I have a name for the bones that hurt most!

[Lupiknits]

I get strange looks when saying my "bum bones" are the most painful. Car rides and virtually every chair makes me wince, as well as lying on my back. Ischeal tuberosities. I wonder whether saying that to medics make it clearer? Research so far on google shows that it can be a runner's or cycle rider's problem (not guilty) and that my theory that getting more weight on there might help, but won't.

Ah well, back to the recommended gentle physiotherapist's suggestions. Building up the wasted muscle can't harm the hips and pelvic pain. 👍

Upper arm strenth is pretty good though. Heels of hands lifting myself off my backside has done wonders by accident 😀

[misty14]

Hi lupie it's

That must be so painful, think name should impress the medics!. Hope the physio's exercises help and you get relief soon. Fingers crossed. X

[Natura]

Hi....is muscle wasting part of lupus? I have terribly weak muscles. Just joined a gym. Get stronger for a minute, and the next day its all gone. Like I have to use weights every day. It doesnt stay.

[Lupiknits in reply to Natura]

I don't know if the muscle wasting is part of lupus. In my case the auto immunity problems started with upper gastric and swallowing proplems, causing a very big weight loss and weakness, hence less and less general exercise. It's generally thought to be a result of that?

[Author_ink in reply to Natura]

The muscles in my hands are like a infant. I cant even open or unwrap anything anymore. Its embarrassing for me to ask people to open everything for me even a piece of peppermint candy wapper.

[Natura in reply to Author_ink]

I am embarrassed that I was walking down a staircase this weekend from a hotel room. Granted the staircase is wooden and leaning (at the beach) ...last 2 steps, I tripped because I had worked all day and I was just tired by 9 pm. Probably my fault, my legs wouldnt work. I was using gravity to get me down. Ugh!

[fabwheelie]

thanks for that my hips have always been my most painful joint and since September my right hip was getting so sore that nothing really relieves it and it's uncomfortable all the time .. sitting, standing, even lying down. I've seen a physio recently who has given me some exercises to do she things it's inflammation in gluteal muscles and tendonitis in that area. Only been doing the physio exercises for around 10 days so a little early to tell if thay will help. A TENS pain relief pad has helped give some relief

[whisperit]

Yep, it's all about those muscle building exercises. Why oh why can't I have a disease that is treated with cake? x

[Lupiknits]

A disease treated with cake? Oh please .....🍰🍰🍰😋

[EOLHPC]

😣OUCHITY OUCH OUCH OUCH 🤦‍♀️

🍀😘🍀😘🍀😘 foco

[PMRpro]

They do do bum enhancement surgery you know...

[Lupiknits in reply to PMRpro]

Ah yes, Pro ...... I see that's popular if you make a career out of it. I prefer the cake remedy myself 😋 Oh if only it would work 😋.

[PMRpro in reply to Lupiknits]

The problem is getting the cake to go to the right position though...

[Georgie-girl]

Ouch, I feel for you Lupi. Keep up the exercises and hopefully you will see, and feel, some improvement shortly.

[Silvergilt]

Yeah I have this problem too - it pretty much made riding horses impossible as my 'sit bones' would ache. Can't ride a bike, can't sit in certain chairs for too long.

[Lupiknits]

Thanks, Silvergilt, I'm not the only one with this problem x

[Mystik]

I know what u r going through

Praying for u