Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2014

Hi I'm waiting on results to see if i suffer from lupus how long does it take please I've been waiting 3 weeks now and they still not back.

reeneroo

•10 years ago

13 Replies

Does anyone have days whete everything feels like climbing mt everest .

My day started with a very sore throat ..which in turn has turned into a head cold .my whole body feels stiff sore tired..what a day ....xx

My day started with a very sore throat ..which in turn has turned into a head co...

barbdockeray

•10 years ago

8 Replies

Travel sickness prevention: advice please?

Hello all...for the first time in years & years, I'm just about well enough to take a proper holiday. We've decided to celebrate our 60ths with a sort of...

Hello all...for the first time in years & years, I'm just about well enough to ...

Barnclown

•10 years ago

25 Replies

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Ive been on methotrexate for 18mnths via injection in the last few months i've got tingling in my hands anyone had this?

witch2

•10 years ago

1 Reply

Problems with my stomach all the time now

The problems I have with my stomach have been really getting me down it never go's away now I am sure it is what makes my fatigue worse. I fell bloated, gassy,...

The problems I have with my stomach have been really getting me down it never go...

Kedaco

•10 years ago

12 Replies

Prednisolone

Hi all am still waiting for referral to autoimmune specialist .now 7 weeks on from latest attack. Have symptoms of sjogrens and rheumatoid arthritis plus few...

Hi all am still waiting for referral to autoimmune specialist .now 7 weeks on f...

Alan55

•10 years ago

31 Replies

IVIG experiences to share with a newbie?

I'm being put on IVIG in the next few weeks as a trial to improve my SLE but I don't really know much about it. The Wikipedia article is lacking and I just...

I'm being put on IVIG in the next few weeks as a trial to improve my SLE but I d...

IrishLupie

•10 years ago

4 Replies

Just says it all really , with my picture upside down! I'm out of sorts and think I need help

I have lupus, RA, bronchiestastis along with everything that goes with it all, depression, wonder why!! Recently I have been registerested partially sighted,...

I have lupus, RA, bronchiestastis along with everything that goes with it all, ...

Hetty007

•10 years ago

1 Reply

Has anyone got spongy cushions on their palms? What causes them?

On both of my palms at the base of my fingers I have 4 raised cushions. Never noticed them before. Been like it a few days now that I am aware of. No pain...

On both of my palms at the base of my fingers I have 4 raised cushions. Never no...

overnighthearingloss

•10 years ago

6 Replies

Could I clam pip

I'm am very ill with my mental health very low everyday really don't wanna go out on my own can't take my kids anyway can't take them school or pick them up...

I'm am very ill with my mental health very low everyday really don't wanna go o...

1d2m3p4a

•10 years ago

4 Replies

How do you feel when you have been in the sun?

From what I have read, people with lupus often get a rash when they have been out in the sun. I am at the moment undiagnosed but although I don't get rashes...

From what I have read, people with lupus often get a rash when they have been ou...

Whatamess2

•10 years ago

17 Replies

not sure what category to post this under(thyroid/lupus or other)?

woke this morning feeling just the same -tired after nightmares and disturbed 4 hours sleep.pelvic pain and feeling nauseous.legs swollen.dog s so...

woke this morning feeling just the same -tired after nightmares and disturbed 4 ...

anbuma

•10 years ago

13 Replies

Today at 12:15 AM Hi my daughter who is 18 yrs old has had all the symptoms and medication that is prescribed for lupus, but no diagnosis??

Not one of the many docs she's seen has even mentioned lupus in there attempts to make her well again. I have Raynaud's phenomena and my other daughter has...

Not one of the many docs she's seen has even mentioned lupus in there attempts ...

Lisarok76

•10 years ago

2 Replies

Hi, I have just being diagnosed with dle. I know it's not systemic but I still haven't been told alot about lupas even my gp is not sure.

How to treat me as I have the lumps which I know will get worse and am told I have to have more blood tests dont know why. Has anybody figured out a way to...

How to treat me as I have the lumps which I know will get worse and am told I h...

Hidden

•10 years ago

4 Replies

Gastrointestinal problems - Diagnosis & Causative Given = Connective Tissue Disorder

There have been several posts over the last few months from people suffering gastrointestinal problems such as: Pain under rib, right side Wind (Flatulence)...

There have been several posts over the last few months from people suffering gas...

LupusKaren

•10 years ago

5 Replies

Rushed into A&E Monday morning....omg thought i was going to die...

As every lupus sufferer knows we deal with so much pain daily that we become tollerant with lots of pain...ive been in a very dull progressive flair since a...

As every lupus sufferer knows we deal with so much pain daily that we become tol...

willowwag

•10 years ago

26 Replies

Ongoing dermatology problems

Yesterday I went to Guy's, which I thought was for a lupus consultation but which turned out to be the normal rheumatology clinic (although my appointment note...

Yesterday I went to Guy's, which I thought was for a lupus consultation but whic...

Hidden

•10 years ago

19 Replies

Is the lupus body temperature elevating gradually without control depend on diet, emotions, too busy, stress including aggressive exercise?

Maybe applying to lupus with rheumatoid or all lupus in general. I diagnosis lupus just a year ago, I still learning about it. Please spell them out as some...

Maybe applying to lupus with rheumatoid or all lupus in general. I diagnosis lup...

kimc

•10 years ago

4 Replies

Hi. I really need advice. My 14 year old daughter has been very ill for 5 months. No school in that time.

Initially the gp said she had glandular fever. Her symptoms have got progressivly worse. They are: severe pain in her hips and back. Pain around her ribs....

Initially the gp said she had glandular fever. Her symptoms have got progressivl...

purple-lou

•10 years ago

4 Replies

Taking long shower will not be good for lupus

I read once that lupus people need to take short bath and room temperature water. Also, bathtub is better than under shower. I don't know why...Maybe, it...

I read once that lupus people need to take short bath and room temperature water...

kimc

•10 years ago

11 Replies

Living with lupus

I am just soo fed up with it all at the moment. Am in a constant flare since diagnosis last year (although have CFS history for over 20 years), and every time...

I am just soo fed up with it all at the moment. Am in a constant flare since di...

loulou74

•10 years ago

4 Replies

Laser Eye Treatment:

My eyesight has definitely deteriorated since having lupus which I find very frustrating as do a lot of detailed sewing work. Was considering laser eye surgery...

My eyesight has definitely deteriorated since having lupus which I find very fru...

Fitchick1

•10 years ago

9 Replies

White spots around eyes

I have recently started to have small white spots on my eyes, on the part where eyeliner is applied (can't think of what to call this part of the eye!). I...

I have recently started to have small white spots on my eyes, on the part where ...

Heights69

•10 years ago

4 Replies

Anyone else have issues getting Mycophenalate Mofetil on prescription from GP?

I have been on MMF for 7 months and had no issues getting my medication from my GP as directed by my renal consultant. I have now changed GPs as I moved house...

I have been on MMF for 7 months and had no issues getting my medication from my ...

Heights69

•10 years ago

22 Replies

Hiya asked a question last week about Gabapentine. I've now started taking it and feel ok......

My query now is the 8 hour gap to be left between each of the 3 doses. Say first at 8, second at 4 and then would have to stay up until spay 12 for the third...

My query now is the 8 hour gap to be left between each of the 3 doses. Say firs...

flossy1

•10 years ago

3 Replies

A YouTube Video about 'living with Lupus'

I had not seen this before, but it came through via one of my Lupus websites on my fb page....thought others might like to watch it too-this lady also has a...

I had not seen this before, but it came through via one of my Lupus websites on ...

bam1993

•10 years ago

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I had blood work done and it showed a lab test of 2% out of the 5% for ANA..I'm scared please help!!

Ihi guys I've been on the fibro forum for a while now. I just threw a question out there and hoping to get a response please. I had a arm rash last week took...

Ihi guys I've been on the fibro forum for a while now. I just threw a question o...

sweetdreams1234

•10 years ago

3 Replies

Charity Run Picture

My Superhero Daughter Rachel doing a sponsored run for Lupus. She did the 10k in 1hr 30mins! She raised £240 !!

My Superhero Daughter Rachel doing a sponsored run for Lupus. She did the 10k i...

Hidden

•10 years ago

4 Replies

Starting cellcept (mycophenolate mofetil) , I would love to hear your experience with this.

Do you take it with or without food? Any side effects? If you experience nausea, how long does it normally last after the dose. Any organ involvement?

Do you take it with or without food? Any side effects? If you experience nausea,...

Cherylv

•10 years ago

19 Replies

Does anyone suffer with thickening skin under fingernails and onycholysis

Doctor has diagnosed nail fungal infection and prescribed terbinafine. I m not convinced an thought it could be psoriasis but she wouldn't test for this

Doctor has diagnosed nail fungal infection and prescribed terbinafine. I m not c...

Alex97

•10 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2014

Hi I'm waiting on results to see if i suffer from lupus how long does it take please I've been waiting 3 weeks now and they still not back.

Does anyone have days whete everything feels like climbing mt everest .

Travel sickness prevention: advice please?

Ive been on methotrexate for 18mnths via injection in the last few months i've got tingling in my hands anyone had this?

Problems with my stomach all the time now

Prednisolone

IVIG experiences to share with a newbie?

Just says it all really , with my picture upside down! I'm out of sorts and think I need help

Has anyone got spongy cushions on their palms? What causes them?

Could I clam pip

How do you feel when you have been in the sun?

not sure what category to post this under(thyroid/lupus or other)?

Today at 12:15 AM Hi my daughter who is 18 yrs old has had all the symptoms and medication that is prescribed for lupus, but no diagnosis??

Hi, I have just being diagnosed with dle. I know it's not systemic but I still haven't been told alot about lupas even my gp is not sure.

Gastrointestinal problems - Diagnosis & Causative Given = Connective Tissue Disorder

Rushed into A&E Monday morning....omg thought i was going to die...

Ongoing dermatology problems

Is the lupus body temperature elevating gradually without control depend on diet, emotions, too busy, stress including aggressive exercise?

Hi. I really need advice. My 14 year old daughter has been very ill for 5 months. No school in that time.

Taking long shower will not be good for lupus

Living with lupus

Laser Eye Treatment:

White spots around eyes

Anyone else have issues getting Mycophenalate Mofetil on prescription from GP?

Hiya asked a question last week about Gabapentine. I've now started taking it and feel ok......

A YouTube Video about 'living with Lupus'

I had blood work done and it showed a lab test of 2% out of the 5% for ANA..I'm scared please help!!

Charity Run Picture

Starting cellcept (mycophenolate mofetil) , I would love to hear your experience with this.

Does anyone suffer with thickening skin under fingernails and onycholysis

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