It's been a while since I last posted but I need some advice. I was diagnosed with lupus nephritis in Jan 2015, I was treated with cyclophosphamide, mycrophenlate but stopped myclo due to side effects. I was taken off all meds in Dec 2015 but continued with steriods. This year I had two lots of infusions with ritixameb however it's been five weeks since treatment and I have had the most awful pain in my leg. I can't put any weight on and the pain goes through my leg into my hip and back. I just wanted to know if anyone else had the same treatment and if they have suffered from this kind of pain. To top things off my blood sugar levels are so high that I no longer know what to control and what not to
Spoke to my GP who was so insulting that she wanted to know why I was on steriods, she had no idea about me being diagnosed with lupus and thought my blood sugar levels in her words not that concerning even though my evening readings for the last month and half has not been less than 19.2
I thought I was doing so well when I went back to work and and was working full time.
It's now been my second week off work and I feel so down, it just seems like nothing is working