My dr recently got me to do bunch of different blood tests since I ...

het1234

•7 years ago

1 Reply

Feel Terrible

Hey all, Sorry not been on here for a while, back at work full time and trying to manage all appts etc. I had my Rituximab last month and since I have slowly...

Hey all, Sorry not been on here for a while, back at work full time and trying t...

LSurtees

•7 years ago

8 Replies

lupus

really get extreme headache which i have never suffferd before until when i awake some mornings my head is going to explode with pain and body shuts down but...

really get extreme headache which i have never suffferd before until when i awak...

dugthe

•7 years ago

6 Replies

Lupus or rheumatoid arthritis?

Hello everyone! My name is Mimi I'm 19 years old and for the past couple of months I've been experiencing symptoms of both lupus and rheumatoid arthritis. It...

Hello everyone! My name is Mimi I'm 19 years old and for the past couple of mont...

Mimi_m98

•7 years ago

7 Replies

Liver enzyme update

Just got a call from the hospital 're bloods taken yesterday. My liver enzymes have taken another significant jump so to remain off Azathioprine. Waiting a...

Just got a call from the hospital 're bloods taken yesterday. My liver enzymes ...

CarolMcl

•7 years ago

2 Replies

February's Topic of the Month - Headaches & Migraines (We want to hear your tips and experiences)

Our Topic of the Month discussion for February is 'Headaches & Migraines'. Headaches are common in lupus. They may be a feature of the disease itself or they...

Our Topic of the Month discussion for February is 'Headaches & Migraines'. Heada...

Paul_Howard

Partner•7 years ago

18 Replies

Official Diagnostic Criteria for SLE + Differential Diagnosis

🙋🏼‍♀️ Hello my lovelies...there has been a lot more discussion here about diagnostic signs, symptoms, manifestations & official diagnostic criteria. This...

🙋🏼‍♀️ Hello my lovelies...there has been a lot more discussion here about diag...

Barnclown

•7 years ago

22 Replies

Could I have lupus?

Hey... so... grab some popcorn. This is going to be a long story. In October 2015 I started to get severely dry skin that would itch to no end and patches...

Hey... so... grab some popcorn. This is going to be a long story. In October 20...

KaryMinuette

•7 years ago

6 Replies

How do I know if I having a lupus flare?

I have been diagnosed with mild lupus today and recently with hypermobility spectrum disorder. It is difficult to know which symptoms to attribute to which...

I have been diagnosed with mild lupus today and recently with hypermobility spec...

Emmazebra

•7 years ago

7 Replies

Guidance, anyone?

Hi, I'm new here and I hope I can get a little insight into what is going on with me, medically. I have a history of cyclic periods of profound illness, with...

Hi, I'm new here and I hope I can get a little insight into what is going on wit...

mamaholes

•7 years ago

5 Replies

Back to work after 3 months off sick...

So I’m due back at work next week; after 3 months off. I AM SO NERVOUS. I’m scared of how colleagues will treat me; will I be judged? Will I manage to do my...

So I’m due back at work next week; after 3 months off. I AM SO NERVOUS. I’m sc...

imzi

•7 years ago

14 Replies

Erosive osteoarthritis

My Radiologist started me on hydroxychloroquine for Erosive osteoarthritis A little over 3 months ago for the past 2 weeks I can barely set up because I am...

My Radiologist started me on hydroxychloroquine for Erosive osteoarthritis A ...

Judy1947

•7 years ago

3 Replies

Feeling awful 😣

Hi, sorry for this as it feels like a tirade of moans. Been having a really awful time since last Monday. Started of with a migraine which developed into a...

Hi, sorry for this as it feels like a tirade of moans. Been having a really awfu...

CarolMcl

•7 years ago

10 Replies

Rash

Hi there , hoping to get some help/advice. I have had an itchy rash on my lower legs ankle to knee and a small area on arms now for about 5 days . I was...

Hi there , hoping to get some help/advice. I have had an itchy rash on my lower ...

weathervane

•7 years ago

27 Replies

Tunnel/blurred Vision

I’m currently going through a Lupus flare up, my first bad one in months, on Monday I completely lost my sight which then improved to tunnel vision and after...

I’m currently going through a Lupus flare up, my first bad one in months, on Mon...

RachelArmstrong89

•7 years ago

5 Replies

Oral Surgery- Pre Op Assessment

Hi, I’ve just got home from my pre op, everything went ok apart from ECG’s. I asked for a copy of the abnormal results to give to my GP to rush my my...

Hi, I’ve just got home from my pre op, everything went ok apart from ECG’s. I ...

LauraMk30

•7 years ago

12 Replies

Marie claire article

There is an article in this months Marie Claire magazine about autoimmune problems it actually discusses the range from Sjögrens to IBS I Was flicking through...

There is an article in this months Marie Claire magazine about autoimmune proble...

weathervane

•7 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2018

Undiagnosed...as of today

Can birth control pills cause lupus??

Discoid Lupus

Mepacrine and sleep

Finally starting treatment mycophenolate mofetil

I'm anxious before I see my doctor.

Myelodysplastic syndrome

Osteoarthritis

Petition to end prescription charges for people with long-term conditions

I’ll health retirement

How to baffle a rheumatologist:

Some..... of my bloods are back

First rituximab infusion

Lupus, hashi, or something else?

Feel Terrible

lupus

Lupus or rheumatoid arthritis?

Liver enzyme update

February's Topic of the Month - Headaches & Migraines (We want to hear your tips and experiences)

Official Diagnostic Criteria for SLE + Differential Diagnosis

Could I have lupus?

How do I know if I having a lupus flare?

Guidance, anyone?

Back to work after 3 months off sick...

Erosive osteoarthritis

Feeling awful 😣

Rash

Tunnel/blurred Vision

Oral Surgery- Pre Op Assessment

Marie claire article

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