After another stressful appt with a specialist yesterday, that has left me feeling hopeless and that this is as good as it's going to get, im thinking of asking my GP refer me to Rheumatology at Worcester instead of where I’m now.
I would love to hear any feedback of experiences from anyone that goes to or has gone to Worcester Hospital for their Lupus. How often do you see a specialist, is it the same specialist each time? How long did you have to wait before your 1st appt?
would you recommend the move?
Any help or advice would be great.
With thanks
Written by
sarahalice
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I do not go anywhere near Worcester sadly so can't say about them in paticular.
It's important that you feel like you are supported or being listened to by your specialist! I have a very friendly Rheumy, who I had seen regularly. He is very busy however and at my last appointment I was glad to see he may be getting an assistant and she was equally lovely. Listening to all my concerns and asking about how I was doing. Having someone who will listen and help you is important!
If you feel Worcester will offer you the help you need I would go for it!
I'v seen around 6 different specialists at the same dept over the past couple of years. I spend each appt telling them what meds and how much I am on. (shouldn't they know this!!?) They repeat the safe sex talk over and over again because of the meds I'm on, I get it already!
I am too exhausted to go through every ache and constant pain, dry eyes, rashes everywhere again to a new person, they are the same as last time and the time before! It would be great to have one Doctor keeping an eye on me, I might feel I was moving forward towards remission, and not in the slump im in of 'this is as good as it's going to get'
I will see what my wonderful GP thinks, (I am VERY lucky when it comes to my GP)
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