I was looking for some advice from fellow Lupus patients. I've had Lupus since 2010 and I've been on ESA since 2012 as until that time I was in college. Over time my kidney function has gotten a lot worse, it's jumped down 40% in 1 year and now I'm at 15% function and now my doctors are getting involved with Fistula operation to start Dialysis.
To ESA and DWP, I am fit for work. Even though my doctor and Dialysis nurse don't want me to because I am physical unwell. I put a reconsideration in to appeal the decision finding me fit for work and in their words "My recent Kidney Failure is irrelevant". They are saying my function is under control and no life-threatening. I'm sorry but what part of Kidney failure isn't life threatening? One of my organs isn't working and I need to help.
I'm taking the decision to an appeal court and I was wondering if anyone has been through the same thing? Has any advice? I just want to get my health on track and this isn't helping.