My GP suspects that I might have clotting issues to do with lupus and so has done some relevant blood tests, although he doesn't think I've suffered DVT. However, as yet he has not ordered the tests for actually diagnosing lupus. Personally, I suspect that I might have lupus myositis and/or Hughes Syndrome. I am going to pursue getting a diagnosis one way or another, but can anyone tell me just how painful lupus myositis can be? I have recently suffered such severe pain in my right thigh that made it impossible to weight-bear without excruciating pain. I couldn't turn over in bed without terrible pain and in fact any position I put my body in, even laying down flat has been horrendous for me. It felt like someone was trying to break my thigh in two or my thigh had been run over by a lorry/truck. After almost 2 weeks that pain has gone and now I have horrendous pain in my upper arms, can't lift things or do my hair without severe pain and my muscles feel weak. I would be grateful for you experiences and thoughts regarding this. I have had fibromyalgia for almost 20 years but this feels different and even more intense pain-wise. (I also have hypothyroidism, chronic fatigue, ocular myasthenia gravis and dry eyes with blepharitis.)
Is the pain as I describe it consistent with lupus myositis; can the pain be of lupus myositis be this bad?
Thank you in advance.