I have lupus SLE and rayhnards over the past few months I've been getting cramp in the trunk part of my body l can be just sitting doing nothing and wham it comes on l wakes me up in the night it can be anywhere behind my ribs in my back my sides my neck and i'm so so tired all the time , Its bad enough that having Lupus makes me tired, I used to get cramp in my legs and feet quite a lot but generally only when l was pregnant, (and there is deffo no chance of that)But this is really weird l looked on the NHS website all l could find was drink plenty of water as this is a common cause of cramp,but 3 months on and drinking water like a river nothing seems to work?
Hi.. I get what I can only think is cramping in my upper back. It's quite severe and uncomfortable, lasts for 5mins and the stops only to go again a bit later.. Will go through phases of it. I'm not diagnosed - suspected connective tissue and waiting for rheumatology appt. I also have a twitching disorder so don't know if it's related or not. Mainly my upper back but will get the odd cramp in other parts of body.
It's like you have written this on my behalf! I bend over to reach something and bam I've got cramp in my ribs or stomach and people don't believe me. All I can say is that it is better since I started Azathioprine x
Hi i know what you mean i get it too. I think it is the "lupus hug". I find pain killers and a hot water bottle does wonders. I have sle, raynauds, sjogrens and fibromyalgia. I hope it helps. It is awful so good luck to you and please mention it to your rheumy because i am sure it is part of disease process. X
Do you take cocodamol or paracetamol? If you take a lot of those, they will cause cramp. I was perscibed both and ended up with cramp all over my body. It also came on when I was asleep and wake me up. I was in agony. My husband had to try and get me on my feet otherwise it would not stop. It was a nightmare. I decided to leave the tablets off but it took a while before the cramps completely stopped.
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