Has anyone been diagnosed with shrinking lung syn... - LUPUS UK
Has anyone been diagnosed with shrinking lung syndrome? Need info on treatments etc. want to understand it more. Recently diagnosed.
Written by
Leanonme68
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4 Replies
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No, never heard of it but I'm sure you'll find plenty of information on the internet 
Sorry this is the first I have heard of it. I have been looking and there is a little on the Internet. It does seem very related to autoimmune diseases such as SLE and myositis but I'm feeling a bit foggy as usual and it was hard to digest the info. X
I have never heard of shrinking lung syndrome. I will be looking it up. Hope it is not serious.
I have shrinking lung / disappearing lung disease which is scaring of the lungs caused in my case by many chest infections
visiting GP and being told my chest was ( as clear as a bell) the damage had been done by the time I was found to have SLE it car'nt be reversed .
