Reynauds is of the Devil

Hi Lupies.

I currently have SLE and my Nephritis has gone into remission. ๐Ÿ‘Š๐Ÿฝ๐Ÿ‘Š๐Ÿฝ I was diagnosed with Reynauds disease when I noticed these red splotches on my fingertips. They were painful! Felt as if I had no skin on my fingertips. Then sores formed which caused more pain. My Rheumy prescribed hydrochloriquine, but seems to do no good. I've been on this regime forever and my Reynauds does not improve. I noticed that Prednisone helped a little, but my Rheumy removed Prednisone from my regimen since I had been on them for 3 years. Prednisone is the devil too. Well, i would like to know if any of you suffer with Reynauds and what you do to improve your symptoms or even suppress them. Any advice you can offer will be most appreciated. Thank you! ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ

2 Replies

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  • Hi Cosmolupie,

    We have a blog article about Raynaud's in lupus which has lots of tips for managing it - lupusuk.org.uk/coping-with-...

    Hopefully you will find something helpful in it.

  • Hi,

    I have Lupus nephritis too. I have to take blood pressure medication for the Kidneys and at one stage I was put on amlodopine. 5mg. The GP said it was good for Raynauld's - and it was - although mine doesn't sound as severe as yours. Now on different BP meds. Blue toes again. But it doesn't really worry me much.

    Amlodopine has some side effects so I wouldn't rush into taking it. I just thought it was worth a mention. It works by manipulating the calcium channels of - neurons (?) or tissue (?)

    x

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