I am posting again with yet another worry! Although my interstitial lung disease and joint pain seem to have improved somewhat on hydroxy and prednisilone, my fatigue and weakness are getting steadily worse.
It's now at the point where I am practically sofa-bound, and feel I need urgent specialist opinion. I'd appreciate your thoughts....
My day looks like this (bear in mind that 18 months ago, I was fully active and working full time, with no known illness).....
I wake feeling nauseous and after dressing, shake with fatigue. This makes it hard to eat breakfast. I spend the morning on the sofa as even going to the loo leaves me lightheaded and trembling. As the afternoon wears on, I tend to break into sweats and shivers. Increasingly, I get palpitations with this. My temp remains around 36, blood sugar 7, BP 130/90, pulse 100.
My rheumy and resp consultants have looked for opportunistic infections as the explanation, but none have been found. My GP sent me to casualty last week owing to the heart symptoms - again no heart abnormalities were found.
Has anyone here experience of Chronic Fatigue or PoTS on top of their auto-immune diagnosis?
Any ideas what I should do next?
Thanks for your patience with another of my fretful posts!
EDIT - after some more searching, I see that the usual suspects have already posted on this - and brilliantly, as usual! OMG it really sounds like POTS! Thank you all!