Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,554 posts

All posts for September 2013

Hey , does anyone have Lupus and Von Willibrand's Disease out there

I was diagnosed with sle AND vwd - which is quite rare - and i havent met anyone like me before so i was wondering if there is anyone out there to help :(

I was diagnosed with sle AND vwd - which is quite rare - and i havent met anyone...

•11 years ago

Arghh! my leg!

ive a new symptom, it is happening within my left hip, its a quick sharp stabbing pain as regular as a heartbeat which send pins and needle like quick pains...

ive a new symptom, it is happening within my left hip, its a quick sharp stabbin...

•11 years ago

Does anyone with Lupus get the shakes ?

•11 years ago

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Does anyone get numb lips?

This a new symptom for me and is very unpleasant! They feel numb, tingly and sore.

This a new symptom for me and is very unpleasant! They feel numb, tingly and sor...

•11 years ago

Has any one been mistakenly diagnosed with Lymphoma? Or had swollen lymph nodes which were suspected could be Lymphoma?

I was recently diagnosed with Lymphoma after a biopsy of a swollen lymph node. I spent 6 weeks thinking l had cancer & preparing for chemo. I was then told my...

I was recently diagnosed with Lymphoma after a biopsy of a swollen lymph node. I...

•11 years ago

hi does anyone get methotrexate injections?

Been on tablets 3 years now being sick and pains in middle of my back to my front feeling very ill so to get injections

Been on tablets 3 years now being sick and pains in middle of my back to my fron...

•11 years ago

Hiya how is everyone doing and feeling

I feeling dreadful with awful cough n bad chest struggling to breath with it n feeling tired n head ache part from tht I am ok just wondering how other ppl r...

I feeling dreadful with awful cough n bad chest struggling to breath with it n ...

•11 years ago

Housing woes any help or advise would be greatly appreciated

Hey guys I am having an awful time trying to get housed by the council after being made homeless. I am currently living in temporary accommodation which is...

Hey guys I am having an awful time trying to get housed by the council after b...

wotshernameagain

•11 years ago

Throbbing ears.

Several years ago, before being diagnosed with Lupus, I went to my GP as I had a persistent feeling of pressure and throbbing/pulsing in my ears which as...

Several years ago, before being diagnosed with Lupus, I went to my GP as I had ...

•11 years ago

Anyone had trouble with infections in the gut, gallbladder and liver? Is it part of the sle.

I have been given a course of antibiotics and anti spasmodics to try and settle the pains and my g.p has taken more blood samples to check my lft and white...

I have been given a course of antibiotics and anti spasmodics to try and settle ...

•11 years ago

very bad back pain

hiya everyone hope you all are coping with your illness i have had lupus for about 18 years now have many symptoms the one i have now is a very bad back...

hiya everyone hope you all are coping with your illness i have had lupus for abo...

•11 years ago

Sheffield Lupus Group Meeting

Hi all :) This is a message for everyone that lives in the vicinity of Sheffield, or if you are prepared or able to travel, our next meeting is coming up on...

Hi all :) This is a message for everyone that lives in the vicinity of Sheffiel...

•11 years ago

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Happy 1yr Lupus Anniversary to Me!

Well friday will be exactly a year since I was diagnosed with lupus. I saw my consultant today who could not believe I was the same woman who walked into his...

Well friday will be exactly a year since I was diagnosed with lupus. I saw my co...

•11 years ago

plaquenil

My friend has Lupus. She was diagnosed with SLE and DLE when she was 21, she is now 48. The plaquenil has never given her any relief and she is worried. The...

My friend has Lupus. She was diagnosed with SLE and DLE when she was 21, she is...

•11 years ago

fatigue

hello everyone, as some of you know im having my worst flare ever, it begun in june. I can usually cope with fatigue as its a daily symptom for me,its now...

hello everyone, as some of you know im having my worst flare ever, it begun in ...

•11 years ago

Is anyone on plaquenil only? And is it controlling symptoms?

Hi everyone. Just wondered if anyone is on plaquenil alone for lupus? I am on 400mg and trying to taper down to 5mg of prednisilone. Only been on it for 4...

Hi everyone. Just wondered if anyone is on plaquenil alone for lupus? I am on 40...

•11 years ago

Morning Everyone I get the shakes a lot mainly down my left side I notice it more when im tired or stressed , does anyone else get this.

•11 years ago

Has anyone found getting a Blue Badge a problem

I am really struggling at the moment, my GP says I shouldn't be working, but I need to as I work for an agency at the moment, so no sickness benefits. I am...

I am really struggling at the moment, my GP says I shouldn't be working, but I n...

•11 years ago

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