Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,740 members • 28,100 posts

All posts for March 2015

Not coping ,after extra Depot injection not working.

Hi folks, I have been on 5 mg Pred since my last Depot 80 mg last August. Was getting worse and worse all the time so Rheumy gave me another 80mg...

Hi folks, I have been on 5 mg Pred since my last Depot 80 mg last ...

cuttysark

•9 years ago

33 Replies

Not naming names but where do I go from here?

Hi all, I have not posted in a while as I have been really unwell after shoulder surgery which has taken me 5 months to (not quite) recover from. From my...

Hi all, I have not posted in a while as I have been really unwell after shoulder...

bestbuddy

•9 years ago

11 Replies

I'm always sleeping

Hi everybody, I have SLE, APS, neuralgia, Rayneuds & Retinal Eschemia. Since June 2014, I've been taking Mycophenalate (as well as other meds) as my body...

Hi everybody, I have SLE, APS, neuralgia, Rayneuds & Retinal Eschemia. Since Jun...

magSLE

•9 years ago

10 Replies

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Peculiar pain or normal?

This is a pain not experienced before in my left arm. On the inside of my elbow feels like a needle sticking in, throbbing on and off pins and needles in hand...

This is a pain not experienced before in my left arm. On the inside of my elbow ...

Chris21

•9 years ago

12 Replies

any advice please

Hi everyone can anyone advise is there anything that can help with sleeping i am really struggling i am awake most off the night and i am constantly tired with...

Hi everyone can anyone advise is there anything that can help with sleeping i am...

rlupus

•9 years ago

17 Replies

Memory problems and support??

Ho ho ho!

Footygirl

•9 years ago

1 Reply

Restless leg syndrome

Hi. I'm new!! Read some posts and thought what a wonderful way to spread the love and support! I don't know how this really works but I read a few posts...

Hi. I'm new!! Read some posts and thought what a wonderful way to spread the lov...

Footygirl

•9 years ago

14 Replies

Lupus?

My problems started when I was 20 with a bad case of scleritis and then it feels like my body doesn't like me flare ups of pain, tiredness, muscle weakness,...

My problems started when I was 20 with a bad case of scleritis and then it feels...

maejane

•9 years ago

3 Replies

Insomnia

I dread going to bed at night.Being tired I settle down to sleep,feel really comfortable then the twitching commences,restless legs,burning thighs,agitation...

I dread going to bed at night.Being tired I settle down to sleep,feel really com...

meggie83

•9 years ago

3 Replies

Neck Pain

Does anyone else suffer with neck pain? Mine is currently so bad that I have to either lay down or feel like I need to physically support my head! Any tips...

Does anyone else suffer with neck pain? Mine is currently so bad that I have to ...

hanb27

•9 years ago

19 Replies

Rituxamab

Today I went to see my two consultants (a Rheumatologist and a Respiratory doctor) who was very excited to tell me that they had the funding for me to have the...

Today I went to see my two consultants (a Rheumatologist and a Respiratory docto...

Maureenpearl

•9 years ago

6 Replies

Changing hospitals

When I go to see a Rheumatologist I never see the same one twice as my hospital does not seem to be able to keep them. I got a letter saying ring to make an...

When I go to see a Rheumatologist I never see the same one twice as my hospital ...

Gymbabe

•9 years ago

6 Replies

News & Views - Spring 2015 Edition - OUT NOW

The new edition of our News & Views magazine is being sent out to all LUPUS UK members this week, so if you're a member, it will be dropping through your...

The new edition of our News & Views magazine is being sent out to all LUPUS UK m...

Paul_Howard

Partner•9 years ago

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Need help and advice please

Hi everyone. I have lupus,sjrojens,osterperosous,rheumatoid,gallstones etc etc.A few months ago i was diagnoised with a GU prolapse. My doctor and gyn physio...

Hi everyone. I have lupus,sjrojens,osterperosous,rheumatoid,gallstones etc etc.A...

Snowdragon

•9 years ago

16 Replies

Discoid lupus

Hi everyone I'm just wondering now I have been diagnosed with discoid lupus will my hair get thinner or will I just end up with a bald patch where I have flare...

Hi everyone I'm just wondering now I have been diagnosed with discoid lupus will...

Niamh45

•9 years ago

7 Replies

Could it be Lupus?

Hi everyone - I'm probably putting the cart before the horse, however the possibility of a Lupus diagnosis is preoccupying me :( I finally went to the doc last...

Hi everyone - I'm probably putting the cart before the horse, however the possib...

MissBfirstDanBlackBelt

•9 years ago

9 Replies

Rituximab for SLE inflammation on the brain, please help not sure whether to accept???

Hi all, my mum is being offered rituximab for her brain inflammation, she has SLE and is on steroids along with mycophenelate. She also has vasculitis. She...

Hi all, my mum is being offered rituximab for her brain inflammation, she has SL...

KerrieB

•9 years ago

5 Replies

Diastematomyelia

Well finally got my mri results n hve been diagnosed with the above and spinal cord tethering on parts of my spine has anyone else been diagnosed with this...

Well finally got my mri results n hve been diagnosed with the above and spinal c...

Kellamitch

•9 years ago

2 Replies

Help!!

I have been having lupus type symptoms for a while now. Sore joints/ muscles, fatigue, mouth ulcers, feel extremely cold then sweat like mad. Also lost some...

I have been having lupus type symptoms for a while now. Sore joints/ muscles, fa...

Fiowil78

•9 years ago

12 Replies

Immunosuppressants

Hi all just laid here thinking and thought I'd ask, been on immunosuppressants for 4 years due to stage 4 nephritis and neutropenia due to lupus really at...

Hi all just laid here thinking and thought I'd ask, been on immunosuppressants f...

poodlegal

•9 years ago

10 Replies

Happy mothers day

Hello to all mother i hope you all have an exciting day filled with joy and less of lupus. My 3yr old made me a mothers day card from his nursery which he...

Hello to all mother i hope you all have an exciting day filled with joy and less...

ijeasike

•9 years ago

5 Replies

I'm experiencing new and different symptoms after being diagnosed with Lupus 12 years ago. Is it maybe Fibromyalgia? ??

Hello. I've had lupus for over 12 years I was diagnosed when I was 18. I have never been on one of these sites but I am kind of feeling scared and frustrated...

Hello. I've had lupus for over 12 years I was diagnosed when I was 18. I have ne...

LupusLindsay

•9 years ago

9 Replies

Pet allergy

Hi all, I have a question about pet allergy, does anyone know if having lupus/inflammatory Arthritis/Fibro, makes you more sensitive to pets. My inflammation...

Hi all, I have a question about pet allergy, does anyone know if having lupus/in...

Valent48

•9 years ago

6 Replies

Trying to making sense of this illness

Hi all, I remember writing a submission two years ago, with vague details about my diagnose of Lupus and I want to indulge some more information. My...

Hi all, I remember writing a submission two years ago, with vague details abou...

Eatpower

•9 years ago

2 Replies

Cortisone injections

My Rhumie has just given me a cortisone injecting in each side of my bottom ,I have been getting dizzy heads could this be a side effect from the injections ,...

My Rhumie has just given me a cortisone injecting in each side of my bottom ,I h...

Sugarplumb

•9 years ago

2 Replies

Palpitations

Just wanted to share an experience I had. I have been getting heart palpitations as of late. My heart flutters in my chest. A very uncomfortable feeling. And...

Just wanted to share an experience I had. I have been getting heart palpitations...

Natura

•9 years ago

29 Replies

Discoid lupus

Hi I have recently been diagnosed with discoid lupus and now having Ana test done to check for systemic. I already have a scar and bald patch on the side of my...

Hi I have recently been diagnosed with discoid lupus and now having Ana test don...

Niamh45

•9 years ago

11 Replies

P.I.P UPDATE

Hi everyone. I wrote a post about how Capita had rung me before my pip assessment asking lots of questions that would have been asked in the face to face...

Hi everyone. I wrote a post about how Capita had rung me before my pip assessmen...

lillyanne

•9 years ago

8 Replies

maggiemo406

12 yrs ago I was diagnosed with Osteoporosis and was prescribed the drug Fosamax ,then 2 yrs ago I went for a bone density scan and was informed by the...

12 yrs ago I was diagnosed with Osteoporosis and was prescribed the drug Fosamax...

maggiemo406

•9 years ago

4 Replies

Support group for lupus

Hi there. Does anybody know if there is a support group in the north Hampshire area. I feel so alone with this illness.

Hi there. Does anybody know if there is a support group in the north Hampshire a...

Corred

•9 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2015

Not coping ,after extra Depot injection not working.

Not naming names but where do I go from here?

I'm always sleeping

Peculiar pain or normal?

any advice please

Memory problems and support??

Restless leg syndrome

Lupus?

Insomnia

Neck Pain

Rituxamab

Changing hospitals

News & Views - Spring 2015 Edition - OUT NOW

Need help and advice please

Discoid lupus

Could it be Lupus?

Rituximab for SLE inflammation on the brain, please help not sure whether to accept???

Diastematomyelia

Help!!

Immunosuppressants

Happy mothers day

I'm experiencing new and different symptoms after being diagnosed with Lupus 12 years ago. Is it maybe Fibromyalgia? ??

Pet allergy

Trying to making sense of this illness

Cortisone injections

Palpitations

Discoid lupus

P.I.P UPDATE

maggiemo406

Support group for lupus

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