Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,908 members • 28,234 posts

All posts for September 2013

Just about had enough :-(

Lupus has done me in feel like throwing in the towel !!

clarky1

•11 years ago

9 Replies

Really struggling at the moment. Flare

Hi all I am feeling very sorry for myself . I have lupus sle fibromyalgia and chronic fatigue syndrome. I often struggle to determine which of my conditions...

Hi all I am feeling very sorry for myself . I have lupus sle fibromyalgia and c...

Zforsyth

•11 years ago

2 Replies

Can't take much more of this

I am in so much pain with my lower back that I can't stop crying. Had to call out the emergency doc on Wednesday because I was in agony. My muscles had gone...

I am in so much pain with my lower back that I can't stop crying. Had to call ou...

lillyanne

•11 years ago

4 Replies

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VITAMIN D TREATMENT

hi all,i got tested for vit d level,really low <10 so my gps gave me 15 tablets to take 2 a week(tues,sat) then to wait for 6 weeks then go for blood test,in...

hi all,i got tested for vit d level,really low <10 so my gps gave me 15 tablets ...

poodlegal

•11 years ago

9 Replies

Alendronate

Hello community I have had a bone density score returned at -1.8 which technically means I have osteopenia a slightly higher risk of developing osteoporosis. I...

Hello community I have had a bone density score returned at -1.8 which technical...

Sarah74

•11 years ago

14 Replies

Hi everyone-new to this-just getting over shingles-saw locum gp last week-suggested go to own doc and have blood tests for lupus?

I have underactive thyroid, white blood cells constantly in urine(put me on 6 months anti-bio) had pleurisy dec 2011, infection lymph nodes under arm, swollen...

I have underactive thyroid, white blood cells constantly in urine(put me on 6 mo...

-fudge-

•11 years ago

6 Replies

Operation update number 2

Hi everyone, not sure if you can remember my last update but things went from bad to worse. I was taken into A&E by ambulance to find out that my temperature...

Hi everyone, not sure if you can remember my last update but things went from ba...

Carolha

•11 years ago

4 Replies

Have I got lupus?

Hi guys, ive been suffering for years, its only been recently that I have thought that I can not be that unlucky to have so many different things wrong with...

Hi guys, ive been suffering for years, its only been recently that I have though...

justellis

•11 years ago

9 Replies

2 strokes in a week,

I have SLE for 15 years and I can feël That the older I get the worse I feël. I just want to know is There any one That had strokes with lupus, i am terrified.

I have SLE for 15 years and I can feël That the older I get the worse I feël. I ...

Shireenm

•11 years ago

6 Replies

I have SLE, CRPS and type one diabetes. I have to go and have lung biopsy next month over past week my hair is falling out, is this normal??

tanithrs

•11 years ago

4 Replies

MRI SCAN

Its been 5 and a half weeks since I had an MRI scan taken of my brain i have lupus and am being tested for CNS disease. Not had any results yet. Is this the...

Its been 5 and a half weeks since I had an MRI scan taken of my brain i have lup...

uzi41

•11 years ago

6 Replies

Great North Run for Lupus UK

Hi all, This Sunday my husband Robert is doing the Great North Run for Lupus UK. He has worked hard training for this event over the past few months even...

Hi all, This Sunday my husband Robert is doing the Great North Run for Lupus UK....

mstr

•11 years ago

6 Replies

Some Advice!

I really want some advice on a relative that lives in Afghanistan she has suffered with Lupus and Hughes syndrome for a very long time and has managed to...

I really want some advice on a relative that lives in Afghanistan she has suffer...

Danielle2419

•11 years ago

3 Replies

Welcome to the LUPUS UK Community. Feel free to introduce yourself.

Welcome to the LUPUS UK HealthUnlocked community. The point of this community is to provide a space where you can ask questions, share your experience,...

Welcome to the LUPUS UK HealthUnlocked community. The point of this community i...

Paul_Howard

Partner•11 years ago

461 Replies

What next????

Bubble burst, council has been a touch has have said they do not have a duty of care to house me. I am so angry and frustrated that they seem to have come to...

Bubble burst, council has been a touch has have said they do not have a duty of ...

wotshernameagain

•11 years ago

1 Reply

Getting myself in a state!

Hi everyone. Getting myself in a bit of a state which isn't hard at the moment! Tearful worrying mess. Just come back up to 7.5 mg pred after trying to taper...

Hi everyone. Getting myself in a bit of a state which isn't hard at the moment! ...

joannebond360

•11 years ago

14 Replies

Overwhelmed and feeling like a fraud!

Hi I am currently going through a diagnosis for a suspected auto immune disease, which my rheumatologist believed could be 'mild' Lupus. I have been going to...

Hi I am currently going through a diagnosis for a suspected auto immune disease...

She-Ra2013

•11 years ago

9 Replies

Hi,my names Andrew,im 37 and have had S.L.E from 16.I recently received a letter asking to assess for Emp & Support allowance,any advice?

The cold weather normally housebounds me and itsays it may refer me for a work capability assessment which ive heard nothing but bad things about,im worried...

The cold weather normally housebounds me and itsays it may refer me for a work c...

RAZ76

•11 years ago

10 Replies

Does anyone have predominantly one sided symptoms with SLE?

Most of my joint etc pain is predominantly right sided and has always been. Neck, shoulder, chest, abdo & back pain. I thought most SLE symptoms were...

Most of my joint etc pain is predominantly right sided and has always been. Neck...

KeiraMcC

•11 years ago

9 Replies

Hello all-new here! Just been diagnosed lupus nephritis

Been in hospital and off work, back home and slowly getting stronger and used to the medication and side effects! Anyone else out there got any experiences of...

Been in hospital and off work, back home and slowly getting stronger and used to...

Heights69

•11 years ago

17 Replies

Odd pain- help!

No idea how to describe this, but night before last my right arm, wrist, elbow was really painful, achy, but when I felt my wrist or elbow it did not hurt....

No idea how to describe this, but night before last my right arm, wrist, elbow w...

Hidden

•11 years ago

1 Reply

Feeling left high and dry to suffer alone...

So sorry, I only seem to post when I am feeling down! Am having the worst flare I have ever experienced, 5 days so far and no sign of a reprieve. My lower...

So sorry, I only seem to post when I am feeling down! Am having the worst flare...

sparkle247

•11 years ago

8 Replies

Have any if you seen any of the videos about CBD and the benefits it can have for lupus or juicing canabis. I was totally amazed!

moontreegoddess

•11 years ago

47 Replies

Hi when I get these emails they automatically go into my spam folder, does anybody know bow I can stop that please? Regards Lesley

Emails going to spam

Lesley-chard

•11 years ago

3 Replies

Can I pick my life back where I left off?

I am finding this so hard :( I started college last year and was looking forward to training as a midwife! This was a massive achievement for me as I have...

I am finding this so hard :( I started college last year and was looking forward...

zebedee01

•11 years ago

10 Replies

Are they any lupus groups in Durham?

Loutob

•11 years ago

11 Replies

does anybody have the same symptoms as me suffering from possible hypermobility with lupus

hi, i am 18 years old and currently half way through a diagnosis for hypermobility and lupus. I started having symptoms 5 and a half years ago and have had 2...

hi, i am 18 years old and currently half way through a diagnosis for hypermobili...

larap

•11 years ago

11 Replies

I have SLE, crps, and now I have to have lung biopsy to diagnose the prob but the surgeon thinks my breathing prob is due to SLE. HELP!!!!!!

tanithrs

•11 years ago

5 Replies

Newly diagnosed with Lupus and learning to spot the signs of a flare up

I was recently diagnosed through a positive ana result and still waiting to see a rheumatologist. I have had symptoms that started with extreme chronic...

I was recently diagnosed through a positive ana result and still waiting to see ...

Houghton73shaw

•11 years ago

4 Replies

Hughes syndrome

Diagnosed with SLE a month ago and now in hospital with cerebral antiphospholipid syndrome which has caused encephalitis, coordination problems, TIAs and...

Diagnosed with SLE a month ago and now in hospital with cerebral antiphospholipi...

Simmer

•11 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2013

Just about had enough :-(

Really struggling at the moment. Flare

Can't take much more of this

VITAMIN D TREATMENT

Alendronate

Hi everyone-new to this-just getting over shingles-saw locum gp last week-suggested go to own doc and have blood tests for lupus?

Operation update number 2

Have I got lupus?

2 strokes in a week,

I have SLE, CRPS and type one diabetes. I have to go and have lung biopsy next month over past week my hair is falling out, is this normal??

MRI SCAN

Great North Run for Lupus UK

Some Advice!

Welcome to the LUPUS UK Community. Feel free to introduce yourself.

What next????

Getting myself in a state!

Overwhelmed and feeling like a fraud!

Hi,my names Andrew,im 37 and have had S.L.E from 16.I recently received a letter asking to assess for Emp & Support allowance,any advice?

Does anyone have predominantly one sided symptoms with SLE?

Hello all-new here! Just been diagnosed lupus nephritis

Odd pain- help!

Feeling left high and dry to suffer alone...

Have any if you seen any of the videos about CBD and the benefits it can have for lupus or juicing canabis. I was totally amazed!

Hi when I get these emails they automatically go into my spam folder, does anybody know bow I can stop that please? Regards Lesley

Can I pick my life back where I left off?

Are they any lupus groups in Durham?

does anybody have the same symptoms as me suffering from possible hypermobility with lupus

I have SLE, crps, and now I have to have lung biopsy to diagnose the prob but the surgeon thinks my breathing prob is due to SLE. HELP!!!!!!

Newly diagnosed with Lupus and learning to spot the signs of a flare up

Hughes syndrome

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