My rheumatologist was especially attentive today and came up with a useful plan. This goes a long way to feeling like someone's got the safety net in case I fall.
I recently posted about my knee effusion which was aspirated and steroid injected. Well that has been 70% successful but some effusion remains. My wrists and thumbs in particular are swollen and have effusions too. My malar rash has been quite bad and ulcers on the roof of my mouth not especially painful but numerous and troublesome. My left foot bones keep subluxing which is beginning to cause a permanent deformity.
So, the plan is to increase my AZ once I have got used to the two new tablets I was put on earlier this week. I might have steroids added back in, but this may be contraindicated, so she's going to speak with the other consultants I'm under (yay, communication!). If the joints become any more painful or swollen I can ring the rheumatologist's secretary to be seen asap.
I'm having an MRI of knee, hip and foot, but in the meantime I was sent straight round to the physio who assessed my foot and gave me a supply of orthotics to place in my shoes in the meantime, to change the alignment of a few bones.
I came away feeling well looked after today with a clear plan of action and short cut if things worsen. Couldn't fault the NHS today, which is a lovely thing to be able to say.
Still in quite a lot of pain, but it's always more manageable when you don't feel abandoned.
Fatigue has reached a whole other level, after 10.5 years. Scared it’s narcolepsy….
Lupus and Radiotherapy
Depressing facial rashes/What do you do?
