London lupus centre

[jimbo1605]

Can anyone recommend specific doctors at the London Lupus centre and if you have your blood results from the GP can they reach a diagnosis in the first visit ?.

[Treetop33]

I saw Dr Kaul who seemed pretty good, though I've not had much experience with consultants. I found the admin awful though - the letter they sent (with my diagnosis and med plan) hadn't been sealed and was open, one of them was quite rude on the phone when the letter was late and I rang up to ask why. I then asked for a prescription (because my GP wouldn't prescribe) and they never got back to me. You might want to mention that to the docs when you visit.

[Treetop33 in reply to Treetop33]

That was the London Bridge Lupus Centre - wasn't sure if that's what you referring to in retrospect.

[jimbo1605 in reply to Treetop33]

Thanks for your reply - and yes it was the London Bridge Lupus centre. We have our first rheum NHS appointment and if we fail to get anywhere then we are going to see Dr Kaul.

[Charliebear68]

Hi Jimbo,

I see a doctor at LLC but he is very thorough. I had a full set of bloods done even with me taking blood results with me. I think it would be best if you give them a ring and explain the situation and take their advice. My experience (so far) has been excellent.

Good luck 👍

Charlie

[jimbo1605 in reply to Charliebear68]

Hi, We are going to give the nhs one last go tomorrow then its straight down to LLC. Thanks for all your help and encouragement in this post and my previous one. Jim

[Georgie-girl]

I can recommend 3 of the doctors personally. Dr Hughes, Dr Kaul and Dr D'Cruz. All excellent. Dr Kaul is my doctor and he can't be faulted. I haven't been to the London lupus centre so can't comment on it's practice or procedures but I can comment on the excellence of these 3 doctors as I have seen them all at different times at different locations.

There are a few people on this forum that have been there and/or seen some of the doctors in question so hopefully you will get some valuable replies and information. Good luck.

[Charliebear68]

Hi Jimbo,

I can highly recommend my Dr. Good luck with your appt tomorrow so let us know how you get on but if you need his details - just shout up 👌

Charlie xx

[Charliebear68]

Hi Jimbo,

Was just wondering if you're OK? Hope appt goes went/well

Charlie

[jimbo1605 in reply to Charliebear68]

It went great - the NHS and Ipswich hospital should be proud - and much to our surprise given our previous experiences.

Dr Shand spent over an hour with my wife that included a full physical and extensive questioning and a whole bank of tests.

My wife has dry eye/mouth syndrome by testing - something we didnt know and the rest of the tests will be back next week.

Joan (knick name Pooh bear) my wife has every symptom of lupus but a negative ANA so they have redone the tests.

So we are far more positive about getting to a diagnosis and treatment.

Thank you for all the messages of support and advice it makes a hell of a difference - Pooh bear (the other half).

jim

[Charliebear68 in reply to jimbo1605]

Love it - Pooh bear 😆

I am so pleased for you - both! It sounds like you're being well looked after by Ipswich. Sadly, this is unusual in my, and and countless others, experience so I'm super happy for you 👍

There are some rheumatologist that diagnose sero-negative lupus - all the signs and symptoms are there just the not the bloods!

Please keep in touch.

Charlie xx

[Twinkle_12]

Hi Jimbo. Dr Kaul at the London Lupus Centre is my Consultant. He is knowledgable, caring, kind and has been nothing but supportive to me. I've found the hospital to be very good. He diagnosed me on first visit. Good luck.

[Wendy39]

Hello. I'm sorry I've only just seen this post. I saw Dr Kaul at the private London Bridge Lupus Centre on 21st April. I took my blood tests and letters from the last 3.5 years. They scanned all my documents into their system. I had been diagnosed with SCLE at the start but Dr K amended this to SLE. He did no further tests. He does spend an hour with new patients and this included a very thorough physical examination. Everything about my experience was excellent and I got a copy of his letter by email and by post. I am going back to see him as I trust him and don't want to see anyone else now. Good luck. Wendy