LUPUS UK
21,912 members17,346 posts

Flare Post pred??

Hie Everyone

I am just feeling down and seem to be having trouble with hot flushes at night , I have to sleep with a fan , anything I eat I end up feeling bloated or discomfort , feeling irritable and fatigued so much even just by resting I am super tired . My back and hips are so stiff n painful

I just completed a course of steroids and antibiotics for chest infection

I am taking Vit D , hydroxychloroquine twice daily , Naproxen for pain , omega 3 omeprazole

My rheumatologist promised to return my calls but two weeks running no progress

Gp got no clue thinks it's rheumatologist to review my symptoms n recommend treatment Plan

I had blood done in my last review in August

Rheumy sent me a steroid prescription in the post for low white blood cells n neutrophils treatment . She increased my hydrox to two days

I am trying to understand why . Meanwhile I have had multiple flares

I wonder if anyone how I can access my records and blood tests result for me to have a clear understanding of what is happening n what exactly they are treating for

Thank you

4 Replies
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Being able to access your results won't mean you have a clear understanding of what is going on if you don't have the training to interpret them. It isn't as simple as a blood test meaning x or y. It is a complex bigger picture - and even GPs don't get it sometimes.

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Just ask to see them. I believe you have a right to do that, they're your records

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Thank you 😊

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Hi Prima2008,

I am sorry to hear that you are feeling unwell and are experiencing joint pain. Have you tried ringing the rheumatologist’s secretary for any updates or cancelations for an earlier appointment?

We published a blog article on pain management which contains helpful tips and information which you can read here: lupusuk.org.uk/pain-managem...

Please keep us updated, wishing you all the best.

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