Hello my name is Kim, Im nearly 50 and was told last year by my doctor that I had Lupus.
My symptoms are extremely painful joints, muscle pain, headaches, tiredness, mind fog.
Since I was a child, whenever I stress and worry about things, I get a patch of skin about 3 or 4 inches in size anywhere on my body, limbs, head, face etc that is extremely painful but you can't see a red patch or anything, it looks the same as the rest of the skin around it. I can't touch it or have clothing on it or if it was on my head, I couldn't brush my hair......is this part of having Lupus or not?
Im having a flair at the moment and read that CBD drops help with pain. I bought Medi Hemp 'Hemp Complete' 10 and have been taking the drops under my tongue morning and evening for a week so far but can't feel any improvement.....am I taking the right thing or should I be getting a higher strength?
Sorry this is a long message, when I asked my doctor if there was anything I can do, she just said "No", so Im in the early stages of having to do my own research. She doesn't seem to be offering any advice. I even had to ask for follow up bloods to be done so I could check for myself incase there were any changes. She hasn't referred me to any specialists etc.....not sure what Im supposed to be doing!
Any replys greatly appreciated.
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KimW4
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Well if you are in pain & it is affecting your everyday life then you need medication of some kind & if your GP isn't prepared to consider prescribing autoimmune suppressants and/or pain killers then you need to be referred to a rheumatologist asap! I think you need to go back & say your symptoms warrant treatment & insist on being referred- a specialist can then decide if you need hospital supervised care & take it from there. Lupus is incurable but is definitely treatable, tho bear in mind it often takes months/years to find the right balance for each individual. If your GP won't help then change doctor! Good luck!
Welcome to the LUPUS UK HealthUnlocked Community! We offer a free information pack which you can download or request here: lupusuk.org.uk/request-info...
If you are unsatisfied with your doctor’s performance, you can request a referral to see a different doctor. To find how you can change your doctor, click here: lupusuk.org.uk/getting-the-... . Also, you can request your doctor to refer you to see a rheumatologist for the management of your lupus.
We are not medically trained here therefore; we cannot state what the correct CBD dosage may be. Does the packaging have any instructions on dosages? It is important to remember that what may work for one person may not work for someone else. Symptoms can sometimes become worse; it is advised that you discuss complementary therapies with a medical professional before trying them so that they can advise you about any possible adverse effects or interactions with other treatments.
Around 60% to 70% of people with lupus report some type of skin involvement, we published a guide on lupus and skin which I hope you will find useful: lupusuk.org.uk/wp-content/u...
Below I have included some information links which I hope you will find helpful:
Maybe you should seek out a good rheumatologist on your own. I find the best way is asking others who you think may be going to one. Take care of yourself and God Bless You.
Does anyone know of a natural alternative to help with pain (apart from the CBD drops). I have always tried to avoid prescribed medication but thats all I keep reading about everywhere.
You can read about some other pain management techniques/therapies and peoples' experiences with them in our blog article here - lupusuk.org.uk/pain-managem...
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sjogrens eye gels or drops
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Just been to see my GP and he dropped a bombshell! 
