Cold burning sensation

[Linorandthewolf]

Hi everyone lately I've been having a burning sensation in random spots on my body but it's like a cold burn if that makes sense? I'm wondering if anyone else has experienced this and is it considered neurological does anyone know? Thanks

[Caramia64]

hi yes I get this feeling in my left leg , been referred to neurology , got appointment through for end of this month after rheumatologist.

[Linorandthewolf in reply to Caramia64]

Thanks for the reply, sorry to hear you're going through this as well:(, I would love to know what the neurologist tells you though

[Maya23]

Hi. Yes I do get those sensations occasionally in random places. I was told it is called paraesthesia - and I think this is a symptom of Fibromyalgia. But I would talk to your doctor about it and get further investigation as they may want to rule out other causes.

[Linorandthewolf in reply to Maya23]

Sorry you're going through this as well, I had been initially told I had fibromyalgia before I had been officially diagnosed with lupus, is it very common to have both do you know?

[Maya23 in reply to Linorandthewolf]

Yes I did have Lupus, but now it has become inactive (all blood tests show negative for lupus now and the ESR has come right down from 30 to 5). The MRI was to test to see whether the Lupus was attacking my brain/nervous system, but it wasn't the cause, hence the diagnosis of Fibro.

[maybehope]

Yes because I have SLE and Fibromyalgia.

[Linorandthewolf in reply to maybehope]

I am sorry to hear you have both, one is bad enough the general consensus seems to be that this is a symptom of fibromyalgia?

[chrisj]

I get hot burning sensations in my feet and legs in the night sometimes. Have mentioned it to my rheumatologist but he doesnt say much so I thought maybe it was a psychological thing??? I have no idea..... I have sensory loss in both feet so I know there is some nerve damage going on and was told it was more to do with osteoarthritis than Lupus...

Nerve inflammation and carpel tunnel, had surgery on one hand in june this year, still plucking up courage to get the other hand done. The surgeon said they didnt know what was the cause of it...another unanswered question

[Linorandthewolf in reply to chrisj]

I'm surprised your rheumy would brush it off they should get it checked, it's better safe than sorry, maybe could you mention it to your GP do you think they'd take it more seriously?

[chrisj in reply to Linorandthewolf]

Not sure if I'm honest, I rarely see my gp and rheumatology apps for mild SLE are every 12 months. In fact if I remember right.....flash back....I did tell him specifically about 2 years ago and he said something about oxygen levels. I got the feeling he didnt really know. I'm due to see him beginning of march next year so maybe I'll mention it again. I got the free diary offered by Lupus UK to keep a log of things and I'm going to ask for x rays next visit just to check on the arthritis, looking for reassurance its not getting worse

Hope you shed some light on whats going on with you..report back if you do

[Goldyukr]

I get this with my small fiber neuropathy. Gabapentin helped me with that.

[Sheole]

Yes it goes sporadically to diff areas. Always forget to mention to dr as it comes & goes.

[Hidden]

Hi there,

I am sorry to hear that you are experiencing these symptoms. It might be a good idea to see your GP and be referred to a consultant for further investigations, if you haven’t been already.

Let us know how you get on.

[Kokica]

I get it in my fingers, so much so that can't use phone, iPad, PC - anything that I need to touch. Fingers and hand can also be cold, yet feel burning with cold...