Pip claim

[Charl1503]

Does anyone with lupus SLE receive PIP ? I have been advices to apply and was woundering if anyone with lupus SLE actually gets it?

Thanks

[Triscichick]

PIP?

[M012]

Yes, I do, but I would advise that you get a professional person to fill out the forms.

[Charmaynej]

My husband was refused pip, he has lupus SLE and Copd .

[Bex777 in reply to Charmaynej]

I know this is 4 years ago and hope all is well but you must appeal this decision as people claim with COPD alone. You must appeal this and your claim will be backdated grom when he was diagnoses

[Charmaynej in reply to Bex777]

Thank you , we appealed by which time he became over 65 and was awarded attendance allowance .

[Chris21]

Some people with lupus receive it, but I don't. When I looked at what difficulties entitle you to receive PIP I am lucky so far not to to fit the criteria.

[fayhelena]

Hi. Yes I get the pip higher rate as I can't move some days and need help with dressing and general day to day living. When you apply for PIP, write about your worst day with Lupus. Cronic diseases cause depression so if you have this write it down. If you are in pain tell them and how Lupus affects your every day life. If you don't get awarded what you think you should. AppeaI, I did and I won. Keep positive and don't give up. Good luck and keep well.

[Jean52]

Yes, I am very pleased to say that I was successful in my pip claim, and was awarded enhanced in both parts of the claim. But I must also say, that I don't only have lupus, but many other long life conditions, some life threatening. But I can only wish you well in your claim, just be honest and tell the interviewer how everything effects you on a day to day basis. Good luck, and keep smiling. xx

[Mifford]

My first PIP assessment 2 years ago I was awarded lower rate for both elements and was lucky to have an assessor who's husband had lupus so she was very understanding. My second assessment recently was a totally different story and although I'm still on both elements at lower rate I am appealing it as it is no longer accurate for me now. I was a bit naive first time round on how much of a minefield it can be without advice and would say the same as someone else - get help filling in the forms from the outset as it seems or make a big difference. There's things we play down as being normal which need to be properly addressed, the wording is more professional and it'll help you understand the whole process better. I'm now using the CAB for my appeal and next time I have to deal with anything in these lines I'll definitely be using them from the outset to reduce the stress and give me the best chance. I said to the lady there that I just tried to be honest and as she said it's not about being dishonest is about getting rid of the mentality of not being a nuisance which we probably all do when we say "no it's ok I'm fine really" even when we're not. Her advice to me was to be a pain in the arse at the appeal .. such as I know that sitting under their lights makes me ill but I do it because I don't want to make a fuss whereas I should make a point of asking them to turn the lights off. As she put it how else are they meant to assess me if I don't tell them the reality of the situation and I'd never looked at it like that. Yes it makes me a problem for them but the reality is it's a problem for me so I'm being more honest telling them that than by pretending I'm fine and playing it down as I normally do. That's where the outside advice helps as it helps tell your story from a detached viewpoint rather than the emotional one that it is bound to be for us doing it ourselves.

Good luck and I hope it proves successful for you

[Tiras]

👣👣👣👣👣👣👣👣👣👣👣👣👣

Hi;

I'm not in the UK I am in the state of Alabama in the U.S. And I get social security disability due to SLE. One reason is I have rashes/blisters on my right foot and I can't wear shoes. I have to go barefoot all of the time. Yes, I go everywhere and have to do everything barefoot.

I know this probably doesn't help you any!

👣👣👣👣👣Tiras👣👣👣👣👣

[Hidden]

Hello,

Your local Citizen Advice Bureau can help you claim the benefits you are entitled to and we have guides for claiming and appealing benefits which are available for members of LUPUS UK.

You can find out more at: lupusuk.org.uk/benefits/

[Nat1969]

I get the lower amount PIP - have had for past 2 yrs now and got it on first application (not the norm from what I can see from others). However I didn't claim until I really needed it having had SLE for 25 years. Two years ago it got worse so-to-speak and I had to go part time, was also diagnosed with APS, Hyperthyroidism and now Finromyalgia this year too. I completed the forms myself. Good luck.

[steve61]

Hi, I went a month ago for my assessment and got a big fat 0 on both parts, you will do well to get PIP with SLE alone but with other illnesses you might be lucky! good luck

[Bex777 in reply to steve61]

Appeal and you will get it - almost all appeals win

[Jess_doyle]

Lucky enough it's only came into Northern Ireland, PIP I've still till 2018 till I have to apply hoping college will get me into a job I can handle and don't have to go through all this again, DLA was a nightmare the second time around but got it for life thought yes don't have to go it again, then bang hello new benefit lol, but it's good reading everyone's story and learning what's best to go around it.

[nmcleod]

Hi after 2 assessments P.i.p have just sent a letter to say I no longer qualify for£220 per month my car or carers,

I have been on a life support machine, Consultant told children 3 times not expected tolive.medically retired because of lupus age 45yrs now 64 on my own Crippled with s l e lupus Osteo athritis permanent kidney stones hernia in my wound from op.etc etc, Now 1 letter says I am Not high component or middle care componet,.UNBELIEVABLE!!!!.

STRESS I HAVE BEEN THROUGH LAST FEW MONTHS AND STILL HAVE TO GO THROUGH.IS INHUMANE!! SUICIDAL AS LIFE IS SO SO HARD RAYNUDS IN HANDS ND OSTEO Kill and stop daily wee tasks become Mountains.PLEASE PLEASE PLEASE ALL LUPEES TELL ME HOW DO I NEED TO GO GLOBAL WITH THIS.REMEMBER ALWAYS TOTALLY EXHAUSTED.MY CARERS DO EVERYTHING, HOW AM I EXPECTD TO EXIST?YOU CANT CALL THIS LIVING.I USED TO B A WORK AHOLIC BROUGHT MY 2 CHILDREN UP ON MY OWN LOOKED AFTER MY MUM AND HAD MY DISABLED AUNT LIVE WITH US 6 YEARS, SHE COULD NOT DO ANYTHING, NOW MY SISTER IS PARA PLEGIC WITH MS, I GO WHEN I CAN WALK TO CHECK HER AND SEE SHE IS KEPT ok but watching her go demented as well as her body completely dying is SO SO Depressing.

And Now PIP are telling me I am not disabled or mentally ill and taking my SUPPORT AWAY.HELP ME PLEASE!!! THE WORLD NEEDS TO KNOW.LUPUS IS HARD TO SAY BUT systemic lupus euromethysos is HARDER to live with.Norma.Sinclair McLeod(ms)

[DebbieWest]

I have been awarded lower rate of care and mobility. Took me by surprise! I took my last application for dla and adapted it for the pip one. The interview was really supportive. Totally unexpected. Good luck.