Hi there I'm new to the group and could do will some advice as to where to go and what to do regarding booking a private consultation. Appologies in advance fir ny long post but i am at the end of my tether.
I'm a 38 year old women. Having had lots of symptoms for the past 8 months with a collapse at work which was followed by a 5 wks stay in hospital and now have carers to help me with personal cares 3 times a day. Having to use a walking frame and wheelchair aswell as other aids. I was discharged with ? Functional neurological disorder and was under the neurology team awaiting a rheumatology apt which I have had now and she feel it could be sjögrens. I am not fully convinced given my severe disabilities at present. Have had result of recent blood tests which are:-
Anti Rob (60) >8.00
Anti la antibody 4.20
LFT ALT 42
Vitamin D 56
Complement C3 2.10
Postie atypical P-ANCA pattern
Lupus anticoagulant- demonstrates persistent positivity
TSH 5.5 (I take levothyroxine for this)
Summary symptoms and past history
2 miscarriages in 2007 at 16 wks and 17wks
2012 migraines back problems and severe Fatigue aswell unable to put one in front of other.
Chronic back pain given physio in 2012 which didn't help. They said I had a weak core. Had physio but didn't really help
Heart burn since diagnosed with hypothyroidism given Lanzoprozole in sept 2015
5 mths of severe right handed pain unable to clench my fist and pain in my shoulder. Pin and needles. Right leg feeling heavy and walking becoming difficult. Unable to walk with a balance problem.
The day before attack I had pain in the back of my eye. Awoke with several pain at the back of head which continued then the collapse. 19th Jan Had monthly 10-11 days later
Ear problems like I have something in my right ear aswell as slight problem with left as though someone has covered my ear
Hug type pain around body under bust
Severe pain particular in right side of body.
Following physio experienced extreme pain in affected side aswell left sided weakness and unable to clench my left hand
Instances of coffee colored urine with blood and protein in urine - dip stick test confirms thus then lab results ok
Blood clots In my right leg
Episodes on semi conscious state
Rash which appears then connects and seems be affecting when doing physio etc
Blisters on my toes and heel
Ulcers in mouth
Tickle on the roof of my mouth
Suffer with soar throats and voice goes hoarse.
Thank you in advance of your response