I have SLE, crps, and now I have to have lung biopsy to diagnose the prob but the surgeon thinks my breathing prob is due to SLE. HELP!!!!!!

[tanithrs]

[Shann07]

Hiya, i totally sympathise with you it is mighty scary when having tests done because there is so much uncertainy, whilst you want good results you need to know whats causing the problems. I too have sle,aps along with overlap diseases and i suffer badly with my lungs. I get shortness of breath alot and this totally freaks me out as it feels very smothering - not good at all its due to scarring on my lungs from lupus. Im on inhalers which dont help much. I have regular pulmonary funtion tests ive one this week & regular CT scans to keep a check on heart & lungs. Just curious in what way is your breathing affected? Breathlessness can be a combination of heart & lung invlovement. I also have mixed connective tissue disaese & my lung damage is totally down to lupus & overlap diseases. I hope everything goes well for you & your results are good x

[jacamac]

Thanks for your post, I am recently diagnosed with sle and I have been suffering from breathlessness and been off work for the last month. I have had chest x-ray, ECG, copd tests, everything has come back clear. I feel much better now, almost back to what is normal for me but I have an appointment with Respitory clinic tomorrow. I don't know what they can do as almost better but I need them to link it to Lupus in order to satisfy sickness policy at work. Will let you know what they say tomorrow xxxx

[Deysi]

Buenos días a todos, espero me puedan entender por que escribo en español y paso el traductor, soy de Perú hace un año y medio me diagnosticaron LES mis síntomas iniciales fueron dolor intenso en manos y luego sensación de falta de aire, cansancio intenso, no podía subir escaleras por que me faltaba el aire, dolor intenso en el pecho, no podía dormir acostada por que me faltaba el aire, solo podía estar sentada, acudí a mi Reumatologo quien me indico Ecocardiograma y Radiografía de tórax donde encontraron Derrame Pericárdico (liquido en el corazón), Derrame Pleural (liquido en los pulmones) y cardiomegalia leve (corazón mas grande de lo normal), el cardiólogo me dijo que era a causa del LES y que al iniciar el tratamiento mejoraría y así fue, actualmente tengo una vida normal y puedo hacer ejercicios y no me canso. Recibí dosis altas de prednisona (60 mg) las cuales han disminuido progresivamente hasta quedar en 2.5 mg diarios, ademas de Hidroxicloroquina 400 mg y Azatioprina 100 mg diarios. Espero que este fuera tu caso y que los exámenes que te indique tu medico sean los correctos antes de llegar a hacerte la biopsia de pulmón. Hay que tener en cuenta que el Lupus es una enfermedad auto inmune que causa la inflamación y edema de cualquier órgano y eso podria estar sucediendo con usted en tus pulmones y corazón. Te deseo mucha suerte y que Dios te bendiga...

[stretch in reply to Deysi]

Hey Deysi...i have no idea what your post says,but it made me smile anyway.cheers petal

[Deysi in reply to stretch]

ok, would be good to go through the Google translator maybe you can understand something, that's what I do to understand you, a big hug for you ..